Welcome to Daniel,Michael & Ariel's Web Page.About 5 years ago after a head injury Daniel started having grand mal seizures.He had those about once to twice a week for 6 months and then they changed to complex partials.Since then life has been full of ups and downs and a lot of battles trying to control his seizures,he now has many different types.He has been on 8 different anti epileptic medications and a special diet and still continues to have seizures.On February 1st Daniel had a VNS implanted to hopefully help control his seizures.You see after having so many seizures the brain starts getting overloaded and you start seeing all sorts of cognitive and neurological problems,like slurred speech and memory loss and school which was once so easy is now very difficult.Daniel is homeschooled,so it gives us a chance to catch up between doctors appointments.As of May Daniel's VNS implant was turned off because it was making him worse,now he is on the last med and it does seem to be helping.If this fails the only other option is brain surgery.Update as of April 08'Daniel had surgery and had his VNS implant removed .He's doing great on 600mg of Topamax and has not had a Grand Mal in almost 2 years.Now he's having blood pressure issues.Update:In mid December Daniel had his first Grand Mal in 2 years and broke and dislocated his shoulder.Since then he's had about 6 more Grand Mals.He's now up to 750mg of Topamax.In September of 06' Daniel's sister Ariel was also found to have Epilepsy and in April of 08' she was diagnosed with Static Encephalopathy.In September of 08' Daniel's brother Michael was also diagnosed with Epilepsy.All 3 kids are now enrolled in a universal study for siblings with Epilepsy.

Ariel was born 3 weeks early and had severe Respiratory Distress Syndrome.She was in NICU for only a week,but was delayed in crawling,sitting up and walking.She seemed to catch up and then as she got older we noticed she had a lot of troubles with learning.She also started having a lot of medical issues around the age of 10.G.I. troubles,Osteomyelitis in her spine that required a PICC line for 6 weeks,Chronic Tenosynovitis,Tonsilectomy and a lot of other things.After years of testing she was diagnosed with Epilepsy,Static Encephalopathy(premanent non changing brain damage),swallowing issues,severe visual perception problems,Sensory Integration Disorder and IBS.On June 8th she went into a severe Status seizure and has been having problems ever since.She spent a week in the hospital and 3 day in PICU.She's now considered Intractable and is a Make A Wish kid.

Michael was a preemie born at 29 weeks.He was in NICU for 2 months and had tons of procedures done that have left him with quite a few scars,but developmentally has always been normal,until 3 years ago when he fell out of a tree and got a severe concussion and started having dizzy spells and passing out all the time.We went through years of testing,even concern it was possibly a brain tumor,but in September of '08 he was diagnosed with Epilepsy as well.He is fairly well controlled on Anti Epileptic meds,but does still have breakthroughs.

Please keep Daniel,Michael and Ariel in your prayers and sign the kid's guestbook and drop us a line.

ANY HAPPY MAIL FOR DANIEL,MICHAEL or ARIEL CAN BE SENT TO P.O. BOX 551 BURLEY,WA.98322.

DANIEL AT THE USSA FISHING EVENT.

TAKE A LOOK AT THE ARTICLE ABOUT OUR FISHING TRIP.

THE FISHING STORY

HERE ARE SOME OF THE WONDERFUL ORGANIZATIONS The KID'S HAVE BEEN FEATURED ON.

MAKE A CHILD SMILE

CHILDREN OF PROMISE

LOVE QUILTS

THE TUMBLEWEED FOUNDATION

HUGS&HOPE

BRIDGE OF DREAMS

SHARE THE LOVE

FUN SITES

DISNEY 2 GO

DISNEYLAND

GARFIELD.COM

SNOOPY.COM

LEGO.COM

THE DISNEY STORE

DISNEYWORLD

I-LOVE-DISNEY

OTHER HELPFUL SITES.

MONSTER LINKS

KIDS SITES

STARLIGHT FNDTN WA.

GREAT ESCAPES

GREAT ESCAPES 2

STARLIGHT FNDN

STARLIGHT OREGON

ALL ABOUT EPILEPSY(tons of links)