Carli's Page

Welcome to our webpage designed to keep people updated about our daughter/granddaughter/niece/friend Carli N. Carli was diagnosed with lymphoblastic lymphoma (non-Hodgkin lymphoma) on December 3, 2004. The tumor around her heart responded well to chemotherapy, and she completed her clinical trial chemo December 1, 2006. Carli was officially in remission--woohoo! On December 6, 2006, Carli was diagnosed with PCP pneumonia (Pneumocystis carinii). She was admitted to Children's Hospital for 4 weeks and spent her 6th birthday as well as her 4th in the hospital. She made it through 2007 monthly followup cancer free! She continues to enjoy good health through 2008 and into 2010.

Organizations that have touched our lives and so many others with childhood cancers:
www.rmhcseattle.org, www.candlelighters.org, www.curesearch.org,
www.leukemia.org,
www.terryfoxrun.org,
www.caringbridge.org,
www.livestrong.org


We invite you to contribute a great gift!

love builds up the broken wall
and straightens the crooked path.
love keeps the stars in the firmament
and imposes rhythm on the ocean tides
each of us is created of it
and i suspect
each of us was created for it
~Maya Angelou

Journal

Tuesday, February 2, 2010 4:57 PM CST

Carli had her 6-month followup yesterday and now gets to transition to annual followup! They'll scan her heart again in a year looking for any chemo side effects.

Great news from LLS: They sent out their annual Holiday Appeal letter in December with Carli's success story in it and raised $17,000! ($8,000 more than last year)!!

Every time we can participate in something that pays it forward, I feel sooooo good! Makes up for anything lost along the way.

Carli has started ballet after begging me for months while I worked on financing it. When someone asked her how long she has been dancing, she said "Four Tuesdays." So you can see how proud she is! She also is playing piano (practicing not enough of course) and doing well in school.

I love this time on the "cusp" of pre-teen jadedness where she goes between seriousness and fantasy, talking seriously about friend relationships and going on and on about building "fairy houses" at the edge of the playground fence. She is on her 2nd Harry Potter book (thanks Grandma and Grandpa!) while simultaneously reading a book from the public library, telling me, "My capacity is 2 books at a time."

Meanwhile, I am excelling and shockingly enjoying community college review of high school algebra I did poorly in 25 years ago (who knew math was fun?) in preparation for a master's program. I'm trusting this experience will allow me to keep up with Carli in her Math Team.

Signing out,

Erin

Read Journal History

Hospital Information:

Seattle Children's Hospital
4800 Sand Point Way NE
Seattle, WA 98105

Links:

E-mail Author: eyesandhands@gmail.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.