|
Welcome to Caleb's Web Page. It has been provided to keep our family and friends updated on Caleb's battle with T-Cell Acute Lymphoblastic Leukemia (T-ALL). Caleb was diagnosed on July 3, 2002 and was scheduled to complete treatment in September 2005. Unfortunately, just 4 months shy of completing treatment, May 2005, he had an isolated relapse in the testicles. Obviously, the relapse was a huge blow, but we are fortunate in that his bone marrow (BM) and central nervous system (CNS) were not affected. However, it required us to start over. Our options were to go forward and follow a relapse protocol, which meant approximately two more years of chemotherapy OR a bone marrow transplant. Our family was tested and fortunately, Jared was a perfect match. However, after much deliberation and consultation with Caleb's oncologist and several others around the country, we opted to follow the relapse protocol, AALL02P2. It has been a long haul, but on October 2, 2007, Caleb took his final dose of chemo.
Since I mention Caleb's blood counts so often and since they've become such important numbers in our daily lives, I'm posting what normal counts would be in a healthy child for comparison:
White Blood Count (WBC) - (5.0 - 14.5)
Platelets (PLT) - (140 - 420)
Hemoglobin (HGB): >12
Hematocrit (HCT): Transfuse around 20
ANC: Needs to be greater than 1000 to fight off infection
CHILDHOOD CANCER RIBBON
*HUGS* TOTAL!
give Caleb more *HUGS*
Get hugs of your own
Journal
Thursday, May 1, 2008 10:51 PM CDT Hi All,
Well, it's been awhile, but all is going well. On the medical front, all is going very well. Caleb returned to the clinic yesterday. His counts were great with his platelets up to 158. He's no longer on any medication having taken his last Septra last Monday. Weight wise, he was holding at 79 pounds and his height was 4'6" I believe.
We've been busy of course. Caleb was having practice three days a week. He was supposed to have his first game this past Monday, but it was postponed once we got to the park due to the field conditions. So, now games until next week. He's also really getting into skateboarding. Can you say, Ugh! He took a clinic at the skateboard park last week and now he thinks he's Tony Hawk. Makes me nervous as heck especially if he starts skateboarding like he did with the snowboarding he tried this year which is kamakazee style! Scary either way you look at it.
As for Jared, he's running track for his junior high school. Last Thursday was the first meet and he did really well; matter of fact they bumped him up to the varsity squad after that meet. He ran the 800m and the 1600m, which is the 1/2 mile and mile. For the mile, he ran it in 6:01. Not bad for the first meet. I can't recall the number for the 800, but he did well in that one too. Today's meet didn't have a visible clock, so I'm not sure what his time was, but I think it was about the same or maybe a tad better. We'll see. He seems to really be liking in though.
Well, that's pretty much it. I'll update here again soon and I'll try to update the pictures too!
Take care.
Deborah
Read Journal History
Links:
|
|
