Journal

Monday, June 9, 2008 3:06 PM CDT

Well what a busy few months. Weve been busy, busy, busy. Megan is doing great at school. Her reading has come on in the past few months and her spellings are great. Her teacher at school is lovely and does all she can to make Megan feel included in the class. She has loads of friends and they all fight to be her partner. She has a school trip next week to a farm. The school have had trouble getting transport with wheelchair access so i will be driving her there. Obviously not the ideal option but its that or she misses out. Also the class are strating swimming lessons so that brings a heap of other problems. Once again transport is an issue so i will be taking her and bringing back to school. Also Jackie her support worker is unable to go in the water with her as she doesnt have the right certificate.

Megan has just had her MRI scans done at GOSH for her tumour and we got the results back last Thursday. Her scans have all come back clear and the tumour hasnt changed shape and is still non active. The oncologist is very pleased with her progress over the years. Normally Megan would move onto long term follow up with a differant consultant. However the oncologist doesnt feel ready to let Megan go yet, she has a soft spot for her. So she will see Megan in a years time, just before the next appt Megan will have an echo done of her heart and some Kidney scans. All these tests will determine if the chemo has done any damage. She had scans when she finished chemo and everything was fine so they dont forsee any new problems. So healthwise were doing good. We are scheduled for more spinal surgery on 25th July. Thankfully ive managed to organise this so its in the summer holidays as she misses so much school due to so many appointments.

Now i want to tell you about a new piece of equipment that Megan has been bought by a charity. GEORGIES FUND approached me asking if there was anything that would help Megan that wasnt available on the NHS. After speaking to Megans physio it was suggested that a wheelabout would be great for Megan. It is a sort of standing frame that Megan is strapped into in a standing position and then there are big wheels so she can still self propell. Well long story cut short, Megan recieved the standing frame last week. She was a bit scared to begin with but has taken too it like a duck to water. I can never thank all the girls at Georgies fund for this wonderful gift, it will hopefully make her a lot more independant and also improve her muscle tone etc in her legs. Please stop by Georgies fund and read up on George Hayhoe and his battle with Neuroblastoma. Unfortunately George lost his battle and his mum set up the charity in his memory, what a wonderful lady.

Megan in the rabbit ( wheelabout)



Were off on holiday to New Milton July 12th, Megan will be able to have some fun times before she has to go in for surgery again.

Please take a look at the following and grab a duck for postpals









Post Pals
PO Box 278 ,
Leatherhead,
Surrey ,
KT23 4WN Vikki George

Post Pals www.postpals.co.uk is involved in the "Great British Duck Race", on the 31st of August 2008 250,000 rubber ducks will be released into the River Thames to raise funds for good causes. The first duck over the finish line will win £10,000 and there are lots of other prizes up for grabs! Ducks only cost £2 to sponsor with a little donation added on, for every £26 donated to us we will be able to send 100 postcards to seriously ill children and their siblings. Last year we raised just over £100 and would love to double it as we are trying to raise £1000. We are currently a non profit organisation but would like to become a charity, to register we need to of had an income of £5000 in the past year but we still have £1000 to go, registering would mean we could fundraise in the future easier as well as other benefits.

To sponsor a duck please visit
http://www.thegreatbritishduckrace.co.uk/charitypage.php?charity=368 and select "Post Pals" from the drop down menu, please help spread the word by re posting this, putting on blogs, emailing etc. To code for a banner to show up on a blog etc, the code to copy is

If you work for a company they can register as a partner and be a big part of the fundraiser with all staff donations going to Post Pals



The closing time is early on the 31st of August,

Thank you!





http://www.postpals.co.uk – Posting Smile’s on Sick Kids Faces


















Well i will try and update sooner next time.

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Hospital Information:

Patient Room: giraffe ward and elephant day care

great ormond street childrens hospital
great ormond street
london

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