Zoe Alexis
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Welcome to Zoe's CaringBridge site. Zoe was diagnosed with krabbes disease when she was 6 months old. She continues to fight for her life every day.

We have created this site to keep friends and family updated about Zoe's health. Please also take some time to view the pictures of our beautiful Princess.

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  FRIDAY, NOVEMBER 21, 2008 11:58 AM, CST
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It appears that I am on the road to recovery. I am regaining my strength and my fevers seem to have gone for the most. My sore throat remains, but is not quite as bad. Peter is still feeling pretty awful, but I don't think he was hit as hard as I was. I chalk that one up to lack of sleep on my part.

Our sweet little Zoe has once again presented us with a new sense of "normal." Our normal now, is watching our little girl take short shallow breaths through a river of fluids. In the past week, we have gone from watching her every breath and expecting it be her last, to being a little less uneasy about her new normal, as it seems she is ok with it. We have become very comfortable giving Zoe morphine when she starts showing signs of distress, or benedryl to help dry her up so she can rest easy. We have gotten used to administering eye drops every four hours to help her eyes stay moist and she has gotten used to it as well. We don't know when Zoe's time will come, but we know it is somewhat close.

When I don't update for awhile, I start getting worried phone calls, text messages and emails from everyone who cares about us and our daughter, wondering if everything is ok. I want to let you all know, usually, when I don't update for awhile, it's not a bad thing. It usually means nothing significant has developed since my last update. This website is not only to keep everyone out there updated on our girl, but it is also a great outlet for my pain and grief, so you can be pretty confident that if something happens, I will be updating. I need that outlet.

So, I apologize if you sent me an email, text or left me a message with questions of Zoe's health and did not get a response. It's not that I am ignoring you, I appreciate your concern, it's just that it gets a little hard to update people individually. Just know, no news is ok.

I love you all and greatly need your love, support and understanding during this time in our lives.

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  GUESTBOOK SIGNED 14 TIMES TODAY

Please take a moment to sign our guestbook. We love seeing, first hand, how our daughter's life has touched others.

Sabrina, Peter, Michael and Zoe...

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HOSPITAL INFORMATION
St. Joseph's Hospital, AZ
phoenix, AZ
United States
6024063000