First I would like to inform you that the results of Zains EKG and Echo came back reflecting no change since diagnosis!! Yaaayyyy!! This means that his leaky valve condition is still being rated "mild to moderate...more on the mild side", as stated by Zains Cardiologist at Roanoke Carilion. What this also means is that perhaps, and very likely, the medication first prescribed to Zain by his Cardiologist at UVA just after diagnosis, called Enalapryl, is doing just what the doctors have hoped it would. This medication is used primarily in patients with high blood pressure. In Zains case, he does not have high blood pressure. The purpose of this medication for him is that it helps to open up the blood vessels, allowing the blood to flow more feely, therefore easing the tension off that valve, in hopes to prevent further damage. September of this year will make two years on this medicine. So, I am a believer in it at this point...as well as I am a believer in all the prayers I have prayed concerning his heart that have obviously been answered!
As for other issues going on with Zain, on Friday Zain had surgery number nine. This one being cleaning of the ears (fluid & wax) and replacement of tubes, which make his fifth set. Also, his dentist pulled four teeth, capped six teeth 9to serve as protection), restored one tooth, and applied sealants to a few others. He was under sedation almost two and a half hours. I was a very inquiring mother after about an hour and a half!! Needless to say, Zains little mouth and ears were sore for a couple days. Just as I knew it was coming, after lots of sleep, very little appetite, and not being quite himself, Zain perked right back up to his normal self yesterday evening. He woke up with energy, smiles, and asking for mashed potatoes and gravy (one of his favortites). He is such a strong, resiliant boy. I have so much admiration and respect for how he handles all these trials that come with keeping him as healthy as possible. He is WONDERFUL! I Love him more than words could ever explain!!
NOW, we have lots of fun coming our way, just around the corner! On July 15th, the Make-A-Wish foundation is sending us to Disney World for a whole week. I can't wait to witness all the fun both Zain and Star will have. Star is such an awesome sister to Zain. She is ultimately accepting, understanding, and Loves Zain so very much. This trip is just as much for her, because she is right here with Zain, dealing with the affects of MPS. It does affect her life, even daily, in many ways. I am so proud of her and who she is for Zain. I am blessed to have my children. They are both AMAZING to say the very least!!!
~Thank you all for checking on my Zain~
God Bless You
Amy
