Hello Friends, Well, this update is long overdue. First of all, we had a wonderful time at the Beach. Zain and Star were facinated with the ocean. We had a beach front room and about 20 minutes after arriving, Zain took his spiderman pillow out on the balcony and just laid there and watched the ocean. That moment was so precious and adoreable. The beach was definitely so Beautiful. We really enjoyed the conference and meeting other families who's daily lives are much like ours. Just the 'knowing' that there are other people who truly relate and understand what we go through in every aspect is therapeutic in itself. 'Thank You' Dreamcatchers!! (Dreamcatchers is the organization who sponsored the conference). As for treatments, they are still going very well. In fact, we are on our way to getting home infusions going. Representatives from One Path, Shire, and Accredo Clinical Business Solutions have informed me they are working steadily on this. The lady from Accredo told me they are shooting for as early as sometime in October. Zain started school on September 2nd. We have already had a couple issues. One being, him and Star had a subtle virus the first week, and another being Zain has had a couple restless nights, which at times interferes with his attendance. Zain really seems to like his teacher. I am anxious to see how this year goes, as Zain is in a regular classroom setting. I feel his behavior managing difficulties may pose some obsticles, but most of all the academics are most likely going to be the biggest challenge for Zain. I have prayed to God for him to help Zain with school. Knowing that it is so difficult for your child just to get through a regular school day is hard for a Mother to accept. Tomorrow morning we leave for UNC for a series of evaluations. First we have an Orthopedic appointment. Then we are to be admitted. While Zain sleeps tomorrow night, they are going to do a sleep study. The next morning Zain will have a developmental assessment, which I was told by Dr. Muenzer would take hours. So this is going to be two full days for us. Please say a prayer for us and Zain for good results from these appointments, and for strength as we are told the results. I promise to post you about the results much quicker than I did about the beach trip.LOL!! ~~Thank You for checking on my precious Zain.~~ "MY PRECIOUS CHILD, I LOVE YOU AND WOULD NEVER LEAVE YOU. WHEN YOU SEE ONLY ONE SET OF FOOTPRINTS, IT WAS THEN THAT I CARRIED YOU".
|
