My Story

Zackary was born on October 14, 2005. In 2006 he was diagnosed with Costello Syndrome which is a multiple congenital malformation syndrome that only 300 people in the world have. In 2007 Zack was diagnosed with Rhabdomyosarcoma of the bladder. In September 2008 Zackary relapsed and became an angel on September 29th.

Journal

Sunday, June 14, 2009 6:34 PM, EDT


A few prayer requests tonight.  Madison Ursillo was born in March and was diagnosed with HLH an immune disorder that took her brother Justin last year at A.I. Madison is waiting for a match for a bone marrow transplant and is currently home with her family.  Please visit her site and send words of encouragement to her family
www.caringbridge.org/visit/madisonursillo
Also please pray for Jack Langseder his mom Meghan was the first parent I met at A.I. who was so nice to me and always had a smile on her face.  Jack is 13 and was diagnosed with Ewings Sarcoma in 2007.  He recently underwent a triple stem cell transplant and spent a few weeks in the PICU, a place we know very well.  They just received news that the tumors are back in the lung where they were before.  Please pray for a miracle for Jack!

I attended the Original Alex's Lemonade Stand Saturday in Wynnewood Pa with my Mom, my niece Holly, her boyfriend Tim and my nephew Robert.  We had a really nice time, thank you to all the volunteers who took really good care of us.  We decorated butterflies with our wishes and they were displayed for everyone to read.  At noon right before the butterfly release Liz Alex's mom asked another Mom who lost her 2 yr old son and myself if we would join her for the butterfly release.  Liz and Alex's dad spoke then they announced all the hero families to come out and she called us over to release the butterflies.  It was very emotional, but beautiful.  I hope to have pics up and a video of the butterfly release soon. Andrea
 

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HOSPITAL INFORMATION

Alfred I. duPont Hospital for Children
1600 Rockland Road
Wilmington, DE 19899
United States