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My Story

If ever there is tomorrow when we're not together...there is something you must always remember..You are braver than you believe, stronger the you seem,and smarter than you think...but the most important thing is, even if we're apart...I'll always be with you.-Winnie The Pooh Zachary Thomas West 08/25/2000-05/11/2013Zach was born a healthy typical boy, until around the age of two when he started to have trouble walking and talking. We have been on a journey ever since. It took us over 5 years to get Zach properly diagnosed and in the meantime he lost the abilility to walk and talk. He has a very progressive disease called Infantile Neuroaxonal Dystrophy (INAD)


Rachele Chrismer posted a new journal entry, "Zach Attacks!".

Hey Zachy Fans-We are all hanging in there, waiting for the warm weather to arrive. ITs been a rough emotional winter, and know sunshine and warmth could do us all good. ... Read more

Rachele Chrismer posted a new journal entry, "Zach Attacks!".

Ok my Zach Attack Warriors!!! Mother's Day is 77 days which is also the 1 year of losing our precious Zach. I need to bring Joy to Mother's Day this year and that means my ... Read more

Judy Favata signed Zach's Guestbook.

Was just reading about Zach. He had a great smile!He had a really rare disease.I lost my son on Mother's Day 5 years ago. I think of it as THE date, not the fact that it ... Read more

Rachele Chrismer posted a new journal entry, "Rare Disease Day 2014".

I wrote this for CNN to bring awareness to INADOur family joke was always "if we didn't have bad luck, we wouldn't have any luck at all," We would all laugh at that ... Read more

Kristi Ose signed Zach's Guestbook.

I love your entries...though they make me sad...stop it!  Just kidding...I think it's healthy for you to write down your feelings whether it's here or in a journal at ... Read more

Nancy Rudd signed Zach's Guestbook.

Rachelle,  He will come in your dreams and give you peace through thoughts and ideas.  I am reading a library book about that very same idea. You WILL see him, and your ... Read more

Rachele Chrismer posted a new journal entry, "Grief.. a funny thing".

I have sat down to write a couple of times over the past few months.  I have gone back and forth if I should keep this blog up, I am torn. It's an outlet for me, but it's ... Read more

Nancy Rudd signed Zach's Guestbook.

I need more "Zach Attack" handouts.  I should have copied them, but I didn't!  Can you send just one, Rachele, and I will copy them for our Zach Attacks!  I pray for ... Read more

signed Zach's Guestbook.

In Memory of Zach West. His spirit lives on in each of us, and we are thankful for that! Read more

Nancy Rudd signed Zach's Guestbook.

I have found you again.  We "Zack Attacked" the Second Harvest food bank this holiday season.  The working poor go there to get things to eat.  I am glad to have found ... Read more

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