My Story

If ever there is tomorrow when we're not together...there is something you must always remember..You are braver than you believe, stronger the you seem,and smarter than you think...but the most important thing is, even if we're apart...I'll always be with you.-Winnie The Pooh Zachary Thomas West 08/25/2000-05/11/2013Zach was born a healthy typical boy, until around the age of two when he started to have trouble walking and talking. We have been on a journey ever since. It took us over 5 years to get Zach properly diagnosed and in the meantime he lost the abilility to walk and talk. He has a very progressive disease called Infantile Neuroaxonal Dystrophy (INAD)

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Rachele Chrismer posted a new journal entry.

It’s been 460 days since I held my sweet boy.  Oh man does that number sting. In those 460days there hasn’t been 5 minutes that has gone by that I haven’t thought ... Read more

Michelle Smith signed Zach's Guestbook.

I have no words.  I can't even imagine your pain.  My heart goes out to you.  You and your family are in my prayers. Read more

J. Knox Chapman signed Zach's Guestbook.

I work for Hertz Car rental and I found the "Zach Attack" card in a vehicle that had been rented and returned.  I am pleased/honored to hear about this wonderful young ... Read more

Claire from Fairfax VA. signed Zach's Guestbook.

We were Zach Attacked this morning.  A friend and I met up for breakfast at a dinner in Vienna Virginia to celebrate our birthdays.  We went to pay the bill and the ... Read more

Rachele Chrismer posted a new journal entry, "One Year".

For the past few weeks my inbox has been blown up with marketing by companies such as Hallmark, and Target. Signs appear everywhere telling you to not forget your mother, ... Read more

Rachele Chrismer posted a new journal entry, "Zach Attacks!".

Hey Zachy Fans-We are all hanging in there, waiting for the warm weather to arrive. ITs been a rough emotional winter, and know sunshine and warmth could do us all good. ... Read more

Rachele Chrismer posted a new journal entry, "Zach Attacks!".

Ok my Zach Attack Warriors!!! Mother's Day is 77 days which is also the 1 year of losing our precious Zach. I need to bring Joy to Mother's Day this year and that means my ... Read more

Judy Favata signed Zach's Guestbook.

Was just reading about Zach. He had a great smile!He had a really rare disease.I lost my son on Mother's Day 5 years ago. I think of it as THE date, not the fact that it ... Read more

Rachele Chrismer posted a new journal entry, "Rare Disease Day 2014".

I wrote this for CNN to bring awareness to INADOur family joke was always "if we didn't have bad luck, we wouldn't have any luck at all," We would all laugh at that ... Read more

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