My Story is the introduction to our CaringBridge site.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.
In November of 2006, our five year old son Zach began having random bouts of nausea and vomiting accompanied by an increasing loss of coordination. A CT scan performed
Zach’s treatment plan calls for radiation therapy to his entire brain and spinal cord, additional radiation to the posterior fossa where the tumor was located, and then 8-10 rounds of chemotherapy. As of
As a side effect of the brain surgery, Zach developed cerebellar mutism. This is a difficult concept to understand and describe, but what follows is my attempt. The connection between Zach's conscious/cognitive mind and his physical functions are disjointed/disconnected as a result of the trauma to his brain from the tumor and its subsequent removal. It appeared that Zach has regressed to an infant like state. He could not walk or talk and had to wear a diaper again. Yet cognitively he was still in there. He knows everything and everyone he did before. He just can’t make his body work right.
The good news is that this is a transient condition. Zach has been working diligently with Physical Therapy, Occupational Therapy, and Speech Therapy. Zach no longer has to wear a diaper. He communicates through self taught gestures, roars, squeals, and sign language. He is controlling his body much better with sitting up unaided, crawling & scooting around on his own, and standing & walking with support. Zach is on the way back. All he needs is time to strengthen and heal.
Check Zach’s Journal for a Historical Email account of his story.