Zachary Singletary's Journal
Scans Clear!!! See You Next Year :)
Written Nov 12, 2013 10:05pmTonight finds us home again. Zach and Levi are already enjoying being back in their beds. Mom and Dad will be headed that way shortly.
As always it is stressful getting there on time for the MRI and being there for the MRI and getting Zach stuck for the contrast infusion. Yesterday was no different.
First we squeezed in a trip to Downtown Disney and the Lego Store aka Zach's favorite store. A quick supper at the TREX restaurant preceded the do we really have enough time trip to APCH. We made it 30 minutes early. Then a failure to communicate revealed at the last minute that Zach was only getting a "brain" scan not a "brain & full spine" scans. After a phone call and quick email to his doc. We were assured all Zach needed was a "brain" scan because Zach is Six Years Off Treatment now. Mom & Dad were only mildly freaking out because last years three MRI artifact hunt was all in Zach's spine and now it wasn't even going to get scanned. As it typical goes Daddy holds Zach still for the needle stick. Heads in hotel beds by 10:45.
Today we were up and off to find a Chickfila on the way to APCH. Found it and got to the appointment late. We went right back. The doctor came right in and was amazed at the sight of Zach and started talking away. Screech! "His scans looked great. Sorry I should have said that as soon as I walked in." More than an hour of questions answers and planning later we were on our way home again.
In summary, Zach is a walking, talking, amazing miracle. Zach's doctor was amazed at what he has accomplished since last year. Black Belt in karate. Great grades in school. Growing into a young man from the little boy I carried easily through Shands that November this journey began seven years ago. She really knows how this story often goes and Zach's story is a fairy tale among his peers.
Thanks to you all for the prayers, love, and support. We feel them and we truly appreciate them all.
Continuously Praising God!!!
It's "That" Time Again
Written Nov 10, 2013 11:16pmEveryone has their sleepy head resting on their soft pillow in their warm bed at home tonight. Tomorrow night, that will not be the case. The life of our Warrior Zach gets interrupted again tomorrow.
After Zach's class presentation honoring our Veterans at the courthouse Monday morning, we are heading to Arnold Palmer Hospital for Children in Orlando for a MRI of his brain and spine at 7:30 PM . Followed by some sleep in the hotel room. Hopefully.
Bright and early Tuesday morning - not like we will be sleeping much anyway - we are going to see Zach's pediatric neuro-oncologist for his annual checkup and MRI reports. Praying for good reports and clear scans. Then we are North bound to pickup younger brother Levi from Gan and Poppa's.
The plan is for everything to run smooth and easy so we will all be back in our beds at home Tuesday night relieved and resting well.
We will share the good news as soon as we have it to share.
In other news -
Last Friday Zach did a wonderful job in an emotional class program honoring veterans for veterans' day. Thanks to the veterans for their service and sacrifice!
Last Wednesday we traveled to Gainesville for Zach's endocrinology checkup. All reports were good. The daily growth hormone shots are working. He is growing. Otherwise things seem to be fine. Next concern - puberty. We'll deal with that when it gets here or not.
Zach's first report card in fifth grade was loaded with "A's" and one "B"!!! His teachers are very complimentary of Zach's efforts and accomplishments so far this year.
Warrior Zach battles on in his Journey as a Survivor :)
Prayer Warriors lift up prayers of praise and thanksgiving for the glory we see in all that Zach continues to accomplish against the odds.
Prayer Warriors lift up Zach in prayers for safe travels, great checkups, and clear scans.
Prayer Warriors lift up Mom and Dad and Brother Levi in prayers for strength, wisdom, grace, and patience during this time and as the journey continues.
Thanks to you all for your continued prayers and support of Zach and our family.
As we head into this season of Thanksgiving we have an abundance to be thankful for in our miracle man Zach.
Praise the Lord from Whom all these great blessings flow.
Happy Birthday Zach!!!
Written Oct 3, 2013 9:13pm
Today Zach was blessed with another day.
Today Zach exceeded expectations.
Today Zach turned twelve.
Zach got out of bed less than reluctantly in hopes of a big surprise. He got it :) Then like every other day he ate his breakfast on his couch watching TV and got himself dressed for school. And that is where I took him.
As I watched Zach head off to class it was a little overwhelming. Zach headed off to the fifth grade where he is excelling by all measures. Excelling for any fifth grader not just excelling for one who has also been a valiant warrior against a brain tumor and cerebellar mutism and survived. What he accomplishes each day is a miracle but all he wants to be just another kid in the crowd.
Like every kid he just wants to belong. Like every kid that is different he just wants to blend in with the crowd. He doesn't want to be celebrated for the super hero that he is. He just wants to be one of the guys. I think that is why he likes the academic aspect of school so much because it puts him in the middle of the crowd. At least that is my perception.
He was really happy this afternoon when Gan took him Birthday shopping. He arrived with a big grin and a large load of Lego loot in tow. Thanks to our daily attempts to bring joy into our little boy's hospital room Zach is now addicted to new things. We would happily give him the world if we just had a place to stand where we could hand it to him. That's how it goes when you have a blessing this big.
Then tonight reality peeked out before growth group. Levi was running around with the football. He was kicking, passing, and flailing about with abandon tumbling to the ground in silliness. As we all stood around Zach wanted to join in the mix. With great thought and intense animated effort Zach would throw the football. It was not a beautiful sight but he managed some good throws. He did better kicking the ball off the tee but it still required intensity of thought and effort to make his body perform this simple task.
I thought back to earlier in the day when I took birthday brownies to Zach's class at recess. There were classmates running about everywhere on the playground and several were wearing their football jerseys in preparation for the big game today. Here was a tough place to blend in.
Thankfully Zach isn't just like all the other kids.
Because if he were, He wouldn't be
Our "Man of Steel",
Our Super Hero.
Zach is Our Blessing Beyond Measure.
Praise God from Whom All Blessings Flow!!!
Happy Birthday Zach!!!