In Honor of Zachary

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Zachary’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

In November of 2006, our five year old son Zach began having random bouts of nausea and vomiting accompanied by an increasing loss of coordination. A CT scan performed 11/14/2006 revealed a posterior fossa brain tumor and resultant hydrocephalus. On 11/16/2006 at Shands UF Dr. Pincus removed Zach’s tumor. The follow-up MRI indicated the surgeon had successfully removed all the tumor tissue. Pathology reports diagnosed Zach with “Classic Medulloblastoma”. A lumbar puncture on 11/28/2006 showed “suspicious cells” in Zach’s spinal fluid.

Zach’s treatment plan calls for radiation therapy to his entire brain and spinal cord, additional radiation to the posterior fossa where the tumor was located, and then 8-10 rounds of chemotherapy. As of 01/07/2007, Zach has completed the craniospinal radiation and has begun the radiation therapy focused on the posterior fossa. The radiation therapy will be completed by the end of January. After a 4 week break, the chemotherapy regimen will begin.

As a side effect of the brain surgery, Zach developed cerebellar mutism. This is a difficult concept to understand and describe, but what follows is my attempt. The connection between Zach's conscious/cognitive mind and his physical functions are disjointed/disconnected as a result of the trauma to his brain from the tumor and its subsequent removal. It appeared that Zach has regressed to an infant like state. He could not walk or talk and had to wear a diaper again. Yet cognitively he was still in there. He knows everything and everyone he did before. He just can’t make his body work right.

The good news is that this is a transient condition. Zach has been working diligently with Physical Therapy, Occupational Therapy, and Speech Therapy. Zach no longer has to wear a diaper. He communicates through self taught gestures, roars, squeals, and sign language. He is controlling his body much better with sitting up unaided, crawling & scooting around on his own, and standing & walking with support. Zach is on the way back. All he needs is time to strengthen and heal.

Check Zach’s Journal for a Historical Email account of his story.

Latest Journal Update

Momma's Going Bald! 46 Mommas Shave for the Brave 2015 - Kansas City

The Heat of Summer is upon us and Zach's Mom thinks going bald will be a great way to beat the heat!

And a great way to Raise Awareness for Childhood Cancers when folks ask her why she's bald.

And a great way to Raise Funds for Childhood Cancer Research thru St. Baldrick's when you and those folks follow this link to Momma's page and donate to support the cause.

That's right! The Singletary Crew is heading to Kansas City so our Momma join the 46 Mommas this Saturday to "Shave for the Brave".

Expect to see lots of followup pictures and probably even some video of the hair coming off. While this is going to be a fun trip and a joyous event, it is always tempered by the harsh reality of the stories that motivate these Mommas. The reality of childhood cancers and the devastating effects it has on the kids and their families is what inspires the 46 Mommas to take drastic measures to raise awareness and funds in hopes of preventing children in the future from having to fight their own battles against childhood cancer.

Zach's family and friends have seen first hand alot of the negatives of a kid and family having to battle childhood cancer. That's why we are appealing to you to join us in the effort to raise awareness and funding through this event. Please follow the link and contribute. We would greatly appreciate your support and we believe that St Baldrick's is a great place for you to give.

Please keep our family in your prayers for safe travels to & from Kansas City, strength & comfort during the event, and patience as we wait for Mom's hair to grow back.

Quick Zach Update - Summer is off to a galloping start for Zach. He has continually been stretching himself. First with a trip to Salt Life Camp with his Brookwood Family. Then a week worth of daily "Mystery Roadtrips" with his Brookwood Family. Now a cross country trip with his family. Soon he will have the "Best Week Ever" with his Boggy Creek Family. All the while he is capturing pokemon and winning battles in his quest to be a Pokemon Champion.
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1 Comment

lynne columbus
By lynne columbus
Wishing you and your family a wonderful summer filled with fun & healing. Stay strong, Zachary! Warmest thoughts, Lynne Carr Columbus