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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

In November of 2006, our five year old son Zach began having random bouts of nausea and vomiting accompanied by an increasing loss of coordination. A CT scan performed 11/14/2006 revealed a posterior fossa brain tumor and resultant hydrocephalus. On 11/16/2006 at Shands UF Dr. Pincus removed Zach’s tumor. The follow-up MRI indicated the surgeon had successfully removed all the tumor tissue. Pathology reports diagnosed Zach with “Classic Medulloblastoma”. A lumbar puncture on 11/28/2006 showed “suspicious cells” in Zach’s spinal fluid.

Zach’s treatment plan calls for radiation therapy to his entire brain and spinal cord, additional radiation to the posterior fossa where the tumor was located, and then 8-10 rounds of chemotherapy. As of 01/07/2007, Zach has completed the craniospinal radiation and has begun the radiation therapy focused on the posterior fossa. The radiation therapy will be completed by the end of January. After a 4 week break, the chemotherapy regimen will begin.

As a side effect of the brain surgery, Zach developed cerebellar mutism. This is a difficult concept to understand and describe, but what follows is my attempt. The connection between Zach's conscious/cognitive mind and his physical functions are disjointed/disconnected as a result of the trauma to his brain from the tumor and its subsequent removal. It appeared that Zach has regressed to an infant like state. He could not walk or talk and had to wear a diaper again. Yet cognitively he was still in there. He knows everything and everyone he did before. He just can’t make his body work right.

The good news is that this is a transient condition. Zach has been working diligently with Physical Therapy, Occupational Therapy, and Speech Therapy. Zach no longer has to wear a diaper. He communicates through self taught gestures, roars, squeals, and sign language. He is controlling his body much better with sitting up unaided, crawling & scooting around on his own, and standing & walking with support. Zach is on the way back. All he needs is time to strengthen and heal.

Check Zach’s Journal for a Historical Email account of his story.

Feed

Dianne Scoggins signed Zachary's Guestbook.

Warrior Zach, beautiful Savannah, awesome mom and a bunch of fifth graders. Hope they got some pralines.Pralines or not, every day is a sweet victory for Zach, his family ... Read more

Janice McNees signed Zachary's Guestbook.

An emotional time for all, thank you Tim for you insight and vulnerability and being willing to share your highs and lows in such a heart felt way so that we, who have not ... Read more

Tim Singletary added a new photo.

Tim Singletary posted a new journal entry, "Perspective".

After weeks of anticipation and a day of concern over a bellyache yesterday, Zach arose before 5 AM to head out on his first big boy overnight school field trip to ... Read more

Beverly Cox signed Zachary's Guestbook.

Thankful for answered prayers!  Zach,God has given you a fighters spirit continue "warrior to be the best that you can be. Love to y'all, Bebble Read more

Dianne Scoggins signed Zachary's Guestbook.

Zach, you are an amazing miracle!! Glory to God for his many blessings!Hope to you see y'all Thanksgiving. We must have just missed you at Downtown Disney. Yep, we went to ... Read more

Tim Singletary posted a new journal entry, "Scans Clear!!! See You Next Year :)".

Tonight finds us home again. Zach and Levi are already enjoying being back in their beds. Mom and Dad will be headed that way shortly. As always it is stressful getting ... Read more

Donna Sellars signed Zachary's Guestbook.

Hoping you are all getting some much-needed sleep in your hotel room tonight and praying for a great report tomorrow! Praying and believing!!! Love you all!  Donna and ... Read more

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