Benjamin & Xavier’s Story
Welcome to Xavier's website. He is now sharing it with his Little brother Benjamin. They both appreciate all your support and prayers.
If you wish to contact us, here is our information.
2749 IL Route 78, Thomson, IL 61285.
"Full Story" to read Xavier's journey so far.
Xavier was born Aug, 31, 2008. For the first four months of Xavier's life, he was very fussy and had to be held nearly constantly. He didn't sleep, had delayed motor skills, was losing weight, had eyes, arm and leg twitching and had bad reflux. On Dec, 31 2008 he aspirated and stopped breathing. He was airlifted to Rockford Memorial Hospital. He had aspiration pneumonia. Two days later he stopped breathing with aspiration pneumonia again. Lots of test were done to find out what is causing all of Xavier's problems. After 2 weeks in Pedicatic Intensive Care he was transfered to the Pediatic ward. The doctor could not figure out what the problem is. At first the Neurologist thought he had Opsoclonus Myoclonus Syndrome (OMS). It is a very rare auto immune disease where antibodies attack the nerve system and after consulting with the Specialist for OMS, Xavier started treatment. However both Neurologists are not sure he has OMS. We decided Xavier needed to be transfered. After a lot of research we decided to transfer him to Children's Hospital of Wisconsin, in Milwaukee. The day of transfer he had a bad day, was straining to poop, had a temp and holding his breath. His tummy became very bloated. He was in extreme discomfort. He stopped breathing, they bagged him and rushed him back to Intensive Care. He stopped breathing a few more times. An ambulance team of Doctor, Nurse and Respiratory Therapist from Milwaukee Hospital drove down to Rockford to transport him to Children's Hospital of Wisconsin. He was in Pediatric Intensive Care for 2 days then transfered into the Intermediate Care unit. We have had a team of Specialists look at Xavier; Neurologist, Pulmonologist, Gastreontologist, Genetist as well as therapists.
After 9 weeks in the hospital, Xavier passed away from believed Mitochronial Disorder. His youngest brother Benjamin Xavier Gabbard has also being diagnosed with the same condition. Please keep us in your thoughts and prayers.