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In Honor of Wyatt

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Wyatt’s Story

Wyatt Kamp, born March 28th, 2008 was diagnosed shortly after his 4 month well-check with Stage IV N-MYC amplified Neuroblastoma.  He has endured chemotherapies, Bone Marrow Transplant, radiation, antibody therapies, surgeries, brain surgeries, vaccines, and more.  All hopefully Life Saving treatments with numerous side effects which he will deal with all his life.  But, he is here with us today with more spirit and love for life than you can imagine:)   Wyatt is our little warrior.  
Thank you for visiting his site, please feel free to leave him a message on his Guestbook.
With Love and Gratitude,
The Kamps

Latest Journal Update

Still NED

Wyatt's Oncologist called me yesterday.  Same as Prelims said... Wyatt's scans are good, still NED (No Evidence of Disease)!

The "thing" in his brain/ Pituitary area is the same as before... so they will continue to watch it.  They now call it a "Gleosis".  
New information is that in his Thorasic Spine, he has two tiny stress fractures on his Thorasic Vertebrae #10, #11 (kind of in back of the belly button area).  They will heal on their own... but it means we will need to start paying attention to his bone health more carefully.  We will be referred to a Bone Metabolisim expert to work with and get some extra xrays done to keep an eye on that stuff now.  I had asked his Endocriinologist about Osteoporosis and bone weakness due to treatments last time we saw him... he said we don't do anything until we "see" something.... Well, now we have "seen" something!  With having started the Growth Hormone, his body is shifting a bit... the bones are weaker at first in the process, but begin to strengthen eventually.  The doctor said not to restrict any activity due to any of it... the more activity is actually best for his bone density and strength.  We will just start helping strengthening all of it!
Just one more blip in the Wyatt Journey... nothing we can't handle!

Thanks again for following us on this adventure....
With Love,
Eileen, Tony, Eric, Wyatt and Savannah



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Comments

8 Comments

Thandi Nkomo
By Thandi Nkomo
Yay. Great news!
Linda Lutgen
By Linda
Whoo hoo! Great news. So thankful you were able to see those little signs before it was a huge issue in a few months.
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Sarah Tracy
By Sarah Tracy
Great news! Wish they hadn't "seen" anything, but glad you can take steps to help strengthen those bones. Blessings to all of you!
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Marge Reid
By Marge
More good news, nothing going to stop Wyatt now, God bless you all!
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ursula zeilman
By ursula zeilman
God is Good!!
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Deidre Kellogg Ketroser
By Deidre Kellogg Ketroser
Wow...so much your a young boy to have to deal with. But if anyone can deal with it all, it's Wyatt! He is probably blissfully unaware of all of the details and just joyfully living his life, as always. It is an honor to be included on this journey of this amazing boy and your extraordinary family. Sending love, strength, and continued encouragement to all of you,
Deidre & David
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Megan Babin
By Megan
Oh, Eileen (and the Kamp family)....I'm so grateful to hear the good news and continue to send you SO MUCH strength and thoughts regarding the additional blip. As I said, you are ALL warriors and I am in awe of all of you. Wyatt, enjoy running in the sprinklers!
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