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Will’s Story

Go Will! ~ You Rock!
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Hi, My name is Will Pogue and I was diagnosed May 20th, 2008 with Lymphoma. I am being treated by the wonderful doctors and nurses at Phoenix Children's Hospital. I have mommy and daddy and my big sister to help me get better too! Thank you for your prayers. I love you!

On May 21st, they located more bad cells in my bone marrow and changed my diagnosis to Leukemia and on May 23rd, they knew that I had a type of leukemia called ALL. They say this type is very treatable and has a high percentage remission rate. The chemo will make me tired and my tummy hurt, but it will help me get better in the end. Thank you again for your nice thoughts and prayers you have sent.

On June 26th we got the results from my bone marrow study that I have MRD. (minimal residual disease) This means I have an abnormal chromosome from my leukemia and I have to have a more intensive form of Chemo. Only about 10% of leukemia patients get MRD. My initial chemo treatment will last for 11-12 months and then 3 years of maintenance chemo after that. I got put into a high risk group of kids, but Dr. Dana believes that we have every reason to be hopeful for remission and we are going to have to fight alittle harder for it! I can do that!!! Luv to all of you who pray for me!

We moved back home to Minnesota on March 1st, 2009 to be closer to our family there.  We have loved the support that our small town community has brought to us and it feels good to be home.  I now see the doctors at the U of MN and we know we are in excellent hands! 

Latest Journal Update

The Final Procedure!

Yesterday Will got his port out and they let him keep it...we put it in his memory box for a keepsake.  He thought it was cool!  It was out patient and only took about 20 minutes for the surgery.  The pre-op and post-op took longer than anything.  He is pretty sore.  Advil wasn't doing much for him, so I went to go fill his prescription for Tylenol 3. Now he is resting up.  They put all the stitches on the inside and some adhesive strips that fall off in 5-7 days on the outside, but because of where it is, it moves and rubs a lot, so it's really tender for him.  I think given a couple of days, he should feel better.  We are so grateful to have it all behind us now!  Everyone keeps asking what next...he will have monthly count checks (blood draws) for the first year, every 2 months the second year, every 3 months the 3rd year, every 6 months the 4th year and then once yearly from year 5 on.  (I think I got all the numbers correct ;) !)  

The kids are excited for Halloween.  Will has been asking every day..."how many more days"  I think we are going to take them to a trick or treat night at our outdoor mall tonight.  We thought it might be fun for them.  They are supposed to have music, games & each store hands out candy to the kids.  Kind of a good idea since Halloween is on a Monday night this year.  Athena is going to be the corpse bride from the Tim Burton movie and Will is a sith (sp?) from Star Wars.  I will post a picture of them later on.

**Happy Halloween!...Be Safe!....Be Spooky!...Be Happy!**