My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated on Whitney and Ryan Wagenbach and their struggles with Chiari malformation and Syringomyelia.

Whitney was diagnosed with chiari in August 2002 and Syringomyelia in July 2004. Ryan was diagnosed with chiari in September 2005. He was also diagnosed with Ehler Danlos Syndrome in January 2007.

Journal

Friday, May 15, 2009 9:53 PM, CDT


I finally figured out how to update my journal entry!!!!!  YEA!!

  In the last few months we got an MRI and clinic appointment scheduled.  Ryan had his MRI on Thursday.  He did an excellent job and was so brave!  We were so relieved to learn that he does NOT have a syrinx.  Dr. Frim suggested we find an orthopedic doctor or a podiatrist and check his feet since they are bothering him so much.  We are just so thankful we aren't looking at a brain surgery.

  We saw so many of our friends while we were at the Ronald McDonald house.  It was great to get and talk to them all.  Please keep their families in your prayers, so many of them are facing surgeries and tough decisions in the future. 

  We were also able to take $2,500.00 up to Dr. Frim for research.  I think that takes our total up to $8,900.00.  Whitney even sold them at town-wide garage sales and made more than $100.00!!  She was so excited! 

  Also, I just wanted to tell everyone if you get a chance to donate to the RMH please do.  It is such a wonderful place for families during hospital stays, tests, appointments, etc.  They do so much for families of sick children...it is such a blessing.  Thanks! 

www.chiaribracelets.com

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E-MAIL AUTHOR

jonbekwag@juno.com

HOSPITAL INFORMATION

University of Chicago Comer's Childrens Hospital
Chicago, IL