Hannah’s Story

Site created on March 21, 2015

Hannah Grace was born early at 35 weeks and 5 days on St. Patrick's Day 2015 around 5:30 in the evening. She had a full head of dark hair and was beautiful. Prior to birth we knew she had a heart condition called a VSD. The plan was to let her grow and fix the hole in her heart at 3-6 months old. The NICU team tried to suction and was unable to put the tube down her throat or nose. We did not know it at the time. They allowed us to hold her for a picture and then moved her to the NICU for evaluation. Around 11pm a doctor came in and told us that Miss Hannah had more hurdles that just the VSD we knew about. The most pressing was her esophagus did not fully connect to her stomach, causing her not to be able to eat. There was a lot of information thrown at us. The next couple of days were a complete blur. Hannah was transferred by ambulance to NICU at Children's in Dallas. Dad went with Hannah and stayed by her side. Mom recovered one more day at the hospital and then joined them at Children's. We continue to try to be with her as much as we can and juggle time with our two other precious girls, who also still need us. We are exhausted and honestly, explaining things to other people has been secondary because our focus has been on our family and trying to make it through each moment. Truly the hardest experience of our lives. We are so very thankful for each text and concern. Every meal offer, prayer sent up, help with the girls. They do not go unnoticed. She is such a strong little thing already, we can't wait to see the mighty things God has in store for our littlest warrior!!

Newest Update

Journal entry by Angie Booth

It feels really weird to be posting on here. It's been so long since we have written anything. We've made it through a few firsts since our girl left us. Friday is going to be a big one though. St. Patrick's day would have been our Hannah's 2nd birthday. We are taking the day off and have a plan to celebrate her as a family. We also wanted to remember how much of a difference she made in the short time she was here. Thats what all grieving parents want, isn't it? We want our children to be remembered, not forgotten and to know their lives mattered and made a difference. That's where you guys come in. This will be her first birthday in heaven. We would love for people to do a random act of kindness in her honor and of course wear green!! ☘️ Take a picture, tag us if you're on social media or you can post a comment on here. Either way add #warriorhannah to it! We would be honored if you helped us remember her. It is so easy to become bitter, to remember what we lost and not what we had. A good friend told me she prayed to be better not bitter after losing her daughter. I desperately want that. God, please help me to slowly get better and let the bitter be less and less. It consumes me some days. I know it's part of the journey but I don't like it.
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