× Estamos introduciendo nuevas características a CaringBridge. Las traducciones al español no están disponibles actualmente, pero esperamos poder agregarlos pronto. Gracias por su paciencia.

×

Give a Tribute Donation

Help ensure no one has to face life’s most difficult journeys alone by honoring Vinny with a donation to help CaringBridge reach our $1 million goal!

Mi historia

Vinny was born in October of 2003. He was born with a severe Cleft Lip, Cleft Palate, and Pulmonary Stenosis (heart defect). After many surgeries and a few complications, Vinny was diagnosed with Rhabdomyosarcoma on February 15, 2008.

On February 2, 2009 he was declared cancer free, and stayed cancer free for 9 months.    RELAPSED  11/6/09 in the lung.  RELAPSED for his 3rd battle in October 2011 in the orbit and sacrum.  Relapsed 12/11/12

After 4 years of several cleft-related surgeries, Vinny had a Velopharyngeal Flap surgery in October 2007 to help his speech. Two weeks ago Vinny developed what we thought was a sinus infection, ear infection, and severe Sleep Apnea, which we thought was a side effect from his last surgery. We made a few trips to the Pediatrician, ENT, and to our regular Craniofacial Team. After a scan test at the hospital and another surgery to take down the Velopharyngeal Flap, a tumor was found in the base of his skull, blocking his nasal passages. Part of the tumor was removed, and he was diagnosed with Rhabdomyosarcoma. On Friday he had surgery again to insert his Portacath, and they did a spinal tap and bone marrow test to see if the cancer has spread to other places. We should find out tomorrow afternoon what the results are and then we start Chemo in a few days. Please keep Vinny in your thoughts and prayers and we will update you all soon.

After 11 months of treatment, Vinny was Cancer Free for 9 months.  Vinny relapsed in his lungs on 11/5/09. Relapsed again in the Orbit and Sacrum in November of 2011.  He fought all 3 tumors, until August 2012, when after a false "end of life" scare, he was considered "stable" instead and was off of treatment, stable, for 4 months. 

Vinny relapsed for a 4th time, in December 2012, with 5 new tumors in the Spinal Column.  We have done our best to help him survive.  The Oncologists have done all they could do.  Vinny was sent home on Hospice on Dec. 21st, 2012.  He earned his wings Feb. 18, 2013.

During our "Cancer Free" months, we formed a 501c3 Non-Profit Org.  This Foundation is strictly for the other children on our Pediatric Oncology Ward at Brenner's Children's Hospital still fighting this battle.... not for Vinny.  To view our website and find out more:  www.kidsofchildhoodcancer.org 


 

Fuente

Sarah DiGerolamo posted a new journal entry, "Seasons and changes".

"I realized that the loss was not only real in the physical realm, but also in the symbolic realm… my" religious" faith had died a quick and needed death… In it's ... Lea más

Jacob's Dad -> Robert Murphy www.caringbridge.org/visit/jacobmurphy/journal signed Vinny's Guestbook.

I have journeyed. Through the long, dark night.  Out on the open seaBy faith alone,  Sight unknown And yet His eyes were watching meThe anchor holds.  Though the ship ... Lea más

amber lawson signed Vinny's Guestbook.

i am praying for you and your family. can i donate money online? i am glad you write and help others. love amber Lea más

Broden Kostrzewa signed Vinny's Guestbook.

I thought of Vinny on Saturday. We were out to dinner for my birthday and out of no where what landed on my arm?? Yep, bird poop! I've always said our Rhabdo boys were ... Lea más

Lacy Bruggeman signed Vinny's Guestbook.

It made my do see the number "1" by Vinny's name on my CB app! I always love to read about your sweet boy! My thoughts and prayers go out to you as you go through this ... Lea más

Kathy L. signed Vinny's Guestbook.

I look forward to your posts.  I think of you all often, and have kept Vinny and all of you in my prayers.I'm so glad to hear of the teen support group - it might be just ... Lea más

Janet Butler signed Vinny's Guestbook.

So excited to see that our local Pizza Hut in Missouri is listed as participating on tax day! I'll get the word out to as many people as I can! Please know we are praying ... Lea más

Judy Hester signed Vinny's Guestbook.

Sarah, thank you for sharing. You are a blessing to all who know you. You and your family are always in my prayers. Lea más

kristy g signed Vinny's Guestbook.

Not to make this a forum on the changes to CB, but I wrote to them and got the typical corporate response to when I wrote to them about their format changes. ... Lea más

Sarah DiGerolamo added a new photo.

Show more recent activity