My Story

Vinny was born in October of 2003. He was born with a severe Cleft Lip, Cleft Palate, and Pulmonary Stenosis (heart defect). After many surgeries and a few complications, Vinny was diagnosed with Rhabdomyosarcoma on February 15, 2008.

On February 2, 2009 he was declared cancer free, and stayed cancer free for 9 months.    RELAPSED  11/6/09 in the lung.  RELAPSED for his 3rd battle in October 2011 in the orbit and sacrum.  Relapsed 12/11/12

After 4 years of several cleft-related surgeries, Vinny had a Velopharyngeal Flap surgery in October 2007 to help his speech. Two weeks ago Vinny developed what we thought was a sinus infection, ear infection, and severe Sleep Apnea, which we thought was a side effect from his last surgery. We made a few trips to the Pediatrician, ENT, and to our regular Craniofacial Team. After a scan test at the hospital and another surgery to take down the Velopharyngeal Flap, a tumor was found in the base of his skull, blocking his nasal passages. Part of the tumor was removed, and he was diagnosed with Rhabdomyosarcoma. On Friday he had surgery again to insert his Portacath, and they did a spinal tap and bone marrow test to see if the cancer has spread to other places. We should find out tomorrow afternoon what the results are and then we start Chemo in a few days. Please keep Vinny in your thoughts and prayers and we will update you all soon.

After 11 months of treatment, Vinny was Cancer Free for 9 months.  Vinny relapsed in his lungs on 11/5/09. Relapsed again in the Orbit and Sacrum in November of 2011.  He fought all 3 tumors, until August 2012, when after a false "end of life" scare, he was considered "stable" instead and was off of treatment, stable, for 4 months. 

Vinny relapsed for a 4th time, in December 2012, with 5 new tumors in the Spinal Column.  We have done our best to help him survive.  The Oncologists have done all they could do.  Vinny was sent home on Hospice on Dec. 21st, 2012.  He earned his wings Feb. 18, 2013.

During our "Cancer Free" months, we formed a 501c3 Non-Profit Org.  This Foundation is strictly for the other children on our Pediatric Oncology Ward at Brenner's Children's Hospital still fighting this battle.... not for Vinny.  To view our website and find out more:  www.kidsofchildhoodcancer.org 


 

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Sarah DiGerolamo added a new photo.

Sarah DiGerolamo added a new photo.

Sarah DiGerolamo added a new photo.

Sarah DiGerolamo added a new photo.

Robert Murphy signed Vinny's Guestbook.

Our prayer for you, your family, and HomeGrant them peace, most precious gift of all Keep the worried world far away and small When they return, may quiet fill their ... Read more

Erika Reboucas signed Vinny's Guestbook.

Dear Sarah,Olivia and I saw a beautiful rainbow today.  It made me think of Vinny and his signs.  Just wanted you to know that you continue to be in my thoughts.  ... Read more

Amanda Everett signed Vinny's Guestbook.

Dear Sarah, Your posts give me strength, understanding and hope as we are scared and frightened by our future. Emma has relapsed with Rhabdo, found out on May 30. We were ... Read more

Tracy Heiman signed Vinny's Guestbook.

PS.. the pictures are precious!  LOVE them,,, Desi, Vinny and your entire family! Read more

Tracy Heiman signed Vinny's Guestbook.

HI Sarah,So wonderful to hear from you, your ups and downs… but I always hear the love through the sorrow…What inspiring work you are doing…..SO MUCH GOOD and change ... Read more

Sarah DiGerolamo posted a new journal entry, "Time".

Mommy : "When you become an Angel, Vinny, maybe you can help the doctors find the Cure for the rest of our little friends". Vinny:   "That going to ... Read more

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