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Vania'’s Story

HI, My name is Vania' but everyone calls me Nia'. I was a happy normal teen, hanging with friends, playing outdoors,going to school, doing normal kid stuff. One day I told my mom "My knee hurts". She thought I just hurt myself playing but the pain got worse. I ended up in the ER, and a tumor was found in my lower thigh bone. I had to take all kinds of tests. My doctor did a biopsy to see if it was cancer. And I was diagnosed 5/20/11 osteosarcoma that is a bone cancer. I was very mad and sad. It sucks not being able to do all of the things that I used to do. I started my chemo and will have surgery in August and then more chemo to kill the rest of the bad cells.



My journey was a long one. I had to first do 40 weeks of chemo before my surgery. It made hair fall out soon as I started. My dad was more nervous than me when he had to cut it off. I was glad because I'm not that into hair anyway. So as I got close to the end of my chemo my tumor didn't shrink it got bigger. So my surgery came and a week later my mom found out the tumor grew and only 40% of it was dead the other 60% was still living. So I had to another 40 weeks of chemo after surgery. My margins in my top of my thigh and my lower leg was clear of any cancer cells! So I  had all types of scans done to see if I there was cancer cells anywhere else. And there wasn't any. I stopped going to New Orleans and started my chemo in Lafayette. My mom and dad were glad because it was far and they had to spend a lot of gas money too. I like Dr. Morad and Ms. Robyn they are my Dr. and nurse at Kids Speciality. I love Ms. Janie she is extra fun. She always makes sure I have fun or fun stuff to do when I am in the hospital. I like Ms. Donna too at Miles Perret. I got to ride in the Christmas parade and get stuff for Christmas from there too. Ms. Donna also took to a hockey game  we had sooooo much fun! I will be extra happy when all of this is over and I don't have to do anymore chemo ever and I hope it stays that way. I only have 4 weeks left now. Super Happy !!!! I love all of my family who was there for me when I needed it. I am glad everybody wrote me and keep writing me and calling.

From Alva:

Vania' has been on the most trying journey ever in her young life and our family. I am ever grateful to you all who wrote to her or called her. We have received the most out pouring from people that we didn't even know cared. Even though this has been all an utterly bad year for us, God still has blessed us. I love you all and thank you for loving my child!

Latest Journal Update

Summer 14'

Things are great here in Vegas. Rockelle passed Drivers Ed, & is learning to drive! Robyn , Ryan ,& Robert III are doing okay. Questions are still asked from the smaller two the most. Other than that they are fine. New friends, new place, are helping a lot. Far as myself & dad (Robert Jr) we still are in shock & disbelief. It feels so surreal for the both of us. We pray together every night to ease the hurt. But God is working on us through Vania''s passing. We tend to have met people that either have something that links about our daughter or our life. But its always something. I encourage you all to love, pray, eat, laugh, hug, kiss, and enjoy this life. My God will get your attention one way or another. He certainly has gotten ours.

Take care.

Comments

4 Comments

Vania' Caliste
By Vania' Caliste — last edited
Hi Ms. Janie! The kids still talk about you whenever they are playing, its always " remember when Ms. Janie" :+)
Ms. Julie I have been wondering how to contact you all Miss u both dearly , my number is the same.
Thank you Jermond. Now that were closer in your neighborhood. :+)
Janie Eldridge
By Janie Eldridge
Thinking of you and loving you from Louisiana.
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1 person hearted this
Julie Conde
By Julie conde
I think of you guys often. I believe that vania taught me more than I could have ever taught her!!! Give my love to everyone!!!!
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1 person hearted this
jermond manor
By Jermond manor
I'm praying for you all I can't say I know how you feel because I don't but just know that I love you all and I'm here when and if you need me
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2 people hearted this