Aidyn Reid's Journal
Written Feb 1, 2014 1:43pmI am so sorry for the drop. Our friends from Ga. Tech came and Aidyn was excited. Righte when they came the nurse came in to do all his meds and vitals 2 hours late and it was a great visit.
Ok, so where was I? Oh yeah, he began coughing and sneezing Thursday night and when I told the physician, they said it is probably a virus. Anyway, we are on day three of this and he now is horse and it sounds like it is going into his chest but the funny thing is the pediatrician hasn't even listened to him. Anyway, I found out this visit that nurses and other people have been going to doctors and others saying that I've said stuff that I haven't said and said things that they have enterpreted incorrectly, overheard wrong or the doctors have misenterpreted. So yesterday was pretty bad, I just wanted to cry. I can't go into details but my feelings are very hurt by some of the people at this hospital. They tell me not to play doctor and yet when I'm not asking questions and on top of things they tell me to do what I've been doing. I've been sitting here now for 5 days and only had a plan by a physician through day 2. Even today, I've really not been told the plan except that I know we are going home because they tried to discharge us last night because of someone misentrepreting things. Anyway, we are going home today I guess without a physician even looking at him (well I guess they count, as the past 3 days, standing at the door talking evaluating him for discharge). They are getting his medications together now that he is due so we can pack up and go. Oh wait a minute, I'm already packed, lol. I will be taking him to see his regualar doctor in Columbus on Monday.
Please keep him in your prayers. Also keep Nolan in your prayers.
Written Feb 1, 2014 9:39amOkay, crazy post for a crazy week. We got to Atlanta Monday evening with the help of transport. For the first time in 6 years we were a direct admit! We were admitted to the 4th floor. Crazy because nobody on this floor really knows him. At first I thought that it would be okay but it really wasn't. We had at least 3 awesome nurses and then a couple nurses. Because of the weather, we didn't get to see a pediatrician daily but that was okay. There were a couple crazy things that happened. We got to see our favorite doctor, Dr. B on Tuesday and she was letting me know that we should be able to get a new PIC line on Wednesday because all of the periphal cultures were negative and that she would want to do 2 more just to make sure but she felt okay going ahead and putting it back and finishing treatment at home. So as of Tuesday, I thought we would be home by Thursday or Friday. Then there is this stupid chest infection. Because of the weather the rest of the week we saw Dr. Shore and a Pediatrician we never met. I sat here waiting to get line and on Thursday morning I finally told the nurse that I was cutting off his feeds and making him NPO just in case they could put the line in that afternoon so we could leave on Friday. Dr. Shore had already said on Wednesday he thought it could be put back in but since I didn't get to see a pediatrician on Wednesday, I just assumed they would do it on Thursday. Well, nobody ever said anything so I decided for them and asked the nurse to ask them to look at Dr. Shore's note and put it in so we can go home. I was very upset because nobody came in to give me a plan and update me on anything all week. Well, they put the order in and they couldn't get to him on Thursday so they scheduled him for 8 a.m. Friday morning. Well, they had him NPO again all night and at 7:30 I found out it got moved to 11:00. I was furious because he was begging all night for his apple juice. So we allowed him juice and soup until 9 because they called at 8:30 and said that it got moved to 10. Very frustrating. I will finish later, we have some special visitors.
Written Jan 27, 2014 2:24pmWas going to be Discharged today but his culture from Friday grew again so we are being transferred to Atlanta. Just wanted to let everyone know. It is a rare slow growing yeast that can be hard to treat so they are going to pull his PIC line and then we have a waiting game. They sent cultures to Hustonm, TX for sensitivity because the yeast medicine he has been on isn't working. Hopefully, we will know more in 72 hours. Praying it won't be a long stay. This is already day 10. I will post more when I know something.