Aidyn Reid's Journal
Written 7 hours agoOk sorry had to get in the car. We won't know about the MRI u til next Wednesday and as I said we r holding off on his chest surgery because the azithromyacin seems to be working. Please keep Gus, Nolan, and bray den in your prayers. We pray they find answers for them soon as they all are still fighting. I will post more as I know more. Thanks to everyone that is continuing to fight with us.
Love Dora and Aidyn
Written 8 hours agoHaven't had a second to update because we have been running like crazy and have been having to talk about some hard decisions concerning aidyn. He still has 2 drains in his chest and we went to the surgeon on Monday last week after getting out of the hospital. We have been struggling with the decision over whether to operate on his chest or not. There are so many positives and negatives. As of today we are holding off for now. I will update more in a second he just got back.
Written Nov 29, 2013 5:11pmI hope everyone had a great Thanksgiving yesterday and hopefully everyone had a safe shopping day. We have been sitting here in our room at the Medical Center in Columbus. Yes, still here. We were supposed to be discharged on Wednesday but as the papers were being done, lab called and said that the blood culture became positive on day 6! So, we had to stay and wait for identification and sensitivity. On top of that, his white count hasnt went down and stayed down. His CRP went down finally but not his blood count. That positive culture actually gave us a little explanation about that. Still not sure because his drain in his chest is red again and draining a lot. We missed his surgeon follow up on Tuesday and had to reschedule for this coming Monday hoping we will be out this weekend. Yes we were here for Thanksgiving but we were thankful for the food that was brought to us in the evening. I also am grateful to my friend Diana who came up and spent the day with me it really meant a lot. We go way back and it was great just to have a quiet day catching up. Hoping to get out tomorrow but we will see.
My heart is very heavy today. I got a text from a very dear friend of mine that said her son Jordan passed. This is the person I had asked for prayer for that has been in the PICU for so long. He was doing better but then took a turn. My heart broke for her this morning. It also remided me that any of these kids could turn that quick. Please keep Rha and her fall in your prayers this week. He was a very loving young man and had a way with the nurses and staff. I can't say enough about him and his family. Aidyn really liked Jordan. Jordan, we love you and you will always have a special place in our hearts. There are misspelling because i just realized its not picking up all the letters and not letting me correct. Jordan's moms name is Rhonda not Rha.
Love to all
Dora and Aidyn