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Make Sure Ty Jacob Is Not Alone This Holiday Season

Your contributions to Ty Jacob's journal this year made sure that they never felt alone. Your tax-deductible donation in Ty Jacob's honor will make sure that Caringbridge continues to bring hope and healing to those who need it most.

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Ty Jacob’s Story

We have created this site to keep our friends and family updated on our son Ty, who has been battling neuroblastoma since May 2008.

Please keep Ty in your prayers so he can remain No Evidence Of Disease (NED)!

 

 

 

Our son Ty was diagnosed in May 2008 with stage 4 neuroblastoma. He was only 16 months old at the time and has since endured seven rounds of high dose chemotherapy, an Autogolous Bone Marrow/Stem Cell Transplant, 27 rounds of radiation and had surgery to have his tumor removed. In addition, he has countless blood and platelet transfusions, countless MIBG,CT, and x-rays, as well numerous bone marrow aspirates and biopsies.

Ty is our little fighter and has never shown any signs of slowing down, even throughout this entire ordeal. He is so strong and continues to "power through it" with a smile on his face. We are blessed to have such a wonderful, loving, and active little boy and know he will beat this cancer! 

Ty is now 4 years old and had been receiving his treatment through Stanford Hospital in Palo Alto, California. However, due to the last part of his clinical study closing, we were referred to Memorial Sloan Kettering Cancer Center in New
York to receive an antibody called 3F8, which has  shown promising results. From March 2009 to March 2011, we flew coast to coast for his treatment. The 3F8 antibody is an extremely painful treatment that Ty had to endure once a month, provided he was HAMA negative. While in New York, Ty also endured an experimental treatment on his lower left leg, which still showed active disease in February 2010. The procedure involved a small incision made in his left leg and then injecting liquid nitrogen in the area, to freeze the disease.This process is commonly used in bone cancers but not on neuroblastoma. Ty was the third neuroblastoma child at Sloan Kettering to receive this procedure which was successful!

As of April 7, 2010, Ty is officially "no evidence of disease" and Ty finished the 3F8 protocol in March 2011. We made about 15 trips to New York over the course of two years.

Please keep Ty in your prayers so he can remain healthy, happy, and remain no evidence of disease! 

 

Latest Journal Update

4 years......

4 years ago today ( April 7 ,2010), we were in New York City staying at the Ronald Mc Donald House for Ty's monthly treatment of painful antibodies called 3F8. I will never forget receiving an email from Dr. Kushner (Ty's oncologist at Sloan Kettering Cancer Center) stating "Preliminary report says MIBG shows no neuroblastoma and MRI shows no NB. Very nice results!! "

This was the FIRST TIME in 4 YEARS since his diagnosis in 2008 that Ty was finally "No Evidence of Disease"!!

I remember reading that email over and over... I had felt like I won the lottery... finally got the winning ticket for my son. I was overjoyed and just remember getting on my knees, thanking God right then and there. I couldn't wait to tell Scott as he and Ty were still at Sloan. He came to the RMH shortly after and he had already found out from Dr. Kushner himself :) BEST.DAY.EVER.

 Ty, as you all know, continues to remain NED and we hope/pray it continues.

I want to remind everyone that Arms Wide Open Childhood Cancer Foundation( AWOCCF) is holding our 2nd annual ROCC " Running Over Childhood Cancer" 5k family fun run/walk. It will be on May 18, 2014 at the Gilroy Sports Park from 9am- noon.

This year we are dedicating our ROCC run to 6 year old Jennifer Lynn Kranz. Jennifer was a local Gilroy girl who battled DIPG ( inoperable brain tumor) for less than 4 months before she was robbed of her life this past February.

Her parents donated her tumor to Lucile Packard Childrens Hospital, in hopes to find a cure for kids who are battling this beast of a cancer. I used to think neuroblastoma was the worst cancer to have...nope, at least NB has a 30% chance to survive for 5 years... DIPG is a fatal diagnosis... there.is.no.hope.

Even though I never had the opportunity of knowing this spunky little girl... I have felt drawn to her and her journey... it may because of her age ( same age as Ty), she was a local girl, and she was such a beautiful little girl with big brown eyes :) Her mother is a gifted writer and I encourage you to visit her blog at love4jlk.org. All proceeds will go to AWOOCF to fund less toxic treatment for pediatric cancer and to the Jennifer Kranz tumor fund.

This event is very family friendly, we will have face painting, balloon twisters, jump houses, some fantastic raffle items and "Be The Match" bone marrow registry will be there as well. We are still collecting donations for raffles and looking for a few more volunteers.

Registration is now open and I hope all of TEAM TY supporters will attend or at least donate on the ROCC website. I promise you will enjoy yourselves and you will be truly making difference in pediatric cancer. Feel free to share this flyer and if you would like a letter to solicit businesses, please contact me at Carmen@awoccf.org.

Hope to see you there!!

REGISTER at
www.ROCCrun.org 

 With Much Hope,
Carmen
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Comments

3 Comments

Hillary Waldeisen
By
I am so happy that Ty continues to be NED. It makes my heart sing when I read of good scans! We miss you guys and hope our paths cross again. Love to you and your beautiful family Carmen! xoxo
Anne Costa
By Anne Costa
WooHoo FOUR years...awesome...congrats! All our love to Murray family!
Anne & Noah
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Ann Calcagno
By Ann Calcagno
Thank you for everything Carmen!
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