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My Story

We have created this site to keep our friends and family updated on our son Ty, who has been battling neuroblastoma since May 2008.

Please keep Ty in your prayers so he can remain No Evidence Of Disease (NED)!

 

 

 

Our son Ty was diagnosed in May 2008 with stage 4 neuroblastoma. He was only 16 months old at the time and has since endured seven rounds of high dose chemotherapy, an Autogolous Bone Marrow/Stem Cell Transplant, 27 rounds of radiation and had surgery to have his tumor removed. In addition, he has countless blood and platelet transfusions, countless MIBG,CT, and x-rays, as well numerous bone marrow aspirates and biopsies.

Ty is our little fighter and has never shown any signs of slowing down, even throughout this entire ordeal. He is so strong and continues to "power through it" with a smile on his face. We are blessed to have such a wonderful, loving, and active little boy and know he will beat this cancer! 

Ty is now 4 years old and had been receiving his treatment through Stanford Hospital in Palo Alto, California. However, due to the last part of his clinical study closing, we were referred to Memorial Sloan Kettering Cancer Center in New
York to receive an antibody called 3F8, which has  shown promising results. From March 2009 to March 2011, we flew coast to coast for his treatment. The 3F8 antibody is an extremely painful treatment that Ty had to endure once a month, provided he was HAMA negative. While in New York, Ty also endured an experimental treatment on his lower left leg, which still showed active disease in February 2010. The procedure involved a small incision made in his left leg and then injecting liquid nitrogen in the area, to freeze the disease.This process is commonly used in bone cancers but not on neuroblastoma. Ty was the third neuroblastoma child at Sloan Kettering to receive this procedure which was successful!

As of April 7, 2010, Ty is officially "no evidence of disease" and Ty finished the 3F8 protocol in March 2011. We made about 15 trips to New York over the course of two years.

Please keep Ty in your prayers so he can remain healthy, happy, and remain no evidence of disease! 

 

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carmen murray posted a new journal entry, "4 years......".

4 years ago today ( April 7 ,2010), we were in New York City staying at the Ronald Mc Donald House for Ty's monthly treatment of painful antibodies called 3F8. I will ... Read more

Jenna Fowler signed Ty Jacob's Guestbook.

Hi TyMy name is Jenna and I came across your site.  You are an inspiration, a hero, and a courageous determined fighter.  YaY Hooray Because Today You are still NED!  ... Read more

carmen murray added a new photo.

Hillary Waldeisen signed Ty Jacob's Guestbook.

So happy that Ty remains NED! I wish you great success on your ROCC run. I had a dream recently that we were in CA visiting you guys. Hopefully someday we will cross paths ... Read more

carmen murray posted a new journal entry, "UPDATE and IMPORTANT INFORMATION TO SHARE !!".

 So sorry for not updating since October but as they say, no news is usually good news!!!  I have ALOT of important info to share so hope you are patient and read ... Read more

carmen murray added a new photo.

carmen murray added a new photo.

Jessie Cisneroz signed Ty Jacob's Guestbook.

Happy to hear he continues to do well.   I will continue to keep him in my daily Prayers.  It's been a while since I last saw him running through JPD, so it's nice to ... Read more

Hillary Waldeisen signed Ty Jacob's Guestbook.

News like this warms my heart and soul! So happy Ty is doing so well. We miss you guys!! Xoxo Read more

Soledad Uribe signed Ty Jacob's Guestbook.

So happy to hear that all is well and Ty is growing up happy and healthy! Many blessing to you guys and you are always in my prayers.  You go Ty with your Espanol : ) Read more

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