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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.
Hope love and prayers.Together we can save
Tyler Tucker

 JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 


At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.
Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times.
After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.
It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley.


Tyler is now in remission. This doesn't mean he is cured or better in anyway.

Sadly The cancer has done so much damage to Tylers little body.

He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.

The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!


The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior!


Be sure 2 leave a note in my Guest book.
Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."



Latest Journal Update

please help tylers family if you can

Hi every one  ,got a lot own my mind ,Tyler has to go to Atlanta tomorrow and to Maryland on November 20th ,then  Christmas  will be here soon .I need help if any of you can help he's not getting  hardly any donations  ,to help out .own top of this I have to have surgery on October 21st
left  total knee .we need gas cards and food cards  and also some one to rent a car to get Tyler to Maryland I will have to go with them because the doctor wont let me stay by myself .and I don't know if any of you seen the show the other night own drugs in bail more Maryland . its just not good to send Ashley and Tyler by them self .Tyler's little face is pulling side ways and his eye swelled. he's having some bad pain right now. 
also the kids need help for Christmas  .we don't have any money for Christmas
please help Tyler and his brothers if you can I know its two months yet but I will be in hospital for ten days .because aim going to rehab after surgery. May not be own computer much .you all have done so much through the years ,and I thank you from the bottom of my heart .its so sad a sweet child like Tyler has suffered so long he's going to be 14 October 9th w love all Tyler's angels so much
DONATIONS
you can donate to help Tyler at
pay-pal  turpin10648@gmail.com
or       Tyler Tucker c/o Darlene Cox
PO BOX 14386
Greenville, SC 29610
if you know of a church or any one that will help out please send this up date to them
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Comments

3 Comments

Marge Castee;
By Marge Casteel
We want you to know that we continue to hold you and your family in our prayers. - Family of Jameson Casteel (02/13/1997 - 10/21/2009)
Bonnie Ermilio
By Bonnie Ermilio
Please say hello to Tyler from me and tell him he's always on my mind. My heart aches for you, Tyler, and your family that you're in need of so much. Unfortunately, my husband and I are on fixed incomes and can't do much. I give by sending cards, stickers, etc. to over 54 children. Yes, I give forward to these children, one being Tyler. I'm so sorry that's all I can do.
Love to you and Tyler.
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1 person hearted this
Wylene Penland
By Wylene Penland
Dear Darlene,

Praying for you, Tyler and his family. Please tell Tyler that I said Hi.

With prayers & best wishes,

Wylene
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1 person hearted this