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Make Sure Tyler Is Not Alone This Holiday Season

Your contributions to Tyler's journal this year made sure that they never felt alone. Your tax-deductible donation in Tyler's honor will make sure that Caringbridge continues to bring hope and healing to those who need it most.

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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.
Hope love and prayers.Together we can save
Tyler Tucker

 JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 


At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.
Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times.
After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.
It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley.


Tyler is now in remission. This doesn't mean he is cured or better in anyway.

Sadly The cancer has done so much damage to Tylers little body.

He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.

The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!


The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior!


Be sure 2 leave a note in my Guest book.
Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."



Latest Journal Update

god please wrap your arms around tyler and his family

Hi. Well I just can not seem to get things going for Tyler's trip to Maryland on the 20th
My doctor said that I could not be left home by myself
And if I go I have to walk ever hour which will make the trip longer . Richie can not get off work to keep his boys they said they would let him go if he takes the days off .Nathan has to go if I go because can not trust the ones he would have to stay with. No family wont's to help out which is normal
With the kids or staying wit.h me ,them mc Donald house can not let but five stay there
On top of that we will have to rent a van Tyler is in bad shape and he and I need to be able to sit where we won't hurt ,he's hurting really bad both sides his face, and top of that the darn taxes are out own Tyler's mobile home seven hundred dollars oops I wrote wrong its 329.40 own mobile home that is in my name  and taxes on the land it sits own 99COOL SPRINGS CHURCH RD256.13 is in David Baynes name  , the devil is trying so hard but I no god is in control
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Comments

4 Comments

Bonnie Ermilio
By Bonnie Ermilio
I'm sending LOTS of prayers!!!!
Brandon & Karen **
By prayer warriors — last edited
Maybe with the dad working he can help with getting things for Christmas and travel. My mom had total knee replacement and my moms best friend did recently, Although they were in pain .. They recovered quite well. The doc is offering advice but since the kids are older they could help you and you wouldn't be required to travel. After several people went through this and personal knowledge. .. Sometimes the doctor is just making a suggestion and you have extenuating circumstances keeping you home with the older kids. . .. You have to walk and do physical therapy on your leg anyways to get back the range or motion.
I've posted before but the hospitals have special social workers and issue gas vouchers upon request especially for children. Contact the lady about the free private plane. She said she made offers and had emailed you several times. With some problem solving and prioritizing .. things will work out. Vans don't cost that much to rent but if you have a small car with a child .. they should be able to lay down in the back seat and ride comfortably. Everyone must get out and walk every hour or so to increase circulation and prevent blood clots ..especially people with issues or on chemotherapy. We made long trips and just stopped and did what we needed to do. It doesn't take that long or much out of your trip. How did the pain management trip go to Atlanta ? We would love more updates on Tyler. I think it would be more productive. Contact the IRS if you can't pay your land taxes. They come every year and maybe should think about selling. It's just material possessions. Try to look on the bright side of things. A brilliant doctor told me just this week that your mind dictates what goes on with your body. Positive mind goes a long way with your health and well being. I think therefore I am. After all these years .. There has to be some kind of proactive choices in order to help things to run smoothly and become independent of donations. You can't expect donations to keep coming in for every need . Maybe you need to look to other doctors closer who can do something with Tyler's case because Maryland has not been successful if he continues to need surgeries multiple times a year. There's always new people in the field to check in on. Anyways we pray for our sick friends and lord knows there are plenty. We have two friends who are actively fighting Rhabdomyosarcoma and have relapsed multiple times. One is 10 and is on hospice. She sleeps most of the time and has a wound in her jaw that won't close up. Her parents thought they had lost her a few weeks back. She was bleeding everywhere. They lowered her chemo to every other day and just looking for time. Her jaw was effected too. Another is 18 and has planned her funeral... She decided to take chemo that will not be as aggressive so she can hopefully feel good with a quality of life than a quantity. These are active rhabdo cancer fighters who have not been as blessed with a remission. Maybe y'all could help pray for them. Morgan Hasty and Corbyn Wile. They are on caringbridge. There are so many children with rhabdo ... So you're not alone and Tyler could give some inspiration to those also fighting this beast. Kayla Perry is 18 and has neuroblastoma. The doctor told her she is terminal. She started an Open Hearts and Open hands foundation and has raised over 100 thousand for cancer research since her latest relapse. She and Corbyn are both in college with chemo trips weekly. Kayla goes to Atlanta for chemo. They are really a positive influence despite their dire circumstances. Taylor Hendrix is missing a lung on one side and a partial on the other. She had osteosarcoma and started college. She is making it on a partial lung. She could be a source of inspiration. These are suggestions to help inspire and help you all feel better. The situation may seem bleak but there is always something good to look forward to. It's just not healthy to continue to rely on others generosity to provide for the family. It's really up to Tyler's parents to provide for all of their children. It's not to hurt your feelings but times are hard and there are so Many people in similar situations. With government assistant and insurance for the kids, then there are tons of help that you already qualify for to get help and food. Are all the kids in school ? Mom could get a part time job or get on a list for substitute teaching or something. The common thing that is happening is that There is always a need for donations for many needs but you can't depend on them. There needs to be a better way. It is truly out of love and concern that I say these things. I've worked with families in these situations and it's to help them with self sufficiency. Addressing transportation , job search, etc. what Kind of skills does the parents possess to increase employability? I truly want to help because posts are so desperately seeking money.. The kids are getting older .. Maybe y'all could do things that doesn't cost much as a family for Christmas. One year we drove to Washington, D.C. To see all the free museums. It really was a great Christmas. It doesn't have to cost for Christmas. It's not about things. It doesn't have to be expensive... The blessing is that you are all together. Also there are laws that protect parents when they have a sick child and they are the parent taking care but since he hasn't worked long then taking off is detrimental especially if he is in management. I believe things will work out. Take a breath and think of reasonable ways to meet the needs. You will feel so much better when you are not solely dependent on donations for so many things. There is a blessing in it. Look up some of the other kids and check out their stories. Morgan had a tumor in her jaw and it's dropped. She had a trach put in not too long ago after the tumor infiltrated her palette. The surgeon took some of the tumor out that had grown but the wounds are open as the tumor progressed. it's a blessing to know them and see how they make it through these struggles. Sending love and prayers and I hope I don't get bashed again for trying to help. I saw my name on websites that was totally awful to read and didn't represent me or any information I was conveying. Good luck and we keep reading to help. We want Tyler to get help. I just know that things will be better. Just sending up love and prayers.
colleen decker
By colleen decker
Keeping you and family in my prayers that it will all work out..
Darlene COX
By nanny loves you to the moon and back
please please pray for Tyler tucker and his family