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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.
Hope love and prayers.Together we can save
Tyler Tucker

 JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 


At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.
Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times.
After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.
It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley.


Tyler is now in remission. This doesn't mean he is cured or better in anyway.

Sadly The cancer has done so much damage to Tylers little body.

He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.

The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!


The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior!


Be sure 2 leave a note in my Guest book.
Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."



Latest Journal Update

prayers needed for tyty

hello every one just wonted to post to the last  guess book entry.

every word I wright  is  true on  Tyler's page I would never post any thing that wasn't true

it dose not say he had that many surgeries in two years.it says  has had sixty nine surgeries in all 

  it says he's had to make the trips to Maryland

the surgeries was in Maryland / Charleston and Greenville  and not all own his jaw part own his legs. and mouth

the skin hanging from his eye is from so many surgeries and his eye has fluid they told us here in Greenville

  that if this doesn't go away  there will have to do something .    the picture's posted are not resent ones

all can be verified with the doctors in Maryland    so just give me a call at 864 834 8785

at one time Tyler was going to Maryland ever month . them ever three months and  now things have all changed  

and the doctors have done just about all they can do .so he wont go back for six more months

 Tyler doesn't  up date page because he can not spell that good . YES Tyler has schooling  he has home bound

because the doctors thinks that is best for Tyler

 his cruise in went good  even though it started raining .we love love you all and thank you so much

to the lady that wrote this . as i have said before I do the best I can  ,and if you don't like what's written please just stay off Tyler's page . if you are worried about us getting donations Tyler hasn't gotten donations own line in a while  .We go through enough with out your post  I love Tyler with all my heart  . As far as pain management  they had no car and couldn't get him to Atlanta since it was almost four hours from home. mom Ashley couldn't get the Medicaid van  most times when Tyler needed itI 

 I should ignore  the person that wrote this . but this is our page and we are suppose to post what we wont . 

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15 Comments

Brandon & Karen **
By survivors. — last edited
Also they still have our names trashed all over tylertucker.com .. I've asked them to remove it because it was slander. All I ever did was provide information and try to help. We have fought cancer. My husband has issues from the massive amounts of chemo and the multiple surgeries. He had to learn to walk and talk again. We had to learn to adjust financially and physically to and work hard post cancer. They tell me my husbands cancer is incurable at diagnosis but we know that if you can live without relapse for years then that is awesome. You may have struggled always but we are all still together watching our little children grow. Nurturing and loving each other. My husband was given the opportunity to be fast tracked for disability .. Although he couldn't walk and couldn't swallow .. Speech and cognitive functions impaired from being septic and dying .. He didn't die. He fought back .. I refused disability. .. I knew we would work hard to come back. We would focus on the positive of our struggle. .. Reach out to help others .. Be a light .. We have a large family .. We have to work at surviving ... After so many of our friends dying of cancer .. This is a survivor story .. And should be cherished because rhabdo steals precious people from this world. Be thankful ... Tyler's parents seem young enough and need to know that hard work is required for raising kids. Long hours ... Taking jobs you might not like but pays the bills .. We know we've had to struggle and if one thing we mention or share can help. .. Then that is what I want to give. I don't appreciate our good names being slammed on websites .. Our motives questioned when all we have wanted is to support others who are battling or have battled this beast of cancer. Anyways I respectfully request that the negative comments about us be removed from your tylertucker website because of all people. .. My husband doesn't deserve to be named in it. He's told me that you don't want any help from anyone unless it's money.. Since I don't have money .. I do have knowledge and education. It's never too late to do the right thing .. And give the kids a future by being an example. Hard work and earning your way .. Being a problem solver .. Is a great way to raise the kids to reach a higher level .. Our jobs as parents is to raise our kids to be better than we are and to work hard. Regardless of any disabilities .. There is a positive way to look at life in the midst of great difficulties ..
Sarah Nixdorf
By Sarah Nixdorf
Thinking of you.
Www.caring bridge.org/visit/sarahnixdorf
kk love
By Caaaaaaaaa
Hey Kim Kirby guess what.
Others of us are SICK TOO. Chronic pain on a daily basis and meds up the wazoo. Su. Ps our noses are here because we were INVITED. Are you like 15?
kk love
By Caaaaaaaaa
Please tell me then WHY you refused a $60,000 private plane that I offered to get Tyler to his appointments in pure comfort!
I KNOW you proofed my post offering this service. I know you have issues with spelling correctly big time. Did you NOT understand the offer.
Do you understand why people are having troubles? WHY don't Tyler's parents work? Don't bother contacting Cb as I already have.
Who in GOD'S name refuses a $60,000 offer to help YOUR GRANDCHILD??!! Why? Is the offer not understood?
There are tons of other parents beyond pleased and grateful for this offer.
I'm sorry but I sure as ----don't get it. You want to help Tyler but refuse AND delete this spectacular ( wonderful) offer. This has been reported to the proper team. Yes. I'm upset angry and way beyond confused at how you handled this spectacular offer. And you keep trying to spell out how people are wrong and bad.
Where's the mirror and the deadbeat parents?
Brandon & Karen **
By survivors. — last edited
We often share about our struggles and what worked for us. We've followed many kids with rhabdo and three we loved have died in our short time on caringbridge. Never once when I contacted their parents and shared our story or different resources have we ever been accused of any type of malice. I've actually had them thank us because something we said or suggested worked to help their children that they were responsible for providing care. (Plus working in social services and with children's program ..I know my heart is to help others. )
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Kim Kirby
By Kim Kirby
Thinking of you Tyler and Darlene and family. Don't pay attention to the naysayers, just keep doing what you're doing. They say they care, but they should walk a mile in Tyler's shoes before making unwanted suggestions. They have no idea what it's like leaving the house when you're in chronic pain. Being a chronic kidney stone sufferer, I completely understand... both how hard it is to focus on school or work when you're in so much pain, and dealing with all the unwanted suggestions from people who say they mean well, but really just can't help putting their noses where they don't belong. I even get flack from my own family doctor at times! Two stones ago, I asked for a note for work because I was in too much pain to go. She looked at me and said, 'You look fine, you're not writhing in pain. Other people take T3s and go to work.' Finally after I burst into tears and basically had a temper tantrum, she wrote me a note. A week later, I was back in her office. I plopped a small clear container on her desk containing the 9 mm stone I had passed at the hospital while on an IV with morphine. All she could say was 'Wow, no wonder you were in pain.' No apology, no nothing. So as you see, I get it. Fortunately I pass my stones and then I have a reprieve for a few months. I can't even begin to imagine what it must be like for Tyler living with this pain every day of his life. Courage and strength to you both!
Joyce Nosker
By Joyce Nosker
Praying for Tyler and you.
June Junko
By June Junko
I'm praying for dear Tyler.....and for you and all his family too ! :) Much love and many hugs from, june
kathy konrad
By kathy konrad
You do seem to attack anyone who comments with helpful suggestions. I never saw anyone post that Tyler wasn't real and yet you always make mention of that. If Tyler's reading skills are that bad at age fourteen, perhaps he should be in a regular class. Is his current homeschooling done by family or by certified instructors who come to the home? Schools are required to help students with physical and emotional disabilities at no cost to you. Learning to read better would open up a whole new world through books. Social interaction with others his age would also be beneficial. Continued prayers for Tyler.
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Brandon & Karen **
By survivors — last edited
Two years ago when talking about him going to Maryland May 24th you said he had 50 surgeries. ... So I am sorry but when you say 69 .. That means he's had 19 surgeries in two years. I got the number from actually reading and paying attention to the journal.
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