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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.
Hope love and prayers.Together we can save
Tyler Tucker

 JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 


At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.
Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times.
After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.
It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley.


Tyler is now in remission. This doesn't mean he is cured or better in anyway.

Sadly The cancer has done so much damage to Tylers little body.

He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.

The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!


The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior!


Be sure 2 leave a note in my Guest book.
Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."



Latest Journal Update

Tyler has been to hell and back please show your love for this sweet boy

nanny loves you to the moon and back a minute ago
hi aim trying to look up rescores for Tyler its been so long that this is going own and he's old news. there are some comments about asking for help for Tyler and begging for money
I do ask for help and the ones that is complaining never helps any ways so I wish they would just stay off Tyler's page its not coming out of there pocket and I will do any thing I can to get help for Tyler. He is in remission and its not easy to find help .the ones that love and care and wont to help do and we appreciate it so much everything can be proved that Tyler goes through. Most of all I think you all for the prayers .its not like he gets a lot of donation he don't the most he gets comes from me having yard sales 
   
I CALLED CAREING BRIDGE AND THEY TOLD ME TO JUST DELETE THE POST .OR PUT A PASS WORD OWN 
WHAT WOULD YOU DO IF THIS WAS YOUR CHILD  AND YOU HAD NO WAY  OR MONEY TO GET HIM TO THE ONLY DOCTORS YOU CAN FIND  THAT WLL TREAT HIM IN THE WORLD .  I HAVE ASK SOCIAL WORKER S AT HOSPITAL  AND IT IS HARD FOR THEM .MEDICAID WILL NOT PAY FOR HIS MEDICATION IN MARYLAND AND ONLY PART OF THE BILLS  .IT HURTS ME FOR SOME PEOPLE TO SAY IAM NOT  DOING ALL I CAN TO GET TYLER HELP .I LOVE THIS CHILD WITH ALL MY HEART I WOULD DIE FOR TYLER .SO PLEASE JUST PRAY FOR US             
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15 people hearted this

Comments

7 Comments

Stu Buddle
By Stu Buddle
Have you tried a Facebook group? Get the attention of thousands of people on there... Praying for this beautiful little boy X
Brandon & Karen **
By surviving csncer — last edited
Medicaid will pay for medications if you get the doctors to write about medical necessity and get it approved. Just because the doctors are In Maryland .. It doesn't make them not pay for meds. You can take prescriptions to local pharmacy. The doctors can get drugs approved or the social worker. We had docs in Tennessee and New Jersey that wrote prescriptions and they were able to fill without issue. The social workers can also call drug manufacturers and get vouchers or discounts. You can call and ask too especially if he's prescribed drugs that aren't covered. Even experimental drugs can be approved through articulation between doctors and the insurance companies. There's no reason that drug benefits should differ between states. It has to do with the medication and not the doctors prescribing. Again communication between you and the insurance company can get meds approved. Insurance companies also have case managers to help.
Brandon & Karen **
By caregivers
Nobody said anything ugly people from comments. Just a caregiver who's been through the trenches. There's so many resources available to kids and underprivileged people but you have to research and apply. Every hospital has assistance available and there are hospitals and doctors who take difficult cases. Hospitals write off charges .. Social workers can get travel taken care of and lodging. John Hopkins may be able to help. Trying to help with positive changes. It's a sad story. We all want him help. We don't have money and a large family to provide for and medical issues. . Cancer survivors .. Spent yesterday waiting at the docs for another lung infection. Worked in social services. There's training programs for economically disadvantaged that are free ...called WIA... Since his parents are young .. They should look into this type help to increase employability. Pell grants .. Technical program, on the job training ... And resources for a child. Upward bound , launch programs .. Grants .. We want nothing more than to see success ... You can't depend on anyone but yourself in these situations especially long term. I mentioned Morgan Hasty, Corbyn Wile, Kayla Perry, Fuller Goldsmith and many other cancer patients. Taylor Hendrix .. Because they share common problems but some are on hospice. What's wrong with any of this ?
Sarah Nixdorf
By Sarah Nixdorf
Thinking of you and Ty Try.
Hoping he gets the help he needs/and some ppl just dont know or understand.
Www.caringbridge.org/visit/sarahnixdorf
Deb M.
By Deb M.
It breaks my heart when I hear of the cruelty of some people. I would be deleting in the garbage from those who seem heartless. Keeping you all in my thoughts.
Betty Kryszewski
By Betty Kryszewski
I think Caring Bridge has the best idea. Just delete the bad stuff, and keep Tyler's page open to all so more good people can read his story. Although those words cut to bone, they are only a minority of internet trolls. No good people would say things like that to you. Please remember that...No GOOD PEOPLE would say things like that to you.
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1 person hearted this
Sarah Nixdorf
By Sarah Nixdorf
Sending get well wishes and smiles.
Thinking of you, I know b/c I have health stuff going on to.
Www.caringbridge.org/visit/sarahnixdorf