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In Honor of Tyler

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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.
Hope love and prayers.Together we can save
Tyler Tucker

 JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 


At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.
Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times.
After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.
It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley.


Tyler is now in remission. This doesn't mean he is cured or better in anyway.

Sadly The cancer has done so much damage to Tylers little body.

He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.

The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!


The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior!


Be sure 2 leave a note in my Guest book.
Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."



Latest Journal Update

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Hi every one

Tyler still hurting and can not do a lot. I wanted to let you no that there are angels among us we got a call from a lady in NJ she was calling for mr Steven she said for me to get a scan of Tyler's jaw and send to her which I did she said that mr Steven was going to pay for Tyler a new jaw and for the doctor and hospital .iam waiting to here from her. I pray all this comes thru. God dose send mircrials. And I no there is one for Tyler. Please pray for Tyler ,we will need donations for food and travel and maybe a place to stay but will no more about that when we here from kris Dianne .if any one wonts to donate so Tyler can get his new jaw you can do so through his pay pal at Turpin10648@ Gmail. Com or mail to me 85 cool springs church road travelers rest sc 29690 .i no there are angels out there that love and care about Tyler

Tyler has been through so much pain and hurt .but still so strong we love you all so much and are so great full for your love and support of Tyler and his family .most of all please please keep praying for Tyler
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Comments

9 Comments

Brandon & Karen **
By survivors
Set up a Go fund me account so people can see what goal you have for funding and what is being donated ... You can post it everywhere and that will show what you are given and what you need. Who will be doing the surgery ? If you have a private party paying for the surgery and things then you could use The doctor that moved away .
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Sarah Gouzoules
By Sarah Gouzoules
Praying! Sarah C.O.L.E'S Prayer Team www.colesfoundation.org
Pam Tidemann
By
OH!!!! How exciting!!! I pray this comes through for Tyler!! God bless!!
Bonnie Ermilio
By Bonnie Ermilio
Hi, Darlene. WOW!!! That would be so great! There are angels. I'm sending LOTS of hugs and prayers to Tyler to feel better and be able to get the surgery.
Lori Hanson
By Lori Hanson in South Dakota
Tyler is always in my thoughts and prayers!
Sharon Short
By Sharon Short — last edited
I will continue praying for Tyler! God Bless him and the family that loves him so much!
Pamela Finch
By Mrs. Pam
God bless Mr. Steven!
Sarah Nixdorf
By Sarah Nixdorf
Thinking of you.
Www.caringbridge.org/visit/sarahnixdorf
Noel britton
By Noel
Hi Darlene,
Could you give a link for Courage Kids? I'm very interested in finding out more about their charity work and their organization. It sounds like they are doing some amazing things for Tyler and your family through Mr. Steven.
Thanks for posting that link for me! Best wishes!
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