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Tyler’s Story

Welcome to Tyler's Caringbridge page.Tyler is in remission from Rhabdomyosarcoma. He is still facing many surgeries due to complications from the cancer. Please read my story to find out more about Tyler. Please be sure to leave us a note in our guest book letting us know you were here.Hope love and prayers.Together we can saveTyler Tucker  JUST LETTING YOU NO THAT DONATIONS OWN THIS PAGE DOSE NOT GO TO TYLER ,IT GOES TO KEEP CARING BRIDGE PAGES RUNNING SO IF YOU WONT TYLER TO HAVE THE DONATIONS PLEASE SEND TO PAYPAL TURPIN10648@GMAIL.COMOR MAIL TO  TYLER TUCKER C/O DARLENE COX  PO BOX 14386 GREENVILLE SC 29610 At Christmas, just after Tyler turned two he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cist. Doctor Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cist, it is cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC immediately. We felt this couldn't be happening to our baby not Tyler. The staff at MUSC has been wonderful and we were like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.Tyler was having trouble breathing because of his jaw so the Doctor's decided a tracheotomy was needed. At the same time, Tyler's jaw fell so the medical staff had to wire the jaw shut. Then he couldn't keep feeding tubs in forcing them to replace the tube six times. After radiation and chemo Tyler underwent surgery again where they took a bone from Tyler's leg and transplanted it into the jaw. Shortly thereafter it was diagnosed that the cancer have moved to his lungs. Both lungs were infected. Tyler lost the upper right portion of the right lung and chemo seemed to clear up the left lung, as a result of this surgery a chest tub was inserted. Tyler was so strong that he went walking down the hall with that chest tub. Doctor York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby. It has been really hard on our family. Ashley only twenty three and can't work and Tyler in and out of doctor offices and all the trips then and now. But God has been with us and he has got us this far. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air campground so we could be with Tyler and Ashley. Tyler is now in remission. This doesn't mean he is cured or better in anyway. Sadly The cancer has done so much damage to Tylers little body.He has been through 59 surgeries.as of 2014 We will have to take him to MUSC or University of Maryland  for his entire life. He will spend his entire life going through this he will never be 100% better as the doctors told us. He has had a lung removed, and 1/2 of his leg bone tooken out to replace his jaw. Now his jaw replacement isn't working with the leg bone so they have to fix that soon. Not only this he tends to get sick often. He won't be able to do things like normal kids cause of these things. We also have been told he won't eat like other kids, and maybe never able to have a baby when he is older.The cancer he had isn't like most common cancers we have only found 5-6 other kids (This isn't 100% accurate, but the amount is very small in the USA we are just going on what we have found on the net.) Alot of them have had it come back or passed away from it sadly . Tyler wasn't suppose to live is what the doctors told us. We are very lucky to have him I know he is gonna make it!!!!!!The chance of Tyler's cancer coming back is very high, but we think he will be fine cause we are trying so hard to get so much support for him, and having the whole world caring about him. We have hope, and Tyler is a warrior! Be sure 2 leave a note in my Guest book.Poor Tyler's been through a lot and could sure use some cheery mail to remind him that he's special and loved by God! Share a little joy with Tyler by sending him some "happy mail."

Latest Journal Update

Please please pray for Tyler

Hi everyone. Tyler was taken to see dr ONeal

Tyler had scans. .he has osteoradionecrosis is what is eaten his bones away

Tyler will have to go back to Charleston to meet with a team of 6 or 7 doctors to try decide what to do as soon as doctor ONeal can arrange everything

Tyler condition is not good this is bad and will keep eating away on him

Please pray for Tyler. And if you can help with donations to help Tyler with travel and medical expenses please do you can donate at Turpin 10648@pay pal.com or mail to Darlene cox

Please put all checks in Tyler's name

We need help with Tyler he has a lot to go thru 85 cool springs church rd travelers rest sc 29690 and if you can not help you can pray for Tyler

And I no God will send help ,please please pray for Tyler
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Comments

4 Comments

Brandon & Karen **
By survivors
Since Tyler had dental surgery it would put him at risk for this development. All the kids should have dental care including preventative care and the oral surgeons needed all records for this to be avoided. They will need to take a biopsy in order to confirm the diagnosis. Have they biopsied the bone tissue yet ? When did they biopsy it during the dental surgery ? What part of the bone is diseased ? You need to research everything before you make decisions about where to proceed and who to allow to follow. It's important to pick the right specialists and they should do this really quickly. You need to get with the social workers and the case workers for Tyler to get the help he needs and the gas vouchers to get him to the appointments. It doesn't take much effort to get the social workers to help kids with these issues especially those already receiving disability.
Sarah Nixdorf
By Sarah Nixdorf
😍😘😍😘😍😘
Www.caringbridge.org/visit/sarahnixdorf
Joyce Nosker
By Joyce Nosker
Praying for Tyler.
Bonnie Ermilio
By Bonnie Ermilio
Oh, my dearest Tyler, I'm sending LOTS of hugs, love and prayers to you!! I adore you!
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1 person hearted this