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Tyler’s Story

This site is in honor of our brave little fighter, Tyler, who passed away on October 30, 2008, at the age of 7, after a three and a half year fight with a brainstem tumor. We love you Ty, forever and always.

Watch Ty on you tube!search Hibinger Brain Tumor

Tyler was born on September 9,2001. After a ten day stay in the NICU for treatment of Group B Strep Ty was able to come home.He was a pretty healthy little guy until 2004. In late 2004, Tyler slowly started showing symptoms that were so vague and came and left so quickly we just chalked it up to his being 3 years old, and 3 year olds can be quite challenging most of the time. Ty's symptoms varied and started out with him just constantly rubbing his eyes, which we thought might be allergies. He stopped that, and then I noticed that he was so much more irritable than he usually was, but I remember Nate being the same way when he was 3.Soon his mouth started to droop, but it was very subtle and couldn't be noticed most of the time. However when his left eye started to droop as well, we knew something was going on. He was also suffering from headaches. They started out mild, but by the time of diagnoses he was having them often throughout the day and was also vomiting 3-4 mornings a week. He was misdiagnosed as having Bell's Palsy and we had to push for him to get a CAT scan. In June of 2005 we were told he had a tumor on his brainstem. Ty had about 80% of it resected the next week. He then went through a 52 week protocol of Carboplatin/Vincristine. Ty finished that protocol in October2006. He was symtpm free until April of 07. We started on Vinblasitne but only made it through about 6 weeks before the tumor grew some more. We stopped the Vinblastine, and after surgery to relieve some of Ty's symptoms,he was started on Vincristine. The tumor did not change on the Vincristine, but Ty's body could not handle it. He lost all reflexes and became quite off balance.Currently we are at the beginning of 6 weeks of radiation therapy.Ty is doing well. He is a very brave and patient little boy. His big brother Nate has also been through alot with all of this happening, and we are very proud of both of them! Nate and Ty also have a new baby sister, Isabella, who was born in October(2006). Although doctor's are optimistic, they cannot give us a direct answer when we ask about Tyler's long-term prognosis. It is very frustrating to have a child with such a serious illness and have so LITTLE information out there to work with! We will keep up the journal whenever we have any updates. Thank you all for keeping the family in your prayers:-)