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Tyler’s Story

After being diagnosed a 3rd time with leukemia, and a bone marrow transplant  in March 2010, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He currently has Pulmonary Fibrosis and Bronchiolitis Abliterands .....read the journal for further details.....

Tasks from Tyler’s Planner

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Latest Journal Update

He's making a list and checking it twice...

It’s official. Ty is on the Transplant List! Insurance has approved the transplant. All evaluations and tests are done. He has an official score of 45.53. Nationally, 10% on the list have a score of 48 or greater. The higher the score, the more urgent the need. His score is not fixed. As he needs more oxygen or a number of other factors, his score will increase. The score is not the deciding factor of who gets lungs that are available, it’s a tie breaker. The first factor is a biological match. Those on the list who have a biological match to the donor move to the front of the line. Then there is the size match. Generally starts with the height of the donor and the host. The host’s cavity has to be large enough to accept the new lungs and also not too big. Those of the biological match that also match the size, move to the front of the line. If there is more than one who match, the score comes into play. He who has the highest score, wins. Of course, he who has the highest score has the more urgent need.

ALL the mountains set before us have been cast away. Now we wait. For how long, I don’t know. It’s a matter of when lungs become available that are a match for Ty. It could be a week. It could be six months. Off the record, it could possibly be within six weeks from what I hear. But no one can know for sure.

If I may ask for a prayer request from you, it would be this: Pray for the donor. Out there somewhere, there is a person who has no idea that in the very near future their life will be required of them. They will stand before The Almighty. I pray that before that time comes, this person will have realized that they in fact are a sinner and need the saving grace of our LORD and Savior Jesus Christ. That Christ is the pre-existent creator and became a man. He was born of a virgin. He lived a sinless life. Was crucified and died on a cross as the perfect sacrifice for sins of mankind. He physically rose from the dead three days later and appeared to over 500 witnesses before ascending into Heaven 40 days after his resurrection. He currently is seated at the right hand of GOD the Father to intercede on the behalf of those who know Him. And when this person stands face-to-face with The Almighty, Jesus will say one of two things to him. Either He will say: “Well done My good and faithful servant. Enter into your rest.” or He will say: “Depart from Me. I never knew you.” I pray it’s the former and not the latter.

How about you? Do you know whether your life will be required of you in the very near future? What will Jesus say to you when you meet Him face-to-face?

Keepin’ the faith,

Regis