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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.

Latest Journal Update

Update on Ty and Karen

Well it's been an interesting week thus far.  Sunday night Karen was worried about her surgical incision.  It didn't look nor feel right as if there may be an infection.  She called the surgeon on Monday morning.  She told Karen to come in.  I told her to call me as soon as she hears from the doctor.  After calling her several times from work, I figured that there has to be a problem and she's either been admitted or at least under sedation.  So I drove up there to see what was going on.  I met her in the parking garage.  She was leaving as I was driving in.  She forgot her phone and everything is normal.  No infection.
Ty went up to the Clinic (in Medina) for blood lab at 7 am today. (Typically would be home within an hour)   He told them that he hasn't been feeling well lately.  Sniffles, trouble sleeping.  That sort of thing.  They swabbed his nose and said his magnesium was low.  They gave him an IV of magnesium and fluids.  He finally left there about 1:30 this afternoon and has been resting ever since.
Never a dull moment around here.
Keepin' the Faith,
Regis
p.s.  I will gladly take the suffering, frustrations and struggles if it leads to someone else realizing the truth of their sin and need for salvation.  It is needful suffering.  Suffering on this side of life is temporary.  Suffering on the other side of this life is forever and that is unnecessary suffering as the price has been paid for you my friend.  Reach out and take hold of the One who has made you as wonderful as you are.