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Tyler’s Story

After being diagnosed a 3rd time with leukemia, a bone marrow transplant  in March 2010 and a double lung transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease and was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands.  Tyler received new lungs on November 16, 2014.....read the journal for further details

Latest Journal Update

An update on Ty and the family

Hi all,

Ty had clinic today. He had his last drainage tube removed and thorough tests and examinations. It was an all day affair. Left at 6am and returned home at 6pm. He does have an A2 rejection. It is mild and common within the first three months. As I mentioned in the past, he is receiving an IV at home and an increase in steroids. This should all come back to normal this weekend. His new lung function is still on the increase so things are good and he is eager to go to get out of the house. With moderation and very little people contact of course. It’s been too long since he’s been able to have some freedom and it’s great to see him prospering.

In other good news from the family, Josh came home from OSU today. I believe he finished with a 3.7 GPA. I don’t know why, but he keeps saying that Calculus III is hard. It’s great to have everyone home and doing well. So refreshing and satisfying. Also, Chelsea and Micah are closing on a house this Friday. Micah will be moving into it this weekend and Chelsea, after the wedding in May of course.

The only thing we have left is Karen starting her testing and evaluation for a Deep Brain Implant for her Parkinson’s. Pray she is approved for the procedure and it can be done well in advance of the wedding. We’ve seen videos of how this procedure virtually eliminates the symptoms of the disease. It would be so fantastic to see her walking, talking and getting about normally again.

I don’t know what the new year will bring our way but I am looking forward to see a healthy wife and son, a happily married daughter to a young man of upstanding character and another son excelling towards his dreams. Who could ask for more? I have all I need for Christmas. My presents are not under the tree, they are sitting around it. I am blessed beyond measure. I cannot thank and praise the Lord enough for all his loving kindness, grace and mercy towards us all. I stand in awe of His great majesty. I cannot imagine going through life without Him out in front leading the way through these deep waters.

Still keeping’ the faith,

Regis

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Comments

16 Comments

Aunt T Cartier
By Theresa, Adam, Michael, and Mary Beth
Glad to here Tyler is doing well!
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1 person hearted this
Joyce Nosker
By Joyce Nosker
Praying that Tyler's A2 rejection doesn't increase, and that his lung function continues to get stronger.

It's amazing that Chelsea and Micah will have a new house prior to their marriage, and thank you Lord that they have chosen not to live together before they are husband and wife.

Congrats Josh on your success at OSU, go Buckeyes!!!

I too have seen videos of deep brain implantation for Parkinson's. I'm praying that the Lord is guiding each and every decision along this path. The videos look so promising for great reduction in symptoms, and I pray that it will be true for Karen.

Praying for a healthy and very blessed Christmas to your family.

www.caringbridge.org/visit/larrynosker
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Donna Moore
By Donna
I thank God for all the wonderful news for your family please keep me updated on everyone would love to hear when karen has her procedure done.
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Sandy Daron
By Sandy Daron
PTL for ALL of the GREAT news!!!

Love ya,
C.O.L.E.s Foundation
(Caring Openly, Loving Eternally)
www.colesfoundation.org
www.kidsunitetofight.com
www.colespages.org
Email: sandy@colesfoundation.com
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Debby Mooney - St. Louis, MO
By Debby
Praying for Ty's continued recovery, and for all of your family. May God bless you all, Merry Christmas and a very Happy New Year!

COLE Prayer Team - www.colesfoundation.org
Debby Mooney, St. Louis MO
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Sue Steiner
By Sue Steiner
So glad to hear all the good things happening and in the works for your family. Praise God and enjoy!
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