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Tyler’s Story

After being diagnosed a 3rd time with leukemia, and a bone marrow transplant  in March 2010, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He currently has Pulmonary Fibrosis and Bronchiolitis Abliterands .....read the journal for further details.....

Tasks from Tyler’s Planner

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We love you Ty

My dear son,

I have watched you grow from the moment you were born. I knew, at age 4, the Lord had something special for you in life. At the time I did not know what but it was evident He had his hand upon you. You have always been a great joy in the hearts of your mother and I. Mere words cannot express the love we hold for you. We have always admired your great strength and tender gentleness. A character trait that can only be explained as a gift from the Father. You have and still do inspire me to be a better man. When I saw you after your operation last Sunday night, I was in awe. It was surreal to see you lying there, taking deep breaths in a calm and normal way. Something I had longed to see. As I watched you this week miraculously improve, I have been astounded, not by how hard you fight, for we all know you are an exceptional fighter, but by how our Lord has raised you up out of the pit of despair and is restoring you to life. To see you, my son, restored back to yourself. The love and compassion you have for those around you. It is a sweet and beautiful sight for our eyes to see and ears to hear. You have impacted so many lives through your struggles for good and for God’s glory. We are honored to call you son and brother. I cannot express the joy and love I have for you in mere words even though I try. If there is anyone I have ever known who can truly say these words it is you: I have fought the good fight, I have finished the race, I have kept the faith. 2 Tim 4:7. I have watched you on several occasions walk through the valley of the shadow of death and have always been inspired by your faith, grace and dignity. You have brightly shined the light of Christ in this dark world. I can only hope to someday have the faith and strength that you have been gifted with and shared with us. Press on my son. Press on my brother. Press on. For our Father has great plans for you. And in that day, when we stand before Him and He says to you: Well done my good and faithful servant. I will stand and applaud in agreement.

With all of my love,

Dad, your brother and fellow servant