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Tyler’s Story

After being diagnosed a 3rd time with leukemia, a bone marrow transplant  in March 2010 and a double lung transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease and was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands.  Tyler received new lungs on November 16, 2014.....read the journal for further details

Latest Journal Update

Our son, Josh, wanting to make a difference for cancer kids!

When all is said and done we always pray we have taught everything to our kids, to live their lives as an example of Christ, being kind, loving and giving to others. For the many years that we have been battling Tyler's health issues, I haven't seen our youngest, Josh, express much about what Tyler has been going through all of these years.

Recently, that changed when I learned Josh became a team leader for a dance marathon that is held annually. At Ohio State University, the BuckeyeThon is the largest student-run philanthropy in the state of Ohio, which raises funds and awareness for the Hematology/Oncology/BMT Department of Nationwide Children's Hospital. Located in Columbus, Ohio, Nationwide Children's is a part of Children's Miracle Network Hospitals and treats all children regardless of a family's ability to pay. Throughout the year, BuckeyeThon hosts a variety of events and we culminate our efforts with our flagship event the Dance Marathon. The Dance Marathon is a time for celebration, hope, and fun, for our Miracle Kids, dancers, and supporters.

For Josh, many know it has become more personal because of what he has witnessed on his own. In his own words, he describes:

Dear Friends,

I would like to tell you a little bit about my reason for supporting Buckeyethon with the enthusiasm that I do. When my older brother, Tyler, was 6 years old, he was diagnosed with Acute Lymphoblastic Leukemia. After a tough round of treatment and chemotherapy, he went into remission. At the age of 12, he was diagnosed again. After going into remission for a second time, he was diagnosed a third time. He went through more chemotherapy, and had to miss out on most of his junior and senior years of high school. In 2010, he received a bone marrow transplant from my sister that saved his life. He is currently in remission but is now battling pulmonary fibrosis. Throughout my life, I have seen my brother endure so much, along with my family. I was not able to do anything except watch and hope for the best, but now is my chance to do something. My family knows how difficult it is to pay the costs for extremely expensive cancer treatment. These kids receiving this treatment and their families are going through the same thing. I feel that these families deserve help, and their kids deserve to have inexpensive treatment. It's difficult enough to stress about how you're going to pay for your child's ttreatment when you're trying to make sure they're doing well. Please help me to help these kids. From the bottom of my heart, thank you.

I hope you will consider supporting my participation in this dance marathon. Any contribution will help, and all donations are tax deductible.

For the kids,
Josh Froats

I am truly thankful that Josh has taken this step and wanting to make a difference for these cancer kids. To learn more or interested in donating (even $1 can make a difference and help him reach his goal), you can click the link below:

http://www.helpmakemiracles.org/index.cfm?fuseaction=donorDrive.participant&participantID=295118



Blessed in Christ,
Karen Froats

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Comments

3 Comments

leona hensel
By ,Leona hensel
He's got a soft heart ❤ when it comes to kids, especially kids with cancer. God will bless that and use him in a great way. Hoping Tyler is doing alright. We love all of you from your Illinois prayer 🙏 team.
Jennifer Green
By Jennifer Green
You have done a great job with all of your children. Praying always for your family.
Jennifer Green
c.o.l.ed's prayer team
www.colesfoundation.org/
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Melanie Kettner-Borough
By Melanie Kettner-Borough
So touching to see how Josh is working out his own journey with Tyler's suffering. Lauren, Kyle's donor has done so on a smaller scale raising money for a volunteer group in the hospital oncology ward in Málaga after showing very little response to his illness. Praying for your sweet family. Xx
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