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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.

Latest Journal Update

It was the best of times. It is the best of times.

Ty’s Bronchoscopy shows that he is having a mild rejection.  Something they anticipate and are not surprised by.  It doesn’t appear to have any physical affects on him but the increased meds do.  He’s just not himself when he’s on the increased meds.  He’s been dating a very nice girl, Hannah, for a couple of months now.  He is taking the relationship slow to be certain that he has his priorities straight - God first and foremost.

Karen is still doing well.  It’s so nice to see her happy and laughing again.  I can’t help but love her.

Josh just got back from OSU last night for the summer.  He thoroughly enjoys college life and the independence it brings.  He’s been home for 24 hours and I’ve seen him for 1 of those hours.

Chels is busy, busy, busy with finalizing wedding arrangements.  She and Micah will be man and wife on the 31st of this month.

Me?  Well, I’m just livin’ the dream.  Got my wife. Got my kids.  They’re all doing very well and I could not be more content.  As God has promised in Psalm 37:4- Delight yourself in the Lord and He will give you the desires of your heart.  He’s the dream maker.  He gives you the dream and then brings it to fruition.  I am blessed on all sides and I owe it all to Him.

Dreams do come true when you trust in the One and Only Lord God Almighty.  Delight yourself in Him.  He has kept His word, every letter of it.  I testify to that.  Will you?

Keepin’ the faith,

Regis

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Comments

3 Comments

Faye Curtis
By Faye Curtis
God is good if we ask for help, he will help us through some nasty times. Thanks you Jesus Christ or true father.
Gail Parmley
By Gail — last edited
Yes...Iwill testify to that also Regis! Thank you for all your posts, and continued faith and support you give to your family and our Almighty God!
Love you...your sis in law...
Sarah Nixdorf
By Sarah Nixdorf
Thinking of you and mazol tov to the bride to be.
Sending smiles.
Www.caring bridge.org/visit/sarahnixdorf