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Tyler’s Story

After being diagnosed a 3rd time with leukemia, and a bone marrow transplant  in March 2010, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He currently has Pulmonary Fibrosis and Bronchiolitis Abliterands .....read the journal for further details.....

Tasks from Tyler’s Planner

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Latest Journal Update

He's making a list and checking it twice...

It’s official. Ty is on the Transplant List! Insurance has approved the transplant. All evaluations and tests are done. He has an official score of 45.53. Nationally, 10% on the list have a score of 48 or greater. The higher the score, the more urgent the need. His score is not fixed. As he needs more oxygen or a number of other factors, his score will increase. The score is not the deciding factor of who gets lungs that are available, it’s a tie breaker. The first factor is a biological match. Those on the list who have a biological match to the donor move to the front of the line. Then there is the size match. Generally starts with the height of the donor and the host. The host’s cavity has to be large enough to accept the new lungs and also not too big. Those of the biological match that also match the size, move to the front of the line. If there is more than one who match, the score comes into play. He who has the highest score, wins. Of course, he who has the highest score has the more urgent need.

ALL the mountains set before us have been cast away. Now we wait. For how long, I don’t know. It’s a matter of when lungs become available that are a match for Ty. It could be a week. It could be six months. Off the record, it could possibly be within six weeks from what I hear. But no one can know for sure.

If I may ask for a prayer request from you, it would be this: Pray for the donor. Out there somewhere, there is a person who has no idea that in the very near future their life will be required of them. They will stand before The Almighty. I pray that before that time comes, this person will have realized that they in fact are a sinner and need the saving grace of our LORD and Savior Jesus Christ. That Christ is the pre-existent creator and became a man. He was born of a virgin. He lived a sinless life. Was crucified and died on a cross as the perfect sacrifice for sins of mankind. He physically rose from the dead three days later and appeared to over 500 witnesses before ascending into Heaven 40 days after his resurrection. He currently is seated at the right hand of GOD the Father to intercede on the behalf of those who know Him. And when this person stands face-to-face with The Almighty, Jesus will say one of two things to him. Either He will say: “Well done My good and faithful servant. Enter into your rest.” or He will say: “Depart from Me. I never knew you.” I pray it’s the former and not the latter.

How about you? Do you know whether your life will be required of you in the very near future? What will Jesus say to you when you meet Him face-to-face?

Keepin’ the faith,

Regis

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Comments

11 Comments

Edie Chaffee
By
So glad the mountains have been cast away - may Tyler rest in God's faithfulness.
Thanks, Regis for your constant witness & challenge. May God grant peace & blessing on the Froat's family.

Love & prayers from the Chaffee's & Fairview PCA -
leona hensel
By leona hensel
God knows momma when Tyler will get his lungs. Hang in there. We're praying in the meantime. Love and prayers your Illinois team
Beverly Olson
By Beverly Olson, Cuyahoga Falls, OH
Such exciting...and long-anticipated...news, Regis! I, too, have thought about the fact that, with all transplants of this nature, one person's death is required in order to provide life for another. But, we leave this in the hands of the Father...Thy will be done. I, too, pray that whomever Tyler's benefactor will be, if that individual has not yet done so, he will receive Christ as Savior and Lord.
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Aunt T Cartier
By Theresa, Adam, Michael, and Mary Beth
Rege, Karen, Chelsea and Josh: Praying for all of you as well as Tyler! This is certainly a test of Faith. But Faith builds Hope. So I know that Jesus will do what is best for all of you, Tyler, and the donor (if there is one). My prayer for all of you is to have the Faith the Lord will put you all where you need to be (as He will) and fold you in the arms of His loving grace! Tyler is strong. He lets the Lord carry him when he can no longer go on and that is what the Lord truly wants from each of us: total Faith that we let Him do His work through us! Prayers, prayers and more prayers...
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Kris Dillenbeck
By Kris Dillenbeck
Not a day goes by that Tyler isn't in my thoughts and prayers. Stay strong Tyler and the Lord will get you through. Our help come from the Lord....just trust in HIM.
Tanica Clark
By Cindy Taylor
What awesome news. Just hope Ty can hang on till those miracle lungs become available. So sad to hear abt him struggling so much & also so sad that another life has to be lost in order for him to have a better life. Mixed emotions which ever way one looks at it. Stay strong Ty till the perfect match can be found. Thoughts with you & the family
Joyce Nosker
By Joyce Nosker
Thankful that Tyler is officially on the list!

Thank you for remembering the person who will become the donor. I have thought of this person also. Your prayer for that person is so perfect. Thank you.
The Shugert Family
By The Shugert Family
We will continue to pray!

Love to all of you!
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Brenda Lucius
By Brenda Lucius
So thankful for this great news! I was so focused on Tyler that I hadn't even thought of the donor and I am so glad you encouraged us to pray for that person. You are so right!!
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Greg Petersen
By
Well put Regis, and such a weighty and powerful thought about the person who will give up those lungs. We tend to just want to look past that critical truth. Praying for you guys and for the donor.
Love you, Greg
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