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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.

Latest Journal Update

Hard to believe.....

It is been an incredible 6 months.  Hard to believe 6 months ago, today, he received his double lung transplant.  These days seem busy for Tyler.  He isn't home much but when he is, he is usually practicing his songs for Relay for Life.  He was asked to sing again this year.  He was also asked to share his story and talk about his experience.  What an honor to be able to share with so many individuals.  I cannot help but think we have 6 more months and hopefully can meet the family of the donor who saved his life.  That would be an awesome experience but only if it is God's will to do.


In the meantime, we continue to prepare for Chelsea and Micah's wedding.  Just 2 short weeks until she will be Micah's wife.  Just please pray that the details will come together for her and she will be able to get the rest she needs.

Thank you for your love and support.  We are so grateful for your love.

Blessings,

Karen 


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Comments

4 Comments

Beverly Olson
By Beverly Olson
Six months! Yay! It's so good to hear that Ty is out and about with friends, living the life a young man should live. How exciting for Chelsea, Micah and their families! I pray blessings on their marriage and on the entire Froats family.
Kris Dillenbeck
By Kris Dillenbeck
It are many things to be Thankful for in your family!!! Very busy and exciting time coming up too....... Not a day goes by that the Froats family isn't in my thoughts and prayers.
Sandy Daron
By Sandy
WOW!! I can't believe it!! PRAISE GOD!!

EXCITING times!! I can't wait to see the pictures!

Love ya,
C.O.L.E.s Foundation
(Caring Openly, Loving Eternally)
www.colesfoundation.org
www.kidsunitetofight.com
www.colespages.org
Email: sandy@colesfoundation.com
Faye Curtis
By Faye Curtis
sounds great for all the family, hope you are also doing well. Thanks for the update. Faye