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Tyler’s Story

After being diagnosed a 3rd time with leukemia, a bone marrow transplant  in March 2010 and a double lung transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease and was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands.  Tyler received new lungs on November 16, 2014.....read the journal for further details

Latest Journal Update

An update on Ty and the family

Hi all,

Ty had clinic today. He had his last drainage tube removed and thorough tests and examinations. It was an all day affair. Left at 6am and returned home at 6pm. He does have an A2 rejection. It is mild and common within the first three months. As I mentioned in the past, he is receiving an IV at home and an increase in steroids. This should all come back to normal this weekend. His new lung function is still on the increase so things are good and he is eager to go to get out of the house. With moderation and very little people contact of course. It’s been too long since he’s been able to have some freedom and it’s great to see him prospering.

In other good news from the family, Josh came home from OSU today. I believe he finished with a 3.7 GPA. I don’t know why, but he keeps saying that Calculus III is hard. It’s great to have everyone home and doing well. So refreshing and satisfying. Also, Chelsea and Micah are closing on a house this Friday. Micah will be moving into it this weekend and Chelsea, after the wedding in May of course.

The only thing we have left is Karen starting her testing and evaluation for a Deep Brain Implant for her Parkinson’s. Pray she is approved for the procedure and it can be done well in advance of the wedding. We’ve seen videos of how this procedure virtually eliminates the symptoms of the disease. It would be so fantastic to see her walking, talking and getting about normally again.

I don’t know what the new year will bring our way but I am looking forward to see a healthy wife and son, a happily married daughter to a young man of upstanding character and another son excelling towards his dreams. Who could ask for more? I have all I need for Christmas. My presents are not under the tree, they are sitting around it. I am blessed beyond measure. I cannot thank and praise the Lord enough for all his loving kindness, grace and mercy towards us all. I stand in awe of His great majesty. I cannot imagine going through life without Him out in front leading the way through these deep waters.

Still keeping’ the faith,

Regis

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Comments

16 Comments

Mao Fuimaono
By
Regis, your great attitude through it all is nothing short of amazing as well as encouraging to us in the household of faith. You don't know what a great blessing you & Karen are to me. It's apparent that you have a host of brothers & sisters in the Lord who love & cherish you and your family. We all know how every battle & every struggle will be ultimately won (Rom 8:28). Love you guys, always!
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Ken Weiner
By Kenny
I can not wait until I can visit you guys in a few months. So glad things are moving along. I miss you all Prayers and thoughts daily!
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Faye Curtis
By Faye Curtis
Regis, that is so great that you and your family see the blessing given to you by the Lord. So many folks don't see what the Lord Jesus Christ gives to each and everyone every day. AS a farm wife I see those blessing and thank God for little thinks, but you have big things. I will keep praying for your family and Tyler and Karen. Have a Merry Christmas and Happy New Year.
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Sarah Nixdorf
By Sarah Nixdorf
Not under but around it. Love it ppl have been asking what I want or need for Christmas I have the chance to do daily life activity, I have an increase in trigolytes/ thyroid med leaving me more energized and talkative. I have a wonderful medical team. The chance to celebrate His Coming. What more do I need.
Now onto what I really want: A chance to see my GMA/GPA just once more, one more time.
- one more sunset maybe I all be satisfied. from One More Day by Diamond Rio
Have a Happy, blessed Hannukah.
Www.caringbridge.org/ visit/ sarahnixdorf
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Kris Dillenbeck
By Kris Dillenbeck
Sending warmest Christmas wishes to the Froats Family and hoping for many Blessings in the New Year. Continued daily thoughts and prayers are with all of you.
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Amy Harrell
By Amy Harrell
God Bless you all. What wonderful news and I continue to pray that all of your wishes come true. What a wonderful, and indeed, very blessed family you have. Merry Christmas Froat's family.
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Laura Bell
By Laura Bell
Merry Christmas to all of the Froats Family. Continued prayers for all of you, especially Karen and Tyler. Thank you so much for the update. Your entire family is such an inspiration to many, myself included. Blessings to all of you...today...and always.
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Terry Wells
By Terry Wells
Thank you for the update Regis. It is wonderful to hear that everyone is doing well! I continue to pray for you beautiful family! Have a wonderful Christmas!
Love and Peace,
Terry Wells
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cindi falzon
By Your sis, Cindi
oh yes, regis. oh yes, oh yes. our God is a GREAT GOD!!!!!
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Beverly Olson
By Beverly Olson, Cuyahoga Falls, OH
Great update, Regis! It's wonderful that Tyler is progressing, and I'm praying that he will soon be out and about soon. I'm also praying that dear Karen will be approved for the deep brain implant and that it will be done well before Chelsea and Micah's wedding. How wonderful that they are closing on a home! I know you must be so proud of Josh. He and Tyler are wonderful young men...But just look at their dad and mom. :)
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