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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Story

Latest Journal Update


Ty has been doing well since he’s been home from the hospital the week of the wedding.  He, Hannah, his lady friend, and Clark our good friend, performed for an hour (Played and sang songs) at Medina Relay for Life a week ago.  Tomorrow is a big day.  He’ll be at The Cleveland Clinic from 7am until about 4.  He has a whole series of tests and a bronchoscopy for the day.

We had lunch with the newlyweds yesterday.  They had a wonderful time.  I’ll leave you with this: Chelsea said they were checking out at Target and asked the cashier how he was doing and he said “livin’ the dream.”  To which she replied “We are too!”

Keepin’ the faith and livin’ the dream,

22 people hearted this



Ramona Anderson
By Ramona Anderson
Praying for a great day, and great news!
May God bless you now and always!
C.O.L.E Prayer Team
Tiffinee Swanson
By Tiffinee Swanson
Praying for a good day, with good results! God bless.
Tiffinee Swanson
C.O.L.E.’s Prayer Team
cindi falzon
By Your sis, Cindi
That is so wonderful! Praise God for ALL He has done!!!
Beverly Olson
By Beverly Olson
I'm so happy for Chelsea and Micah! And it's wonderful to hear that Tyler has been doing well, and doing some of the things he enjoys so much. I'll be praying that those tests and bronchoscopy yield only great results!