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Tyler’s Story

After being diagnosed a 3rd time with leukemia, a bone marrow transplant  in March 2010 and a double lung transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease and was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands.  Tyler received new lungs on November 16, 2014.....read the journal for further details

Latest Journal Update

Prayers needed for a friend...

Please pray for Lynn, our new friend here, who needs a miracle right now as the doctors decide if they go ahead with a heart and lung transplant after she had a stroke. May God's mighty hand be with the doctors and her family.


Karen
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16 people hearted this

Comments

6 Comments

Debbie Barto
By Debbie and Dave Barto
Praying for Lynn and her family <><
Sarah Nixdorf
By Sarah Nixdorf
Thinking of your friend and medical team right now. Sending smiles.
Www.caringbridge.org/ visit/ sarahnixdorf
Melanie Kettner-Borough
By Melanie Kettner-Borough
Yes! May God break through on Lynn's behalf. Xx
Julie Mincenberg
By julie mincenberg
a friend in need is a friend indeed. cliche' but true. my heart and my prayers go out to Lynn and her family and the medical professionals assigned to care for her. may the Great Physician lay His healing hands upon her and give her family comfort and peace in this difficult time of decision.
Edie Chaffee
By
Praise the Lord Tyler is breathing on his own! What an awesome God we serve! Thank you Froats family for sharing your testimony boldly & letting your light shine bright! It is a reminder to us all to do the same regardless of our circumstances.
Lifting you all up in our prayers!
SHARON WILLIAMS
By The Williams' family
oh praying for your friend! and praying hard!