Tyler Blick's Journal
Written Sep 9, 2013 12:05pmHi
Happy to say that we are at home. This weekend didn't go exactly as we had planned......but we are happy to say that Tyler is looking and feeling good. His doctors are not exactly sure what caused Tyler to spike such a high fever, perhaps the start of a central port line infection??? reaction to his chemotherapy medication?? or potential he was starting to catch something and the chemotherapy medication just caused it to fire up quickly???? Tyler's fever went from 101.8 to near 104 in about the 30-45 min it took us to get from my parents house to the ER and for us to be whisked past a full ER waiting room (cancer perk....) to be triaged. The ER quickly gave Tyler a big dose of Motrin, had to give him his 2nd port access of the day (not fun), ran blood work, infused 1/2 liter of fluids in him at a rapid rate and started him on IV antibiotics immediately. We were then off to our new room on the oncology floor and his fever was starting to drop back to the normal range. Still being pumped full of lots of good IV fluids and IV antibiotics, that night almost the opposite reaction occurred in regards to his fever. His temp now decided to drop to 96.0 degrees and his pulse dropped to 60 which kept ringing off the monitor bells. Made for a near sleepless night for me but by Saturday morning his temp was returning back to the 97 range and pulse was back to normal range again to. By Saturday afternoon it seemed like Tyler was feeling more back to his old-self again. It was decided to stop his IV antibiotics (not fluids) and see how he did for the rest of the day/night. All looked good, his counts were good and we were able to go home Sunday.
This roller coaster we have been on I guess just doesn't want to stop until it is ready to. Kind of like the Manta ride at Sea World the kids made me take them on for Kira's birthday last week. Have to say I screamed the entire ride and after having got off it, it took me about an hour after to not feel a little woozy.
Tyler's last day of at home chemotherapy medication is on Sept 17th. Hard to believe its been 3+ years of treatment and that soon he will be done with chemotherapy. Dr. Anderson will continue to see Tyler for blood work and Dr. visits every month at the hospital until he is 11 (he is 8 now) and then will "give us a break" he said and see us every other month with lab work and Dr visits until he hits age 18. After 18 Tyler will need to be followed by a regular adult hospital monitoring for late term effects to other organs and potential other types of cancers that would be a result of the toxic drugs that were used to to cure his ALL. Little did we know how much Dr. Anderson would become a part of our family when we first met him back in July 2010 and we are so thankful for his humor, patience and dedication.
Almost to the finish... But, not quite done
Written Sep 6, 2013 9:02pmHi guys,
It's been a while, which mostly means good news that everything is moving in the right direction. Today was meant to be a happy day which has ended up sideways.
It all started with a early start for the Blick family to pack up and head to the clinic for the last big dose of chemo in which we did successfully. After Tyler's appt., Jen took Kira to her appt. to get checked in which everything looked pretty dang good.
Meanwhile, Tyler was at gramma/pa's waiting for the girls to come back when he spiked a pretty serious fever that hit 103 which meant Jen would get to go to the hospital for a 3rd time in which now they are keeping them overnight to keep an eye on things.
Fingers crossed that it all settles as at the moment everything feels sideways.
That's all for know. Think positive for the little guy.
•Attached is a pic taken this morning with Dr. Anderson who has been our hero since July 2010. He is a great man and we are honored to have him in our corner.
Hope to have better news tomorrow.
Written Apr 17, 2013 11:44amJust a quick note to say that Tyler and I are home! I am happy to report that his bone marrow aspirate showed no blast cells and that it showed evidence of it wanting to repair. On Monday morning Tyler did some lab work and everyone was surprised by its results. It was such an improvement from Fridays that they even retested him to make sure it was a true result. His bone marrow appears to beginning its recovery and we were sent home until Friday. His at home chemotherapy is still on hold (nearing 3 weeks now....) and we go back to the hospital on Friday to see Dr. Anderson, do more lab work and potentially restart both the chemotherapy they give him in the hospital and also the chemotherapy medicines I give him at home on a nightly basis (1/2 dose strength though). We will be going back to the hospital 2x / week for a period of time to monitor how he does going back on his medicines and just take it from there. Nice to have the family back together and was great to get Tyler and Kira back together again, they really missed each other!!!