Tyler Blick's Journal
Written Jan 20, 2014 8:41pmBeen a few months now and I thought I would do a quick check in and check out.....
Tyler has been off chemo since mid-September and his body is slowly adjusting. Should take around a year for everything to "be back to normal" whatever that is???? I am noticing his hair is getting thicker and his appetite is increasing a tad, depending on if he likes what I am serving him (or not...). He is currently going through all the fun "coming off treatment" testing the hospital requires to establish baselines in various areas in which to monitor him with (heart/liver/brain function etc....). As expected there are certain chemo drugs that he has taken that has created a few other issues which will now require other sorts of rehab type therapy, not ideal but its not entirely unexpected. We will still also be going to the hospital 1x per month for his regular lab/oncology appointments for the next many years and then every other month after that.
Moving forward in 2014 its our goal to get "us" outside as much as possible. There is a ban on tv/ipads/computers for the kids until after dinner is over which was a little interesting at first but is working out well now.
SOCCER!!! This past month the AYSO Winter Soccer season started up and Tyler and Kira are playing on teams on Saturdays. They both seem to really enjoy it and it is such a nice way to spend Saturday cheering them on. Tyler's team is very skillful and has so far won every game by 8 goals or so..... This is Tyler's first time playing soccer and his coach Manuel cheers and encourages Tyler to get into scoring position all game long to hopefully have him score his first goal. Has been close a few times but he is sure trying:)
CUB SCOUTS!!! Tyler had been asking to join Cub Scouts since Kindergarten (but we couldn't until now!). We found a great Pack with Saddleback Church that has about 50 boys in it. Tyler has been able to shoot a bow/arrow, hammer nails, learn about tools, first aid and meet some new friends. He really enjoys the meetings and it gives him a chance to do some fun "guy types of activities" with daddy (who had also been a cub scout!!!). They are both looking forward to the upcoming pinewood derby and bike rodeo:)
BASEBALL/SOFTBALL!!! As soon as soccer ends baseball/softball season will begin. This will be Tyler's 3rd year (he missed about 90% of last year though) and will play Single A baseball and Kira's 1st year trying out softball. The kids are looking forward to spending more time with their friends and I am looking forward to hanging out with all our baseball families friends several nights a week. Funny when I went to put on Tyler's cleats a few days before tryouts I quickly found out he grew 2 sizes in 1 year:)
STEVE and MYSELF.... Steve's crazy travel/work season is just about to launch off and will be almost non-stop until the fall. In between adventures he plans on riding his bike as much as possible and cheering the kids on in their activities. Myself I am looking forward getting the winter germ season over with and getting back to Yoga or Ballet or heck maybe even both!!!
We want to thank you all for your support over the past 3 1/2 years and look forward to seeing everyone outside:)
Written Sep 9, 2013 12:05pmHi
Happy to say that we are at home. This weekend didn't go exactly as we had planned......but we are happy to say that Tyler is looking and feeling good. His doctors are not exactly sure what caused Tyler to spike such a high fever, perhaps the start of a central port line infection??? reaction to his chemotherapy medication?? or potential he was starting to catch something and the chemotherapy medication just caused it to fire up quickly???? Tyler's fever went from 101.8 to near 104 in about the 30-45 min it took us to get from my parents house to the ER and for us to be whisked past a full ER waiting room (cancer perk....) to be triaged. The ER quickly gave Tyler a big dose of Motrin, had to give him his 2nd port access of the day (not fun), ran blood work, infused 1/2 liter of fluids in him at a rapid rate and started him on IV antibiotics immediately. We were then off to our new room on the oncology floor and his fever was starting to drop back to the normal range. Still being pumped full of lots of good IV fluids and IV antibiotics, that night almost the opposite reaction occurred in regards to his fever. His temp now decided to drop to 96.0 degrees and his pulse dropped to 60 which kept ringing off the monitor bells. Made for a near sleepless night for me but by Saturday morning his temp was returning back to the 97 range and pulse was back to normal range again to. By Saturday afternoon it seemed like Tyler was feeling more back to his old-self again. It was decided to stop his IV antibiotics (not fluids) and see how he did for the rest of the day/night. All looked good, his counts were good and we were able to go home Sunday.
This roller coaster we have been on I guess just doesn't want to stop until it is ready to. Kind of like the Manta ride at Sea World the kids made me take them on for Kira's birthday last week. Have to say I screamed the entire ride and after having got off it, it took me about an hour after to not feel a little woozy.
Tyler's last day of at home chemotherapy medication is on Sept 17th. Hard to believe its been 3+ years of treatment and that soon he will be done with chemotherapy. Dr. Anderson will continue to see Tyler for blood work and Dr. visits every month at the hospital until he is 11 (he is 8 now) and then will "give us a break" he said and see us every other month with lab work and Dr visits until he hits age 18. After 18 Tyler will need to be followed by a regular adult hospital monitoring for late term effects to other organs and potential other types of cancers that would be a result of the toxic drugs that were used to to cure his ALL. Little did we know how much Dr. Anderson would become a part of our family when we first met him back in July 2010 and we are so thankful for his humor, patience and dedication.
Almost to the finish... But, not quite done
Written Sep 6, 2013 9:02pmHi guys,
It's been a while, which mostly means good news that everything is moving in the right direction. Today was meant to be a happy day which has ended up sideways.
It all started with a early start for the Blick family to pack up and head to the clinic for the last big dose of chemo in which we did successfully. After Tyler's appt., Jen took Kira to her appt. to get checked in which everything looked pretty dang good.
Meanwhile, Tyler was at gramma/pa's waiting for the girls to come back when he spiked a pretty serious fever that hit 103 which meant Jen would get to go to the hospital for a 3rd time in which now they are keeping them overnight to keep an eye on things.
Fingers crossed that it all settles as at the moment everything feels sideways.
That's all for know. Think positive for the little guy.
•Attached is a pic taken this morning with Dr. Anderson who has been our hero since July 2010. He is a great man and we are honored to have him in our corner.
Hope to have better news tomorrow.