The HU3F8 infusion went great. There was hardly any pain and no side effects! Answered prayers. I was very relieved this wasn't as painful as his last 3F8 antibodies. That
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After months and months of waiting, the time has finally come. Tomorrow morning, Tristin will get his first dose of the HU3F8 (humanized 3F8 antibodies). He will be the 2nd
Good news. His MRI of the liver was stable compared to the last one from about 6 months ago. The spots are unchanged. So, they're still there but they hav
We're leaving for New York in the morning. Sorry for the delay but I was waiting to hear the final results from our scans before I posted. All of the scans looked stable ex
Tristin and Angel left for New York today. He'll have scans the rest of the week: MIBG, CT, ECHO, EKG, bone marrows, and an MRI. After months of waiting, we finally heard abou
I know it's been a month since I updated. A lot has happened, but thankfully all good things. First of all, Tristin is feeling very good. His hair is growing back (blonde)
We're back from New York once again. Chemo went well and it was great seeing our extended family at the RMHouse once again. Tristin's feeling good. His counts will be going
Tristin and I are back at the RMHouse in New York. He'll be getting chemo next week at Sloan. We're scheduled to leave next Sunday so hopeful all goes well and this will be
Sorry, I didn't realize it had been this long since I last updated! I guess I just needed some time away from the computer.
Everything is fine here. We've been home fo
Sloan called me this morning at 8:30 and wanted us to come in at 2:00 for our scan consults. First of all, they've never called this soon so I have been freaking out