Gotta say I'm super proud of my son this weekend. He finished the St. Jude's Nashville Half Marathon for the 2nd year in a row now. It was less than ideal conditions with h
I just wanted to give everyone a quick update....
We've had a wonderful time being at home these past several weeks. Tristin looks amazing and feels great. I'm so thankful we'
Tristin and I came back home from Michigan last Friday. Scans are STABLE!!! Answered prayers! Dr. Sholler said that we can stay on the DFMO since he's feeling really good. T
We've had a really nice past couple of weeks. Tristin is feeling good and isn't complaining of anything. He even started playing tennis with his school team. I'm so thankfu
Well, we finally made it home Sunday around 3:00 in the afternoon. We were suppose to have gotten in 10:30 Saturday night but after several delays in Charlotte, they cancel
Our meeting today with Dr. Sholler went much better than I had ever hoped for!! Over a year ago, I had heard about a Phase 1 trial they were doing called the Genomics trial
We can breathe a little easier tonight. Dr. Sholler's office from Michigan called this evening and wants us there next Monday. We'll do scans Tuesday and Wed and then have
Tristin went to New York a week ago for scans with his Aunt Angel and grandmother. We had high hopes that everything was ok and we could continue with our Irreno/Temodar tr
I hope everyone had a wonderful Christmas! Sorry for the lack of updates, but we've been so busy with work and the family coffee shop at the mall with the holiday season. We
Sorry it has taken this long to update scan results. I just found out yesterday that the MIBG scan showed no new spots and some were even less intense than last time! Maybe