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Mi historia

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our Tristan. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

Tristan is Battling Langerhans Cell Histiocytosis. He has a multi-system case with risk. It means the disease is in several organs including a risk organ. In Tristans case the risk organ is the C-spine.

We first noticed a lump on Tristans head April 2009 when he was about 8 months old ... and since then a battery of tests have been performed. He took a turn for shortly after the lump was discovered became very ill on Fathers day 2009 just a few weeks later. We learned the disease had spread extensively throughout his body and bones. Thankfully, doctors were able to prove the very rare Langerhans Diagnosis. We really thought it was a cyst or just a bump but would soon find out it was so much more.

He had his first chemo treatment (6-29-09), and while it was difficult for such a little guy, overall it went well. Now we are just waiting to see if it will work. The next six weeks are critical.  We also give a variety of medicine at home we hope will enhance the affect and help him to feel better. The pain meds are keeping him a little more comfortable.

We believe he is our angel and as difficult as this is....we will fight for him. 

Shoreline Credit Union
C\O Pamela James\Tristan Reif
3131 Mishicot Road
Two Rivers, WI
(920) 793-4541

The cause of LCH is unknown.  It may be triggered by an unusual reaction of the immune system from something commonly found in the environment. 

Over the years, cancer treatments have been used in patients with histiocytosis. Consequently, hematologists and oncologists, who treat cancer, also treat children with Langerhans cell histiocytosis.  However, the disease is not cancer. 

The vast majority of patients will survive the disease.  Some may develop life-long chronic problems, while others remain symptom free.  In some cases the disease is fatal.  Usually these are infants who have a rapid downhill course and do not respond to any known treatment. 


KRISTIN REIF posted a new journal entry, "A New Chapter".

As I look back at the entries over the last 3 years, it's hard to believe that we are where we are today.I have good news on top of good news.  First of all, Tristan's ... Lea más

Brianna Ehlinger signed Tristan's Guestbook.

Wonderful wonderful news!!! Just what we pray for for little Tristan! Breath ! Your gratitude and love shine in all you do, Kristen, and all around you, family, friends, ... Lea más

Sheri Drummond signed Tristan's Guestbook.

so happy to hear your on the road to hopefully a full recovery. You and your children deserve only the best after what you have been through. luv and miss u Hammy....Sher Bear Lea más

Kathy Schmocker signed Tristan's Guestbook.

I've been praying for Tristan & your family for years.  It was truly wonderful to see you all at church.  He looks great! Lea más

Janet signed Tristan's Guestbook.

Awesome news! I'm so happy for you guys! What a long road yo travelled! and you were/ are such a trooper! Time to breathe! Enjoy normalcy :) Lea más

Tami signed Tristan's Guestbook.

Wonderful, wonderful news!!!!  So extremely happy for ALL of you!!!  I knew Tristan could beat this and come out on top...the constant smile shows it ... Lea más

KRISTIN REIF posted a new journal entry, "Good news!!".

Ok, yes for real this time!! The MRI is normal and Tristan remains in remission. We are so so so happy! The support and prayers from all of you is the reason why. Bless ... Lea más

Tami Francisco signed Tristan's Guestbook.

Oh, Kristin!  What a terrible emotional roller coaster!  Will still be saying all our prayers for Tristan!  If you need an escape, please call on me!  Love and Hugs! Lea más

KRISTIN REIF posted a new journal entry, "Waiting Again".

OK so if this confuses you it is because at first.. meaning through last night... we thought we were in the clear.    That is no longer the case.I received a call this ... Lea más

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