Tristan Reif's Journal
A New Chapter
Written Aug 6, 2013 7:06pmAs I look back at the entries over the last 3 years, it's hard to believe that we are where we are today.
I have good news on top of good news. First of all, Tristan's scans today went amazingly well. Tristan's areas where lesions remain are either Stable or healing. Several lymph nodes in chest that are being watched closely, have gotten somewhat smaller. It's what I pray to hear every time we are faced with these checks. Secondly, Tristan for the forseeable future is done with getting scanned every few months. Yes DONE. The only way he will need CT, MRI or Xray is in the event of symptoms. The disease protocol has changed, exposing him to much-- much less radiation. It's so wonderful I don't even have the words to describe this feeling.
The stress of these visits on our family is enormous and eliminating them will certainly be a very welcome change. he will still be checked often with bloodwork and physicals, but that is like nothing after what he has endured since he was 8 months old.
Our family is so grateful to every single person reading this, as well as especially grateful to the staff at St. Vincent Hospital Pediatric Oncology. It takes more than just a staff of medical professionals to do what they do. I have no doubt that each of these people are angels on this planet. This applies especially to the Child Life Department at St. Vincent Hospital. You have made this road so much easier to travel. We will NEVER EVER be able to express our gratitude.
I know that deep down everything happens for a reason and God has a plan. I know it. I pray soon he will shed light on the reason for all this suffering, not ony for Tristan but for Kaedan and Ale as well. When one child gets sick, it becomes a family disease and everyone has a role. the sacrifices these children have made are beyond what I could have ever imagined, and I pray it builds their character, and that they can breathe a little easier now. And be children. Just kids. Not kids who visit the hospital as part of a family routine and worry that the next time, will be the time we face a Relapse. The healing can now begin. And God know, they have earned this. Thousands of times over. I am so proud of them....
All our love and sincere gratitude, Kristin, Kaedan, Alexandra and Tristan
Written Mar 17, 2013 2:38pmOk, yes for real this time!! The MRI is normal and Tristan remains in remission. We are so so so happy! The support and prayers from all of you is the reason why. Bless you all! I will post details when I get them!!
Love Kristin, Kaedan, Alex and Tristan
Written Mar 6, 2013 8:35pm
OK so if this confuses you it is because at first.. meaning through last night... we thought we were in the clear. That is no longer the case.
I received a call this morning that the Oncology team here in Green Bay wants an MRI on Tristan's kidney. The radiologists reviewing scans and ultrasound images also agree an MRI is in order. Earlier this week.....Oncology at Children's hospital decided the "area" on the kidney was ikely contrast dye.
Bottom line..... we are not sure what it is, but it is likely something and NOT just contrast dye.
There are a few possibilites of what it could be but we won't speculate till we get a definitive answer. The MRI is not scheduled until the 15th. This is going to be one heck of a long week. Hurry up and wait.....again. However, that being said. I trust the Oncology team at St. Vincent Hospital implicitly. I believe their concerns are absolutely valid and there is cause for further exploration. I pray the news is not the worst....and something entirely fixable. I'm vey tired and emotionally drained. For now we will hold tight and pray for the best. I'm to the point that I will accept whatever comes my direction.
The support we continue to get is stunning. I received this news at the start of my workday this morning. My very compassionate boss Kevin Schmeling asked me if I needed to leave or take time to compose myself. I believe his quote was "whatever you need". I was able to continue the shift. The reason? Kevin and the team I work with are an amazing group of people. The support they offer with just their presence is hard to describe. Thanks to my extended Family at Family Services Residential for being there for me through this....you are all angels and I'm proud to know you.
The same goes for all our dear friends at St. John the Baptist School and Church in Howard. We are so very blessed. I only hope I can repay a portion of the favors someday.
Many blessings tonight! Love, Kristin