My Story

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Journal

Monday, June 15, 2009 12:39 PM, CDT


SCHOOL IS OUT!  I don’t think I have ever been so happy to have the kids home for the summer!  I am sure I will change my tune soon enough but right now it is so nice not having the stress of school.  Especially from Tristan.  I don’t know where to start with him…medical, emotional, or academic…..this is what happens when I

wait too long to update!

Let’s start w/ medical.  Tristan’s issues with his blood sugar turned out to be related to his Addison’s and needing more cortef than he was getting.  His endocrinologist recommended giving him a third dose at lunch time and since then the blood sugar issues have subsided.  The only problem is getting used to giving him that third dose.  It is hard after so many years of it only being twice a day.  Other than that he has been doing well health wise.

Emotionally  and academically is up for debate.  He really struggled this year with understanding a lot of what is going on in school.  Not so much on the side of what he is learning but more along the lines of the social aspects of school.  He doesn’t understand a lot of what he hears being said by his peers so he repeats it not realizing what he is saying.  That has been difficult.  He also sees the other kids do things that get laughs and then does the same thing.  It doesn’t matter if it is inappropriate.  He sees the kids laughing and thinks it must be a good thing.  He doesn’t understand the line between having a student/teacher relationship and being friends with his teachers so he pushes the envelope with that as well.  The tricky part is that he has to learn what he can and can’t do BUT how can we punish him for something he doesn’t understand.  We are struggling to find that answer.  He is in counseling privately and really loves his therapist.  He seems to enjoy going.  She is working with us to come up with different ideas so work this out.  She did tell me that he needs more emotional support in the way of an aide in school.  She feels that although he is 12 yrs old, he is socially and maturity wise more along the lines of 9 yrs old so we need to remember that with our expectations.  The kid who has been giving him a hard time all year also continued to be an issue almost to the last day.  Unfortunately, exactly what I was afraid would happen did and the kid got physical and punched T a few days before school was let out.  I am hoping and praying that the school has now decided to take me seriously and is doing everything I’ve asked in preparation for next year.  I want Tristan to go to school on the first day of 7th grade KNOWING he has nothing to worry about in regards to this kid.  His teacher has already contacted me and wants to meet before school starts so we can have everything in place for him for day one not only in regards to this issue but other accommodations that are being made and hopefully to fill her in whatever progress T makes this summer.  We are in the process of weaning Tristan off the Zoloft after not seeing any kind of difference on it and after experiencing some negative side effects and will start a new med soon.  In addition we have started back on the fish oil since we have seen such great things in the past when he was on it and we have started other vitamins as well.  Keep your fingers crossed.

On the flip side, T hasn’t wanted to play in any of his baseball games all year.  He wants to be there supporting his team but doesn’t want to play.  He ended up asking to be put in the other night and they started him at second base!  The very first hit was a line drive and T caught it effortlessly.  He then went on to hit both times he got up to bat.  The second hit resulted in an out BUT the first one he got on base and brought in a run!

Noah is doing well.  He passed third grade with little effort.  We’re a little nervous about him adjusting to fourth grade.  His teacher this year was returning and made her last year a very easy one so he had little work and almost no homework all year.  I’m sure that won’t be the case next year.  Noah is doing great at baseball as usual.  He loves playing and is going to miss it when the season ends.  He learned a hard lesson about a month or so ago when his cat, Mojo, was hit by a car in front of the house.  Unfortunately Noah was the one who found her in the road and was pretty devastated by it.  This weekend we came close to losing Dover too.  He went for a ride with Bryan and managed to roll the electric window down himself and flew out the window as Bryan went around a bend at about 30 MPH.  He is pretty banged up and sore but he is very lucky.  He’s got some road rash in a couple of areas and two nasty cuts, one is exposing his bone we think but too big to be stitched up.  It never ends here!

My trip to Vegas was awesome.  For those of you that don’t know….the girls and I were having lunch one day and who walked in but David Cook the winner of American Idol last year.  So we got to meet him, talk a little, and get our picture taken with him.  He happened to be giving us a private concert that night too thanks to Arbonne which turned out to be great!  I’d definitely see him again.  We had a great time as usual and learned a lot too.

I think that’s it for now.  It is quite enough!  I’m sure I probably won’t be updating this again until the end of the summer so have a great summer everyone!


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E-MAIL AUTHOR

bufalinak@verizon.net

HOSPITAL INFORMATION

Hershey Medical Center
PA