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Tristan’s Story

Tristan James Jannati was born on Sept. 20 to Morgan Hansen and Cameron Jannati.  He was 16.1 inches long and weighed 3 lb. 4 oz. 

Today Tristan is 1 week old.  He looks great - seems strong. But on Sunday the doctors told us he has Periventricular leukomalacia (PVL).   The condition involves the loss of small areas of brain tissue. The damage creates "holes" in the brain.  This condition leads to possible delay in some developmental things - like motor functions.

 



"But those who trust in the LORD will find new strength. They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint." Isaiah 40:31

Momma  Morgan had to go to the hospital when she was 29 1/2 weeks along. On that day she felt pain and upon going to the hospital found that she was already dilated 4 cm. She was instantly admitted and for six days Morgan and Cameron had to fill their time in the labor room of Plano Medical Center with movies and games and drop in visitors.  She must have been going stir crazy but she was a trooper - even though the doctor  said that she may have to stay in for up to 6 weeks. 

But Tristan (Peanut) had other ideas.  6 days later, Morgan felt even stronger pains.  She thought she may be in labor - but it was too early. Cameron went on to class at DBU, wondering if this was the day.  It wasn't long before doctors told her she was dilated up to 6 cm and that she was indeed in labor. Cameron raced back.  Tristan James was born at 5:37 p.m. 

Morgan had just gotten to move into a "normal room" but had to go back to the labor room.  The day after Tristan was born, the hospital needed her normal room so Cam and Morgan got to stay in  a suite the last night they were there.  They also got a meal of steak and lobster. 

Tristan looked great - very strong.  He kicked and punched a lot. He grabbed peoples fingers.  He tracked with his eyes.  All was great - except he was a preemie in a NICU unit.  He did have to wear a C pap off and on for the first week because he had periods of apnea.  

In his first weekend we had lots of bad news. First we heard he had an infection - and he seemed so listless. Then we heard the infection was meningitis!! That worried us to death.  Then we heard he had HOLES IN HIS BRAIN!  At that point I was sure we would lose him.  This was terrible news and we didn't understand a thing.  The doctors had given him a sonogram.  Then they gave him an MRI as well. We had a very difficult conference where they explained what PVL is and what the implications were.  They were saying that the PVL could lead to Cerebral Palsy and other complications. 

Thats what medicine says but we know we have a power stronger than that on our side.  We don't know what kinds of challenges Tristan may or may not face in the future.  But we know God and we know he holds our little wonder in his hands.  According to Grandfather James (Papi) - the only things the kids need to do is love Tristan and take care of him and give the rest to God.

"...With God, all things are possible." Matthew 19:26

 "I can do all things through God, who gives me strength." Philippians 4:13.

Latest Journal Update

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More good news today.  Cameron and Morgan took Tristan to the eye doctor for an eye test.  Good news - they confirmed that he can see! 


By accident I ran across this wonderful verse that says it so well:


 Mat 13:16
But blessed are your eyes, for they see; and your ears, for they hear!