Trey Erwin's Journal
Written Jul 5, 2012 7:08amWe covet yours prayers today. We have been told by Trey's labs that everything is shutting down. We think he will go in the next 24 hours. He has rested comfy all night long! Praise the Lord!
Relief From Pain
Written Jul 4, 2012 7:00pmWe ask for your prayers for Trey at this time as he battles extreme pain. We also know that July 31 is looking unrealistic as things are progressing very fast. At this time, they are scheduling to remove the fluid tomorrow. Please pray for guidance for the doctors and for a peaceful night for Trey. His nausea and pain are winning. He has started to talk about some weird things.
As my sweet precious Collin said - it looks like the cancer has gotten ahead of us. Never underestimate the mind of a 12 year old.
How Do They Do It?
Written Jul 3, 2012 9:42pmI have news to share that I thought would be coming to you much later than today. We met with the doctors yesterday. They read the scan from Florida and confirmed the cancer has spread to the areas mentioned in the report. As of now, our goal, Trey's goal, and the goal of all of the doctors is for Trey to make it to his birthday - Trey Erwin Day - July 31, when he will turn 16.
Medically, we have many things we are dealing with that have to be handled on an immediate basis. The first being the retention of his fluid. Even though they have started him on lasix and other meds, it has not started to work fully (as it takes time to kick in). During this time, he gains more weight and fluid. We are hoping we will have another solution for this by the end of the week. Trust me, I am all over this because of his pain.
Dr. Tauer came to see us today and helped us make many decisions. Trey's first goal is to get home which Dr. Tauer and Dr. Sara feel is very important. As was discussed today, if at any time we feel Trey needs to come back to St. Jude, the doors are wide open. Being at home will make him feel better and he'll have a chance to get his room organized.
We will be coming home with a hospital bed. We don't think Trey will be comfy in his bed like HE thinks he will. So as Dr. Tauer suggested, we are going to clean out the dining room and he can just bed hop and get to any place that it is comfy for him. Our first thought was that our two labs are going to love hopping in the hospital bed with Trey!
So many have said that they don't know how we do it and call us an inspiration. They have called Trey an inspiration. As I walked down the hall tonight with Dr. Tauer's arm around my shoulder, he told me what a great job we were doing and what a fine son we had raised. I take that as a high compliment from a Christian physician who cares so deeply for his patients. We also have such a special relationship with Dr. Sara Federico. There have been days that I have not known what I would have done without her. I can't begin to tell you the special measures she goes to for her patients. She loves Trey so. These are two of the many people that have helped us down this difficult road. What has made it so much easier has been not only their caring spirits but the evidence of their own faith. God KNEW, HE KNEW the doctors Trey would need. HE KNEW the support Jay and I would need in a crisis of not understanding the full picture and gave us men and women that trust in Him.
We have always, always trusted in God to guide our every step. He has been faithful in leading us down each path and opening every door for us. God knows our hurts and our fears and yes, we do hurt and I'd be lying if I said we were not afraid. We are His creatures and that's why He tells us in His word to lean on Him. Jay and I have shed tears and there will be more, MANY more.
This is when we ask for your prayers for all of us. Pray for our precious Collin. His birthday is July 20 and he will turn 13. Trey loves him very much and this will be a hard thing for Collin to experience in the coming month, years.
I have so many more people to thank and if I could name you one by one, I would. Jay and I have a close set of friends that have come to our side and literally been our hands and feet. We love you.
THIS is how we do it - I opened just now my phone to search God's word to leave you with scripture and THIS is the verse of the day.
"I believe that the present suffering is nothing compared to the coming glory that is going to be revealed to us." Romans 8:18