Trey Erwin's Journal
One more thing - medical
Written Feb 28, 2012 8:13pmThe most frustrating thing for Trey is that he cannot eat. Because of tests, he is on a liquid diet. He's not happy about that. Then when he can eat it is low fat because of his panaceas. Believe me, we are dealing with one hungry, upset teenage boy.
His lypace (sp) counts for his pancreas should be around 100. Yesterday they were at 4,000. Today he was at 2,000. His pancreas is very aggravated. His counts will fluctuate.
They took 12 viles of blood today and he about freaked thinking he would not have any blood left. I was beginning to think the same thing!
We are going to buy stock in Jello! Call Bill Cosby!!!!
Written Feb 28, 2012 7:03pmIt's been a long day. Trey was transported by ambulance to St. Jude around 11:30. We thought we would be having an MRI today, but that did not happen.
We have seen so many doctors! I can't begin to count! Oncologists, fellows, surgeons, etc. Dr. Sara Federico is Trey's main oncologist. We love her.
We have been scheduled for an MRI at 10 am tomorrow morning. He is also scheduled for a PET scan on Friday and a chest X-ray. They are trying to move that up earlier in the week. They have also said that he will have a biopsy this week, but only after they know which area to biopsy - the pancreas or liver. We have learned things change 10 times before anything happens.
We learned today that Trey's case is very rare. They have not seen a pancreatic case since 1996. Please pray for wisdom!!! We know our God can do anything an rid him of this and we are also praying that the PET scan will not show any additional hot spots of cancer in his body.
We were overwhelmed by the prayer vigil in our yard last night! Keep up the Pray for Trey!!! Our God hears! Ask and you shall receive. Where two or more are gathered together, He is there also! The prayers for our family and messages have been something I would have never imagined. Please know that we deeply appreciate everything you are doing for our family. Just give us time and we will need you!
A special thank you to Shelby Jones for staying at our house and taking care of our babies! Thanks to Keith and Bretta for checking Collin out today to come be with his brother. That's one thing that has amazed me-Trey wanting his brother by his side. I'm told the college ministry is praying for Trey tonight. Awesome!!! And to the Collierville football team for coming to see their teammate - unforgettable!
Trey keeps saying - I'm gonna be fine. Whether I get sick and have to take medicine, I'll sleep and be fine. If I'm in pain, I'll take medicine and I'll be fine. If they don't find anything, I'll be fine. If I don't make it, I'll even better. I told him I now understand what he means when he says, "I'll be fine Mom". What a son we have been blessed with.
They have increased Trey's pain medicine, so we all slept some last night and he does have nausea and some anxiety. We hope to sleep well tonight with our own room to sleep in. St. Jude is awesome!
Will I wake up?
Written Feb 27, 2012 9:29pm
Several weeks ago Trey suffered from what we thought was strep. He was given antibiotics, but they did not work. I took him back to the dr. because his stomach was hurting and the dr. took him off the antibiotic and tested him for mono and the flu, both being negative. The dr. said he just had a bad virus and it would pass. He continued to complain about his stomach and during this time lost approximately 10 pounds.
Saturday, February 25, Trey contacted me from a church event and told me he did not feel good and that his urine was a TN orange color. We met at the church and Jay checked him out. The pain he was experiencing was not around his stomach, but around his liver. We decided to take him to Methodist Germantown. The dr. there ran a CT scan and bloodwork and Trey tested positive for mono with high levels of bilirubin enzymes, liver enzymes, and pancreas enzymes. The dr. sent him home with a diagnosis of mono and told him to take advil and rest. He said to check in with his pediatrician on Monday.
Sunday, February 26, the pediatrician on call on Saturday called me. She told me that the CT scan had been reread by another dr. at LeBonheur and they saw a mass in his pancreas. She told me to pack a bag and head to LeBonheur and that he would be admitted for an MRI and possible biopsy.
We arrive at LeBonheur and are blessed to receive the most excellent of care in the ER. Our nurse, Angie, went to school with Jay, and another nurse, Melissa, is a friend of ours. How comforting for God to supply these people when you receive the most devastating news of your life. We did not know the true results of the CT scan until a resident of LeBonheur came to speak to us in the evening. She told us that Trey had a mass in his pancreas, a mass behind his bladder, several spots in his liver and a lesion on his hip. Yes, a mother and father's worst nightmare was just handed down.
We agreed that the dr. should tell Trey the entire truth. After she told Trey, and our family time together, we were told that we would be sent to a room and then be sent to St. Jude on Monday for an MRI. The drs. at LeBonheur and St. Jude would need to consult to decide the direction of treatment, tests, and/or surgery.
It was a wait to hear game. On Monday, February 27, the St. Jude dr (Dr. David Goshrun) came to see us to explain exactly what was seen on the CT. THERE WAS NO MASS on the bladder! Answered prayer #1! There as nothing significant about the hip lesion! Answered prayer #2! There is a mass 1 1/2 by 1 1/2 at the head of his pancreas and there are 4 to 5 spots in his liver. Because of the speading to the liver, they are confident it is maligant cancer.
On Tuesday, February 28, we will be transported to St. Jude to begin the journey of what we are claiming to get the ball rolling and give God the glory for his healing. He will have an MRI and we will get the results on Tuesday afternoon. We know there will be bad days, but we know we serve a merciful God who is faithful to sustain us in our weakest moments.
Let me just tell you that Trey is stronger than all of us. He has the courage of a lion and a faith in the Lord that amazes everyone he meets. He is so blessed to have such loving friends. In the near future, look for his book in a store near you!
We thank you for your prayers and welcome any visitors. It does lift his spirits. We just ask that you contact us first.
"Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Phil. 4:6-7
All our love,
Jay, Lisa, Trey and Collin Erwin