Trevor Tredaway's Journal
Written Jan 3, 2014 11:57pmHello to everyone! I hope everyone had a great Christmas and is off to an even better 2014! I haven't updated in a very long time, but Trevor is doing wonderful. If you are friends with me on Facebook, then you know how well he is doing.
So, on January 4, 2008, our world was turned upside down when Trevor, then 2 years old, was diagnosed with a brain tumor. Yes, it's been 6 years!!!!!!! I have honestly lost count of the number of MRI's that he's had, but I know it's nearing a 100, if not over that number. He's had 2 brain surgeries; both of which we did not know if he would survive. Then there was the chance that he could suffer brain damage, nerve damage, paralysis, blindness, hearing loss and a long list of other things. Thankfully, he has no known deficits. Chemo....let me think a second. He's been on 9 different kinds of chemo over the last 6 years. Harsh, toxic chemo requiring 5 or 6 blood transfusions, blood pressure medication, close monitoring of his kidneys for proteins, reduced doses because his little body couldn't handle it, throwing up for 7 hours straight, pale skin, no appetite, missed school (52 days), mouth sores, low blood counts, neuropathy, potential hearing loss, horrible pain....and that's what I can remember him going through. So after ALL that, Trevor is now a full year without chemo, AND we are 2 weeks away from a very important MRI. This will be the 4th MRI without chemo. It's huge, and I feel in my heart that it will continue to be stable.
I know that Trevor's tumor is very unpredictable, and that it can decide to start growing at any time. I also know the longer that it remains stable, the better chance it has of staying stable. If you've never had a child diagnosed with a brain tumor, you can't possibly know the ups and downs, the highs and lows, the confusion, the fear, the feeling in your stomach that can't be described....followed by the hope, the joy, the blessings, the love, the faith and the belief that your son can win the battle he's fought almost his entire life. So for all of you that gripe about this or that, and think your life is so tough, try being grateful for what you have and where you are in life. There is nothing more frustrating to a mother of a son with a brain tumor and to a woman who has battled cancer herself, to see all of the negativity, ungratefulness and complaining that goes on in social media. I'm pretty sure that I live the most blessed life possible. I will update about Trevor's MRI.
Blessings to you all,
Written Sep 27, 2013 12:20pmHello to everyone! Trevor and I returned from Memphis last night after a pretty long week. His MRI came back stable!!! His next scan will be in January, and it will be of his brain and spine. We have hit the 9 month mark of no treatment, which is the longest amount of time he has been off chemo since he was diagnosed. We are thrilled with this news! His doctor was very happy but did remind me that low grade gliomas tend to have a mind of their own, and can become active and grow at any point in time. Trevor's tumor has been especially aggressive in his body, tending to grow within weeks of him stopping treatment. But, we will cross that bridge if we ever get there.
Trevor had a visit with an endocrinologist because there were some concerns that he wasn't growing the way be needed to. One of his thyroid levels is a little low, but its's not a huge concern right now. Since Trevor hasn't had radiation, and his growth has picked up (a lot), they are just going to monitor his levels every 6 months or so.
Trevor also had an eye doctor appointment, and his vision is still perfect.
So Trevor is more than 5 years, almost 6, past his diagnoses. His doctor is going to set him up with the After Care Clinic...I think that's the name. It's primarily for patients who are in complete remission. Trevor is not there, yet, but his doctor thinks that we can all benefit from this additional clinic. I really don't know what to expect, but we will have that appointment in January.
His next MRI will be when he's more than a year off chemo. I asked his doctor what the next step would be, assuming that the next scan is stable. Most of the time, patients go to scans every 6 months. His doctor said he would make that determination at that time. He said he's human, and if he has patients whose tumors progress that week, he's likely to schedule his next set of scans in 3 months.
We thank you all for your thoughts and prayers!
Blessings to you all,
Written Sep 19, 2013 5:17pmFor my non-Facebook friends, here is the link to the news story that they did on Trevor!