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Make Sure Trevor Is Not Alone This Holiday Season

Your contributions to Trevor's journal this year made sure that they never felt alone. Your tax-deductible donation in Trevor's honor will make sure that Caringbridge continues to bring hope and healing to those who need it most.

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Trevor’s Story

Welcome to our CaringBridge site. Since many people are asking, here is the fund information:

Trevor Tredaway Fund Citizens Federal Credit Union P.O.Box 51070 Midland , TX 79710

 

PayPal donations can be made to mtredaway@sbcglobal.net If you donate here, on caringbridge, the donation goes to run this website. Just an FYI.

 Trevor began having "episodes" in October 2007. They were very minimal and unconcerning at first. He would stop whatever he was doing, and tell me that his mouth hurt. Then, he would just stare off. This continued, very sporadically. I mentioned this to his pediatrician, and he suggested that Trevor might be having seizures. Trevor went through 3 EEG's so the neurologist could find seizure activity. So, we were told that he probably had a seizure disorder, and he would most likely grow out of it. The neurologist wanted to do an MRI, as a precaution, to make sure there was nothing structurally wrong with his brain. Well, we received horrendous news. Trevor had a mass on his brain. After further testing and MRI's, it was determined that he had an inoperable infiltrating astrocytoma, with 2 tumors on his spine as well. Trevor started chemo in February, with horrible side effects. He completed the first round of chemo in April, following an MRI. The doctors told us that the tumor was stable, however, it looked as if part of the tumor could have gotten bigger. So, we began looking into alternative treatments for him. We have decided to take Trevor to Scottsdale, Arizona to Envita. As of August 14, Trevor completed 8 weeks of treatment.

Trevor had an MRI on September 18. We were told that his tumor grew 5-10%. His doctors want to start him back on chemo, but we are still so uneasy about it. We are still researching other options and awaiting second opinions. We ask that everyone continue to keep Trevor in your prayers, along with the thousands of other children suffering some form of childhood cancer.

On November 10, 2008, Trevor had his second brain surgery, and 95% of the main tumor was removed. This surgery was performed in an attempt to control his seizures. He has now been 4 weeks without a seizure. We are waiting for another MRI at St. Jude to determine if Trevor is eligible for the PBTC22 protocol. In the meantime, he is suffering severe pain in his butt area. The cause is still unknown.

Trevor had an MRI on December 16th, and it was stable. We are doing the "watch and wait" thing until he has another MRI in March. His pain has decreased substantially. It was attributed to "excessive amounts of stool". Trevor is not eligible for the St. Jude protocol as it is written. His doctors are hopeful that it will be re-written so more children will be eligible for it. We keep expecting and receiving miracles!!!

As of March 2009, Trevor's MRI inidicated additional leptomeningeal spread on his brain.  For this reason, the doctors said that his disease has progressed.  He has resumed weekly vinblastine treatments.  He is tolerating this chemo better than could be expected.  The butt pain was attributed to nerve involvement with the tumors that are on his spine.  He will have his first MRI since resuming chemotherapy on May 13, 2009. 

Trevor's MRI showed that his spine was stable.  However, there was a spot in his brain that grew.  The leptomeningeal spread remained stable, so his doctors feel that he is responding to the vinblastine treatments.  The hope is that the spot that grew will just take longer to respond to treatment.  Next MRI is in July.

September 2010:  Trevor continues with chemo treatments every other week at St. Jude.  He has now been on avastin and irinotecan for one year.  This is the first set of therapies that have kept him stable. 

Latest Journal Update

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Hello to everyone! I hope everyone had a great Christmas and is off to an even better 2014! I haven't updated in a very long time, but Trevor is doing wonderful. If you are friends with me on Facebook, then you know how well he is doing. 

So, on January 4, 2008, our world was turned upside down when Trevor, then 2 years old, was diagnosed with a brain tumor. Yes, it's been 6 years!!!!!!! I have honestly lost count of the number of MRI's that he's had, but I know it's nearing a 100, if not over that number. He's had 2 brain surgeries; both of which we did not know if he would survive. Then there was the chance that he could suffer brain damage, nerve damage, paralysis, blindness, hearing loss and a long list of other things.  Thankfully, he has no known deficits. Chemo....let me think a second. He's been on 9 different kinds of chemo over the last 6 years. Harsh, toxic chemo requiring 5 or 6 blood transfusions, blood pressure medication, close monitoring of his kidneys for proteins, reduced doses because his little body couldn't handle it, throwing up for 7 hours straight, pale skin, no appetite, missed school (52 days), mouth sores, low blood counts, neuropathy, potential hearing loss, horrible pain....and that's what I can remember him going through. So after ALL that, Trevor is now a full year without chemo, AND we are 2 weeks away from a very important MRI. This will be the 4th MRI without chemo. It's huge, and I feel in my heart that it will continue to be stable.

I know that Trevor's tumor is very unpredictable, and that it can decide to start growing at any time. I also know the longer that it remains stable, the better chance it has of staying stable. If you've never had a child diagnosed with a brain tumor, you can't possibly know the ups and downs, the highs and lows, the confusion, the fear, the feeling in your stomach that can't be described....followed by the hope, the joy, the blessings, the love, the faith and the belief that your son can win the battle he's fought almost his entire life. So for all of you that gripe about this or that, and think your life is so tough, try being grateful for what you have and where you are in life. There is nothing more frustrating to a mother of a son with a brain tumor and to a woman who has battled cancer herself, to see all of the negativity, ungratefulness and complaining that goes on in social media.  I'm pretty sure that I live the most blessed life possible. I will update about Trevor's MRI. 

Blessings to you all, 

Melinda