My Story
Welcome to Trevor Kott's CaringBridg
Journal
Sunday, June 28, 2009 11:31 AM, CDT
My head is spinning with all that is happening right now. I have been remiss in keeping you all informed with the daily miracles that Trevor bestows upon us. He also continues to hand us challenges and reminds us that his work has still only begun. I will start with the challenge our Cameron Park community is facing right now. Caleb McNitt was just getting out of the hospital when Trevor was diagnosed at the same Kaiser facility in Sacramento. He also has AML, Acute Myeloid Leukemia. He underwent four rounds of intense chemo - he was so sick that he was unable to complete his fifth round protocol, but he was in remission and considered cancer free. He was 10 years old when he was first diagnosed. With AML the treatment protocol, like Trevor's, was that you don't leave the hospital.
Caleb's mom Susie was the first person to come visit me and Trevor and comfort us and gently introduced us to the journey we were about to embark on. The McNitt family is the most generous, caring, loving family you could ever have the privilege of meeting. Caleb after being released and cancer free went on to school and grow and do all the things a normal boy is supposed to. He is also on our local swim team that my girls are on called the Sierra Sharks. Two weeks ago, in the middle of the swim team season, when all the kids are out enjoying the beautiful sun and splashing around, Caleb went in for some tests and revealed that his AML is back. He is now in the hospital and is 14 years old and is getting prepped to go straight to a bone marrow transplant. Caleb is adopted and is half black and half white. FORTUNATELY , as of now he does have a few matches that they are pursuing - but just a few. When they did a search three years ago, he had even fewer, so the work we are ALL doing to spread the word on getting people registered is working, but not done. So please help me continue to spread the word on the incredible need out there. Team Trevor and the Sierra Sharks are working together to help out the McNitt family in every way we can. We are working on getting him a few surprises and Team Trevor is also helping with some blood and marrow drives. Please refer to www.trevork ott.com for all the details. We will be running the marrow drives at the News10 Blood and Marrow drive on July 10 from 7:00 am to 7:00 pm in three locations, Elk Grove, Maidu Community Center in Roseville and the News10 Studio on Broadway in Sacramento. This will be a sponsored drive so if you haven't already been swabbed, please come by. We will also be on Sac & Co, the ABC live show at 9:00 am talking about Team Trevor and blood and marrow..(Yi kes, I have to get my hair done - I have a half brown/gray crown on my head right now)
The picture on this post is of Curt Wylie from the TNT cycle team - he is the coach and he has one of the biggest hearts I've ever seen. This is him on top of Half Dome in Yosemite in a Team Trevor jersey. He and Nanette got their Grand Slam with TNT, which means completing the 100-mile bike ride, an Olympic Distance Triathlon, a marathon and now hiking Half Dome. They brought Trevor with them to one of the most beautiful sights in the world. Thank you Curt and Nanette. You continue to amaze me and inspire me.
Last night Bob and I went to a Premiere of a documentary about Team Will. I'm not sure how to even start to express the emotions that ran through us while we were laughing, crying, bawling, and back to laughing throughout the entire movie. Suffice it to say that the members of Team Will are so genuine and giving of themselves for the sake of curing pediactric cancer that I do believe they will be instrumenta l in making it happen. William passed away at 17 months from a type of cancer that attacks the kidney and a few of Team Will members decided that they wanted to ride bicycles across the country and visit hospitals along the way in honor of will - raise money and awareness of course - and did it twice. They are now planning for 2010.....do I dare say, Team Will and Team Trevor together riding across the country??? It was 10 days, a relay, taking shifts - wow, Bob could not control his emotions. It has always been a dream of his to ride across the country and so.....Trev or continues his work.
Which brings me to Bob and Chris and Ed and a few others who have not quite committed but we're working on them, who are training for the Nike Women's Marathon. We have lots in the works for fund raising activities - including Nugget market. I can't wait to watch these burley men running in the Women's marathon - it's going to be GREAT!!
Whew , of course in between all of these events - oh, and I forgot, Team Trevor is definitely going to have a presence at the Pacific Grove Triathlon. Bob will be competing in it again, along with many members of Team Trevor. If you'd like to join our team, we are one of the drop-down clubs if you register and you can be on our team! We'd love to have you and I can send you a tri jersey :)
All the while Kendall and Lauren are out of school and are having a great summer! My mom is finally here and came with us yesterday to the swim meet to watch Lauren and Kendall having so much fun with all their little friends swimming and just being kids. I am really enjoying them being home and being kids. I know it sounds like we are doing so much, but in reality I feel like I'm not giving anything my full attention besides my kids and all the other activities are not my first priority, but somehow it will all get done.
So I'm reaching out to all of this CB family to help me support the McNitts and Caleb. Here is his CB site:
http:/ /www.caring bridge.org/ visit/caleb mcnitt
Also please also check out Team Will's website
http://www. team-will.o rg
I haven't heard from you in a while - not sure if anybody's still reading my posts are not. Would love to hear what you all think and how you all are doing :)
I'm now late to get ready for a baby shower - Brenda Bisharat's daughter is having a baby. I'm so excited for her. I'm going to give her one of Trevor's blankets. It is so hard to start letting go of some of these treasures, but it will give me joy knowing Trevor will be remembered when another little baby boy is wrapped in his blanket...
A ngela
Caleb's mom Susie was the first person to come visit me and Trevor and comfort us and gently introduced us to the journey we were about to embark on. The McNitt family is the most generous, caring, loving family you could ever have the privilege of meeting. Caleb after being released and cancer free went on to school and grow and do all the things a normal boy is supposed to. He is also on our local swim team that my girls are on called the Sierra Sharks. Two weeks ago, in the middle of the swim team season, when all the kids are out enjoying the beautiful sun and splashing around, Caleb went in for some tests and revealed that his AML is back. He is now in the hospital and is 14 years old and is getting prepped to go straight to a bone marrow transplant.
The picture on this post is of Curt Wylie from the TNT cycle team - he is the coach and he has one of the biggest hearts I've ever seen. This is him on top of Half Dome in Yosemite in a Team Trevor jersey. He and Nanette got their Grand Slam with TNT, which means completing the 100-mile bike ride, an Olympic Distance Triathlon, a marathon and now hiking Half Dome. They brought Trevor with them to one of the most beautiful sights in the world. Thank you Curt and Nanette. You continue to amaze me and inspire me.
Last night Bob and I went to a Premiere of a documentary about Team Will. I'm not sure how to even start to express the emotions that ran through us while we were laughing, crying, bawling, and back to laughing throughout the entire movie. Suffice it to say that the members of Team Will are so genuine and giving of themselves for the sake of curing pediactric cancer that I do believe they will be instrumenta
Which brings me to Bob and Chris and Ed and a few others who have not quite committed but we're working on them, who are training for the Nike Women's Marathon. We have lots in the works for fund raising activities - including Nugget market. I can't wait to watch these burley men running in the Women's marathon - it's going to be GREAT!!
Whew
All the while Kendall and Lauren are out of school and are having a great summer! My mom is finally here and came with us yesterday to the swim meet to watch Lauren and Kendall having so much fun with all their little friends swimming and just being kids. I am really enjoying them being home and being kids. I know it sounds like we are doing so much, but in reality I feel like I'm not giving anything my full attention besides my kids and all the other activities are not my first priority, but somehow it will all get done.
So I'm reaching out to all of this CB family to help me support the McNitts and Caleb. Here is his CB site:
http:/
Also please also check out Team Will's website
http://www.
I haven't heard from you in a while - not sure if anybody's still reading my posts are not. Would love to hear what you all think and how you all are doing :)
I'm now late to get ready for a baby shower - Brenda Bisharat's daughter is having a baby. I'm so excited for her. I'm going to give her one of Trevor's blankets. It is so hard to start letting go of some of these treasures, but it will give me joy knowing Trevor will be remembered when another little baby boy is wrapped in his blanket...
A
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