My best friend Sommer has setup a site to schedule meals as so many have asked if they can help with meals. The meals are very helpful as we do not have to thibk about each da
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As I lay here this morning and watch my baby boy with tubes, irregular breathing, fevers, and full of meds to keep him comfortable I just want to take all his pain and discomf
Trevor has spent the last 2 weeks at home having ups and down but ultimately this has become the end of his journey. While words cannot express the sorrow that I feel as I los
Trevor is all settled in back in the Fairfax Pediatric ICU. He started cancer treatments today. They did radiation to his legs to hopefully minimize tumor burden and get rid o
Well Trevor had bladder embolization after his third round of Formaline. Embolization was done last Thursday and since then no active bleeding. So today he is getting transfer
Trevor is still at Childrens in DC. He has had about 5 surgeries and had 3 formalin installations. With each installation there has been improvement and today we got word from
Oh...and by the way...our strong brave boy is a true scientist! Dad #2 Brandon entered our sweet boy in the regional science fair that he was invited to enter since he won his
Today Trevor was transferred to the ICU at Childrens primarily to be closer to the team of pediatric urologists that have been taking care of him. So today was pretty hectic..