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Tori’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

We are so blessed.Welcome to Tori's journey. It all began around March 10, 2013. Tori started in with a bad cough, congestion and feeling very tired. We went to the doctors and he said she had some sinus issues and put her an on antibiotic. She felt a little better on some days, but then got worse. Her days were full of wanting to do nothing but lay around, her cough got worse and her chest began to hurt. She lost her appetite and began losing some weight. She kept the positive attitude, continued to work and manage her school load, but struggled. We took her back to the doctors, who put her on a stronger antibiotic and told us to get a chest X-Ray if it wasn't better by Monday.Her chest got better at first, but then got bad again. She began having shortness of breath, lost a few more pounds, her back began to hurt (we assumed it was from coughing so much), she was still very tired. Some days she felt pretty good and other days it was difficult to breathe. She began experiencing extreme night sweats and some numbness and discoloration in her left arm when she was actively using it.We had a chest X-ray done which showed some fluid in her left lung. So back to the doctors we went. The doctor noticed a large swelling around the left side of her neck, almost looking like a football players neck. The doctor then told us that the chest X-ray also showed a large thickening down the middle of the chest. He said that these were all sign of lymphoma - which is a form of blood cancer...and thus it all began!

Latest Journal Update

Heading In The Right Direction

Sorry it has been so long since I posted any updates!  It was before December!  Christmas was great and Tori celebrated her 21st birthday on January 6!  I still can't believe that she is 21!

For the most part, things are going great!  Tori is back at BGSU full-time (3 classes) and just started back to work at Shawn's Irish Pub in Waterville one day a week.  She is so excited to be back!

She is feeling pretty good with the exception of a few side effects from the chemo.  She still struggles a bit with her concentration (chemo brain) during her classes, but it is not too bad and will get better.  I mentioned in the last post that Tori was having some circulation issues and was diagnosed with Raynaud's.  They had run some tests to see if anything else was going on with her auto immune system and unfortunately a couple of those test results came back positive.  So we saw a rheumatologist a few weeks ago.  She wanted to run some additional blood work to make sure that nothing else is going on.  We go back and see her next week.

Since Tori has such a high chance that her cancer could return, they started her on some maintenance chemo in January.  She has received two rounds thus far.  She is able to receive this at our local Oncology Office.  She receives it every three weeks and will be on it for just over a year.  It targets the bad cells and not the good ones, so she is able to manage it better than most chemos.  She gets tired the night that she receives the chemo and her white blood cell counts dropped quite a bit, but so far so good.

We will go back to OSU on March 24 for her nine month scans.  The longer her scans are clear the less likely the cancer will return, so your continued prayers are always welcome.

Tori was asked to walk in The Victory Center's Fashion Show next Friday.  They have 5-6 Cancer Survivors model local store's clothing while they tell their story.  We attended this last year and it was a great event.  This year Tori gets too participate.  I can't wait to see that smile on her face as she walks down the runway as a survivor!

Tori's attitude and love for life continue to be positive.  Sometimes I think she is trying to do a little too much, but I know that deep down she is just being a normal 21 year old.

Cancer sucks, but we are beating it!

 
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Comments

9 Comments

Monica Ellis
By Monica & Jim Ellis (Chloe's parents)
Keep that smile on your face Tori! Enjoy your fashion show. You will be a show stopper! Sending prayers your way for a good report next month. Happy St. Valentine's Day!
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Melanie Yaufman
By Melanie Roberts Yaufman
Thank you for the update. So happy to hear that Tori had a wonderful 21st Birthday and is enjoying her classes at BGSU. Continued prayers...and I know she will have a great time at the fashion show.... :)
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Ralph and Karen Parrish
By Karen and Ralph Parrish, Dickson, Tennessee
What great reports! Keep going, Tori. Thanks for all updates.
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Daniel Zak
By
Thanks for sharing the good news. You are in my prayers each day. Continue to stay positive and grateful for life.
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sherry gibson
By Sherry Gibson
So happy for all of you! I will continue to hold you up in my prayers!
Sherry
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Sherry Boerst
By Sherry Boerst
I wondered how Tori was doing. Thank you for the update. Glad to hear positive things. We keep her in our prayers.
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Pam McMillin
By McMillind
Was just thinking about Tori and you guys yesterday! Glory and praise to God for the good things happening to Tori! Continued positive thoughts and prayers being sent your way!
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Angela Crozier-Berger
By Angela and Family
Hi, Glad to hear that that Tori is doing well. What a long haul you've all been through. I truly believe that your good faith in God has been with you. I cannot believe these young ladies (Kasey 21 in March) are growing up so......kinda scary. We will keep you all in our thoughts and prayers ; )
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