It has been quite awhile since I last updated this site. Since I last wrote Tony has been accepted to the Double H Ranch for summer camp in August, had a stable MRI and doesn't return to any doctor until October! His eye is still a little dry so we are going to continue with the ointment as often as he needs it which is 5x a day right now. We can do it as often as needed since it's not medicated. He will always fight severe dry eye for the rest of his life. As he gets older he will be taking on more of the responsibility for drops and ointment.

The MRI was unchanged from March so feel comfortable being pushed out to October, giving him a 5 month break. This month marks the 3rd year since he had the tumor resected. At times it seems like it happened yesterday and other times as if it was a bad dream. Although we have daily reminders of the surgery it seems minor compared to how much he has already achieved in his almost 10 years.

Tony is growing so fast and becoming a young man before our eyes. He is taking more of an interest in his looks and has been wearing his hair spiked down the center for a modified mohawk. We comprimised with him, he wanted a real mohawk and we did not. We let him get his cut short on the sides, but keep it just long enough on top so with a little gel it stands up.