Tony Crispino's Journal
Written Aug 24, 2013 1:15amWhat a terrific weekend and following week. Ruth and I were near Mount St. Helens in Washington state touring around with Todd and Amanda our friends forever. Just a reminder that Todd and I met after he was diagnosed with prostate cancer with a 3216.16 PSA seven years ago. SEVEN years ago and going strong. We Kayaked. We drank some wine. We boated. We dined. We loved!
Tonight was Ed Randall's Bat for the cure night at the baseball game. We had a blast. With again, friends from the PCa front my friend Jason threw out the first pitch with his boys and it was fun to watch.
Funny though. We're at the game trying to give away a special blue bat signed by all the team members for the Mets minor league affiliate the Las Vegas 51's. It was simple. Fill out a card and we'll send you some information about PCa and you'll be entered to win the bat. But many men did not want to "receive anything. They're tired of receiving things" was a common response. One 50+yo man was rude about it and I kinda wanted to give him a DRE with the bat but something got in the way...
Last June I completed by two years ecclesial ministry program. I am now a minister and doing this in frustration was probably not a proper thought. I continue learning this fall in the University of Notre Dame STEP program. I'm going back to school again hopefully to better myself.
So did any of this help me? Well I told the rude guy that I understood. That I ignored all the crap that came in my mailbox about my health until I turned 44. I told him that would be about ten years younger that he was. He agreed. I told him that never thought for one moment ~ that in a fast NY minute, my life would be changed and would never be the same. That I wished I had met me a few years earlier.
He signed up for the chance to win the bat.
Ten years ago he'd a got the DRE.
LOL. So it is that I don't have the lack of patience that I used to. I thank God for that. For the chance to become patient.
My last PSA test was zero in February. My oncologist, Nick told me as far as he is concerned I'm cured. Those were some awesome words!
Peace and Love.
Prostate Specific Anxiety
Written Jan 22, 2013 12:14amWell it's a new year and while Lance Armstrong is out of cycling forever I'm not so sure I am. What I mean is because of my diagnosis I will continue to be tested for cancer the remainder of my days. And while these tests have been less stressful over the years, it always happens that it's in the back of my mind when testing gets near. We have a term for that in the survivorship community. It's called prostate specific anxiety. It's a play on the words for the key blood test ~ the prostate specific antigen test ~ we have to have drawn. So it is that the cycle continues this week. Thursday we do the blood draws, Monday I see the oncologist. And we'll do it again. and again, and again, and well you get the picture...Funny how a blood draw for Lance Armstrong ended his cycling, but it causes mine.For some reason I feel a bit more distress on this go. Not reasonable from the standpoint I have strung many great results together over 6+ years. But not unreasonable either when you consider that the average remission for a prostate cancer that was determined to have spread outside the prostate in the way mine did is about 6 years.The anxiety continues. I'll repost on Monday.I am getting close to meeting a goal I have set. I have just four more ministry classes to attend and I will have a commissioning ceremony in the middle of May and it's a blessing I believe that the Lord has saw me through it.As He has also through my journey with cancer...
Talk About Something to be Thankful For...
Written Nov 21, 2012 3:25pmMy brother is making a comeback. He's doing well, just has some pain in all the broken pieces, but doing well. Reid has been through hell and back, all of our family too, but he's making progress every day.His cognitive reasoning is near normal. He knows about the accident, but does not remember it. He knows he has speech issues but is working hard to fix it. He knows he has nerve damage in his left eye and if therapy does not fix it, he'll probably have to have surgery. He can see out of it but he can't control the eye movement. So unless he wears special glasses he has double vision.And he also knows this ~ he'll be released from the hospital on November 27. :-)This is pending some serious therapy training ~ for all of his family and friends. They are holding a class this Saturday, unfortunately I cannot attend, so everyone knows how to care for him, and how to help him with his therapy. He'll be staying at his girlfriends parents house at they are retired and up for the task. On the weekends he'll stay in his own home.He has to have constant assistance as he cannot get dizzy and fall. That would not be good for the bones.This news is terrific for us but we know the road is long and will be difficult. But we are ever so thankful for all the love and support we received. For all those who have written me on Facebook or Email.But most of all we are thankful that my brother is alive and doing so well.Thank you, Jesus...I've decided to move my tests into December or January. Even if news wasn't good I would still not be rushing into anything. So it is that 2012 will likely close out with no change in my status. The biblical classes I teach are done until January so my Tuesday nights are freed up. The UsTOO group is off until January so not much for Thursdays for a while. I have one ministry weekend retreat to do, and I look forward to it in December. I will enjoy the holidays and get back to busy in January though.May peace and love be with you all this Thanksgiving. May the Lord bless us all around the world. Thank you for all the prayers, and keep 'em coming. I'll do the same for you all.Happy Thanksgiving! I know I have a list for givig thanks!