Thomas Schmidt's Journal
Today is his Cancerversary
Written Oct 30, 2013 12:01amI read these threads the other night- and cried the whole way through.
Many of you know years ago Majbritt and I both battled cancer.
You helped us through tough times, our children were 3 and 1 when I was diagnosed with testicular carcinoma and Majbritt was diagnosed 4 months later with a rare sarcoma. She was in radiation while I was in chemo that Christmas was tough in 2006. Folks came and decorated our house with lights and brought food, presents.. I was in the hospital.
Six years later the unthinkable- our son got sick.
One year ago today we were told Thomas had a cancer called myxoinflammatory fibroblastic sarcoma. It is a highly aggressive, chemotherapy resistant malignancy of the soft tissue- in his right leg. The docs told us to brace ourselves- the second surgery was going to be massive, and they would try to save his leg. He had 4 surgeries total last year- Here he is fearless at the plate 3 days ago. Today is his cancerversary.
My tears are for the pride I have in my family- all my FAMILY.
More smiles from Rock Star Docs!
Written Sep 27, 2013 1:09pmThomas had a post op appointment with his Rock Star Plastic Surgeon today. Everything is looking great! She doesn't think he will require additional reconstructive surgery- something we had been prepared for. The concern is that as a child grows sometimes a large scar will pull muscles and tendons out of place, creating pain and limited movement.
He does have pain in the center of the shark bite, and from one of the donor graft sites. Mostly from when we rub in the silicone ointment, or it rubs against his jeans. This is not a surprise to the Rock Doc, she just asked that we monitor it and give Tylenol as needed.
The pain at the Shark Bite always gives Majbritt and I pause - we start worrying about recurrence and all the anxiety that goes with that... But we are pleased that his Oncology Rock Star Docs are happy from 9/13/2013- and now Plastics are happy too. And he has gained weight! WooHoo!
He is very busy with Cub Scouts, Fall Baseball, Violin, Much Fishing and hanging out with friends (aka: play dates). In fact, both his Plastic Surgeon and her Nurse both donated to his Cub Scout Popcorn Fund Drive. How Awesome!
Here he is playing second base.
9 Months Cancer Free!
Written Sep 13, 2013 4:29pmWe wanted to share the good news with everyone:
Thomas had his 9 month visit today, which includes MRI, Chest XRay and oncology clinic visit at CHOP.
He is Free of Disease!!
Images are all clear and Rock Stars feel the shark bite has healed beyond their expectations. The skin is much softer than a typical scar that size- thanks to daily massage routine with silicone based ointments. It is our bed time ritual. We should be able to feel any abnormal tissue beneath the shark bite, and SuperT can move his leg freely.
We did have a sad note today, one of the Rock Stars has moved to a different clinic. We will miss Dr. Ed Attiyeh- he gave us such confidence and hope early on. He is still part of the Tumor Board (Meeting of the Giant Minds), and SuperT's rare case is still discussed there. It's like getting 20 second opinions- awesome indeed.
Our new Attending Rock Star is Naomi Balamuth, but Resident Rock Star Marisol Betensky is our favorite- we hope she chooses to stay at CHOP.
Thank you all for your prayers and support this past year, you are part of a great community! SuperT is busy with Cub Scouts, was on the summer swim team, is playing Fall BaseBall, and has chosen violin for 3rd grade strings. He actually lost weight over the summer- but they are not concerned- probably due to swimming. We will beef him up.