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Thomas’s Story

Thomas is only 7 years old, and was just diagnosed with an atypical sarcoma.  He is being treated at CHOP, Childrens Hospital of Philadelphia.  He has been such a trooper through his illness, which started October 2012.  He has a great network of caregivers, doctors, family and friends that have kept him strong and his spirits high.




Thomas - 7 years old.

He was sick all of October 2012, because of an inflamed lymph node right groin.  They finally preformed a surgical biopsy, and ended up removing a 4cm mass. 

On Tuesday, 10/30/2012- we were told the pathology indicated an atypical sarcoma. 

He then was scheduled for a tumor bed resection with Dr. John Dormans and Dr. Joy Collins.  Dr. Collins was the surgeon that preformed the biopsy.  The reconstructive and plastic surgery and phase of Thomas' journey will be with Dr. Oksana Jackson.

His oncological team is led by Dr. John Maris, Dr. Edward Attiyeh, as well as several Fellows.  We are participating in a research study led by Dr. Richard Womer.

This is a good team here at CHOP.

Today (11/8/12) they told us the final pathology: myxoinflammatory fibroblastic sarcoma.  His pathology slides were read here, HUP and Dana Farber.

We are planning to seek second medical opinions from Dana Farber and perhaps MSKCC. 

We are also planning to enroll in a genetic testing program, as both Majbritt and I are cancer survivors.


Joe and Majbritt Schmidt

Latest Journal Update

18 Months Cancer Free!!

Good news! Thomas had his 18 month surveillance check up, which includes MRI, CXR and phisical exam.
Oncology Rock Stars at CHOP have told us that he remains free of disease!  No cancer!!
He is picking up in the height and weight charts, and is the back to doing normal nine year old boy stuff.
He loves Cub Scouts, reading, minecraft, legos- and spending time with his buddies.
He and big sister Hannah (11) get along great (mostly), except she likes purple and T is indifferent.
He came in 3rd in the Chess Club final tourney at Bradford Heights Elementary School!

Two yeas ago we had no idea of the nightmare that was about to unfold upon our little family.
Thanks to your support, CaringBridge to help us vent, friends, family and the Rock Stars at CHOP with the Giant Minds we are one step closer to the 5 year free mark.  That will be a party.


Much Love,
Joe





Comments

2 Comments

Karen MacNaul
By Karen MacNaul
checkig in to say "hi"!
Karen MacNaul
By Karen MacNaul — last edited
WOOOOOOHOOOOOO!!!!!! Definately a reason for a big celebration! Thanks for sharing this news...the sun shines a little brighter now.
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1 person hearted this