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Tyson’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Tyson was born by emergency c-section at 26 weeks gestation November 1st, 2012 at 15 oz. and 10" long. Because of his prematurity, he has developed Bronchopulmonary Dysplasia and Pulmonary Hypertension. This site chronicles his victory over challenges brought by his very early birth.

Tyson is named after one of the greatest champions of all time, Mike Tyson. I knew that Tyson would have an incredible fight for his life, and no one with the name Tyson could ever be weak. Tyson is our champion.

After 509 days in the NICU, Tyson came home with a g tube and oxygen. He continues outpatient therapies to help him overcome global delays. We anticipate a full recovery from his premature birth.

Latest Journal Update


This winter has been relatively umeventful. No hospitalizations. One ER visit for a suspected Gtube stoma infection.

We no longer keep Tyson on continuous oxygen because he will not tolerate it as he becomes a more active, assertive toddler. Thankfully, his lungs are strong enough to keep up with him for a few hours at a time, depending on how active he is. Tyson will put the oxygen back in his nose when he needs it.

His physical therapist taught him how to climb up and down stairs. She also continues to help him gain confidence walking.

Tyson has been well enough, long enough to try foods again. He is not a fan. Any advice is welcome!!! Note that he is allergic to nuts and eggs.

Eczema is still an issue, but it has improved greatly since leaving the hospital. I guess his immune system just needs more time to mature.

Tyson will now answer simple questions (if he is in the mood), like:

"Do you want to go nite-nite?" Uh-uh. (Shaking head emphatically)

"Do you want your pants?" Yeah!

"Do you need a diaper change?" (signs diaper)

"Do you want more milk?" (Signs more)

He knows some body parts, too.

He has come a long way, on his own schedule. I am getting better at not looking at the development schedule of healthy, term babies. And some where along the way, I quit blaming myself for his early birth. NICU parenting feels light years away now like they said it would. And our family has a new normal. A happy normal life.