Teagan Paige
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Teagan was born 6 Sept 2004 and diagnosed with Hurler Syndrome (MPS-1) on 2 May 2005. She received a bone marrow transplant on 29 July 2005 at Cook Children's Medical Center in Fort Worth, Texas. Her 4 year old brother, Riley was her selfless donor.

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You can view her picture archives in 'my story'.


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  MONDAY, SEPTEMBER 29, 2008 08:48 AM, CDT
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So sorry for lack of updates. I have been going a million miles an hour over the last few weeks. All is well tho :)

We have Teagan's neurospych testing back. It went very well. I will try to break it down in simple terms...

This was the first year they could do IQ testing on Teagan. She obtained a Full Scale IQ of 81 (10th percentile for her age) which is the low average. AVERAGE... did ya get that...? I was excited to hear that :) I think she scored higher than me ;-)

Verbal IQ=84 (14th percentile)

Performance IQ =82 (12th percentile)

As for her verbal abilities she has improved remarkable from last year.

Total language=85 last year was 73

Receptive lang=87 was 77

Expressive lang= 86 was 74

Preacedemic readiness she scored really well at 115 (84 percentile). She knew all 11 colors presented to her, 10/16 letters and 15/20 shapes (I didn't know there were 20 shapes).

Adaptive behavior - all scored in the low average as well.

Adaptive behavior composite= 86 (18th percentile)

Communication skills = 89- low avg

Self help= 89- low avg

Motor=81-low avg

Socialization = 97- avg - which shows an area of strength for her.

We also had another ARD meeting for her. They originally wanted to cut her back to 2 days a week with no PT. After meeting with her PT at the school and rescheduling another ARD, Teagan will now go to school 5 days a week 2 hours a day with motor lab 30 minutes each day. She is also transitioning into a classroom with a mixture of disabilites and role model kids with no disabilites. She will be with them for an hour a day and the full 2 hours on Friday. So far she enjoys it.

Teagan's Run for MPS went really well. I am still in the process of tallying up all the results, but thigns went really smooth. We had a great time with all the family here. The time goes by way to fast tho. I am so thankful to have such wonderful people in my life that are willing to help us out every year to put this together. It seems like a circus at the time, but it is so nice to have everyone together at least once a year. I will post pictures as soon as I can.

Thank you to everyone who made Teagan's Run possible!

I love you all!!!

~Stacey

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EMAIL AUTHOR
stacmer14@yahoo.com

HOSPITAL INFORMATION
Cook Children's Medical Center
We are Home
Abilene, TX 79606
United States
325-690-9488