I have been horrible at updating Teagan's site. For that, I apologize.
However, things are rolling along just fine. Many things have happened since the last time I updated our princesses site.
Teagan now attends a main stream pre-kindergarten class at the same school she has been attending for the last few years. She is there full time, 5 days a week and truly enjoys it. She has made many friends and absolutley loves her teachers. She has done well and has made great progress. Her grades are all in the normal fields. We have her annual ARD meeting in 2 weeks to discuss her actions for elementary school and kindergarten.
We had the great opportunity last month to attend the National MPS Conference at Disney World. It was a wonderful experience and we were able to meet up with some very important people that have been along with us on our MPS journey. Unfortunately, Darrell - Daddy - wasn't able to go with us. As most of you know, he is active duty Air Force and was called up to go to Afghanistan a week before we left for the conference. We found out a few weeks in advance and were able to substitute my brother, Shane, to go in his slot. The conference was amazing and, as always, fun and informative. Such is life as a military family.
Teagan's doctor visits are all going well. She is now being seen by oncology every year now. All her blood counts look great. Her orthopedic appointments have increased to every 4-6 months. I am starting to be a little concerned about her hips. Lately she seems to be more stiff than usual. Not sure if maybe it has a lot to do with the weather being so cold, but it still causes concern for me. I also need to get her in to be seen by her neurologist and get her hands looked at. I think she is losing strength in her hands. Cardiolgy looks good too. MVP hasn't progressed, the valves all look good, still slightly thick but no meds are required as of yet.
Dental is just another story. It seems all the steroids and chemotherapy have taken it's toll on her little teeth. Her front teeth are starting to chip away. We are on a list to get them fixed, waiting to get all doctors in line with one another. We have also found out that she is missing some adult teeth. Apparently a few adults have never formed. They simply aren't there. This isn't something that we need to worry about now, but will be a small cause for concern later when she does lose her baby teeth.
Most of you know that Teagan was chosen to be a Miracle Child for the Children's Miracle Network for our local area. Recently her picture has been featured on a local billboard as well as some newspaper foldouts and local magazines. I will share one with you. The picture represents the ground breaking for the new childrens hospital that is now under construction.
All things are going really well. She is learning at a normal rate, still growing, and very happy... and somewhat sassy... wonder where that comes from.....? What more could we ask for?
Much love to everyone!
~Stacey
