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Taylor’s Story

Welcome to our CaringBridge site. Taylor was diagnosed with Severe Aplastic Anemia in March 2008. He received a BMT in May, 2008. Explanation of a BMT on resource tab.  In Nov. 2010, Taylor's BMT had failed.  After several unsuccessful other treatments, He had a 2nd BMT 2-11-11. This journey is not over yet. WE encourage you to become a blood donor (with Memorial Blood Centers or Red Cross) and Bone Marrow Donor @ bethematch.org

 



Taylor is an energetic 14 year old boy. He loves to draw and create cartoons. Also is a HUGE Star Wars Fan. Taylor has been diagnosed with Aplastic Anemia. This is a very serious and life threatening illness. We initially took him in to be checked, because of the frequent and easy bruising, which was because of low blood platelets (his are19,000, they should be 150,000). He had also been having headaches, due to low red blood cells, (his hemoglobin has been between 6.8-7.6, normal is 12-16) which does not give enough oxygen to brain. His energy level has gone very low. Because of his blood counts being so low, especially the platelets/clotting factor, there is a risk of internal bleeding, or severe bleeding if he is injured. Also a decreased immune system. This is catogorized as an auto-immune disease. The cause of Aplastic Anemia is not known, but it effects the immune system, which causes it to attack his bone marrow. Bone Marrow is what produces blood cells. So his blood is not producing new cells, or the immune system is attacking the cells faster than they can produce. He will begin chemotherapy, which will wipe out all of the current bone marrow which is not working to make new cells. This will be followed by a bone marrow transplant. This is considered a very serious treatment. This is the most aggressive form of treatment, and used only for certain cancers, and if only because you would die otherwise. The date for treatment to begin has been set for April 28. Watch for updates. His sister Katie, who is 16, is a perfect match, and will be the donor. It will be drawn from her hip, while she is put under. I had previously understood that it would not hurt much, so this is a correction. It didn't hurt Taylor, because his bone marrow is unhealthy. However, it will hurt for Katie, that is why she will be put under. Taylor will also be taking a medicine to prevent infection, which can be very hard on the liver. Please pray he tolerates this well, with no ill effects. Note that no cancer has been found. There are many possible side effects of transplant, but he is in good health otherwise, is young, and has a full match/sibling donor, putting much in his favor. We have faith that God will bring him (and our family) through this all. The expected recovery time is one year. This is a very high risk treatment, and death is a possiblility. Please keep him and all of our family in your prayers.  He has 6 siblings: Stephanie 27, who is on her own and engaged to Duane, Heidi 26, married to Trevor, Becky 24, married to Caleb and they have 2 sons, Gabriel (Gabe) age 5 and Claytonage 1, born on Taylor's birthday, Roxie 21,  Katie 19, married to Jon, and Tucker 17, living at home.
WE MOVED BACK HOME on July 11, 2008 after a successful Bone Marrow Transplant on May 5, 2008. Only a few minor complications, this transplant was considered "picture perfect" by his doctor. He had a bone marrow biopsy on August 8, 2008, and his bone marrow is 100% engrafted with the donor's(Katie's) cells. This is great news. We still will watch for graft vs. host disease, and praying that engraftment does not fail, since these are new cells that need to take root. I will post new prayer concerns or needs in journal section.  You can request our home and cell phone numbers, by email: tenhoff_clan@yahoo.com.  Taylor belongs to ministry organization called Hopekids. You can visit their website at www.hopekids.org and request their "hope minutes" daily devotion type messages or give a contribution. Thanks again for being a blessing to our family! May God bless you richly!
October, 2010- We have found out that Taylor's transplant has failed.  First plan of action is to get a Donor Lymphocyte Infusion from Katie's blood.  This is a blood donation of about 100 cc.  If this does not work, then another Bone Marrow Transplant may be in order.  This is very disappointing.

WE MOVED BACK HOME MAY 22, 2011 AFTER 6 MONTHS ON U OF M CAMPUS following a successful 2nd Bone Marrow Transplant. Continue to pray for Taylor, there are still many days of healing ahead, and pray for continued successful graft with no complications.

Russ and Monica

Latest Journal Update

7th Anniversary and Prom!

Hello to everyone!  Taylor just past his 7th Anniversary of his first bone marrow transplant on May 5!  Can't believe it's been 7 years since this all began.  Taylor is going good. No updates since his Feb. exam.  This weekend, was Prom.  Taylor took his girlfriend, Brandi.  Now, if you know Taylor, you know he can't just wear the norm.  Oh no, he is way outside the box.  The theme was an "Alice in Wonderland" theme.  This fun kid had to wear a top hat and tails. Yes sir, in true Mad Hatter fashion.  He borrowed one of Heidi's (his sister) custom made hats that she collects from Markets in her travels around the world with Cowgirl Tuff Co.  He also borrowed his Grandpa Lloyd's pocket watch.   Heidi also borrowed him her umbrella for Brandi to use.  They had a lot of fun and he got many, many positive comments about his outfit!  I have to say, it made me emotional to see this day come!  We have some more pictures posted on my facebook page, so you can look if interested. 

Also, it's time to do the Hopekids fundraiser walk again!  Please consider making a donation to this fantastic non-profit, Christian organization that does so much for kids with cancer and life-threatening conditions.  Taylor has benefited so greatly from HopeKids!  I don't know how he would have pulled through with out them.  He has gone to twins games, movies, race track, roller skating, and much more.  I encourage you to watch the video on the firstgiving fundraiser page.  Click on the picture of a kid with a whale (or dolphin?) You can make donations on his fundraising page:  www.firstgiving.org/fundraiser/taylor-tenhoff/suburban-adventure-2015

Taylor gets to go back to Montana in June to the Eagle Mount camp, Big Sky Kids camp, but this time as a camp counselor!  They will fly him out there for free and there is no cost!  He will be gone 12 days! Fun fun fun  He is super excited!

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Comentarios

2 Comentarios

Lois Schlauderaff
By Lois Schlauderaff
Congrats on 7th anniversary... very special. Wishing him all of Gods best and continued good health.
God bless.
www.caringbridge.org/visit/mandyschlauderaff
dawn schaefer stumpf
By dawn schaefer stumpf
Handsome...my forever 1st grade pirate! :) -Mrs. S