TAYLOR MURRAY
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"...With God All Things Are Possible" - Matthew 19:26

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our precious daughter, Taylor, who has Mitochondrial Encephalomyopathy. Be sure to read her story and the latest journal update, view the photo gallery, and drop us a line in the guestbook. We thank you for your love and support!

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  SATURDAY, JANUARY 03, 2009 09:32 AM, CST
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HAPPY NEW YEAR!!!

We're going home today!!!!!! YEA! (I'm really afraid to say that before we actually get there!) It has been a very, very long 3 1/2 weeks!!! Taylor is doing much better. She is going home with some new things and issues - snoring, anxiety, C.diff, 3 new incisions/scars, some new medicines, a GJ Tube, and 2 very tired parents.:0) Hopefully the snoring and anxiety spells will go away when we are home again. They are treating the C. diff. with an antibiotic. She got her G-J tube yesterday and so far it is working pretty well. For those of you who don't know - a G-J tube looks very similar to her G-tube button, only it has 2 ports on it. One goes to her stomach, so we can give her medicines, vent the air out of her belly, and drain her stomach acids if necessary. The other port connects to tube that has been threaded down into her small intestine, bypassing the stomach. This is how she will be fed now, in hopes of reducing her nausea and vomiting. The only drawbacks to the G-J tube are that she has to be fed continuously (which we were already doing) and that if it becomes dislodged, it has to be replaced by radiology. We hope and pray that this will give Taylor a better quality of life.

I better go start packing our room up! I can't wait to be home with BOTH of my babies! Thanks for checking on us. We appreciate your continued prayers for our family.

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EMAIL AUTHOR
bamagirl01@comcast.net

HOSPITAL INFORMATION
Vanderbilt Children's Hospital
2200 Children's Way
Nashville, TN 37232
United States
615-936-1000