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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Change of plan's

Just got off the phone with the doctors in Philly and we decided to change plan's a bit! In the best interest of Tatum we as a group decided to wait until February to go back, we were scheduled to go back to see Dr shields February 17  but have changed it to February 2. the Plan is to fly out Monday February 1st and to be at the hospital by 6:30 am on Tuesday for a quick pressure check and pre op physical, then they will put Tate under anesthesia and start the cataract surgery. This could take a bit where Tatum's tumor was located and were they had to place the radiation plaque it melted her cornea a bit and on the bottom of her eye there is scar tissue and tumor residue all the left overs from melting the tumor, this is significant because Tatum is a rare case of where the tumor was located and that is the reason Lisa and I decided to leave this one up to the pro's in Philly instead of doing this back in MN. After the cataracts is out and the new lens is put in Dr Shields will do her full exam before they wake her up so we only have to put our little warrior under once! We are very excited to have finally come to this part of our journey. We sat down with Tate this past weekend and talked over the options I mean she is 10 and knows what going on and we thought we would let her have some input on this satiation, Tate makes us cry very easy her toughness and maturity through this is simply amazing. Tatum told us that she can't even tell that her eye is not working and said it would be an even bigger surprise when she can see again and that she did not want to go back this fall if we didn't have to because she doesn't want to miss volleyball. She is a rock star it will be a long week but will be the best for all involved. Thank you all for the letters and kind words text messages and phone calls they mean so much to all of us! Yesterday was Macee's birthday we didn't do much but it was fun to watch the girls bump the volleyball around and to hear there giggles we are so blessed to have them both! Tonight I am asking for some extra prayers for my uncle and his family who lost a loved one in a accident last night it is always hard to think of losing a loved one to soon, it always reminds us to hold the ones you love tight and tell them everyday how you feel!!! 

"For God so loved the world, that He gave His only begotten Son, that whoever believes in Him shall not perish, but have eternal life." John 3:16

God Bless  
Scott Lisa Macee and Warrior Tatum
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Comentarios

6 Comentarios

Amy Tilleskjor
By The Tilleskjor's: Jayson, Amy & Maci
Thanks for the update. That is great news that you have a plan in place and Tatum is excited about volleyball!! She is a true inspiration and has made such an impact in so many lives. We will continue to keep her and your family in our thoughts and prayers!!
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Alicia Bertram
By Adam& Alicia
What a relief to have some answers and a date to look forward to. Sending continued thoughts and prayers your way!
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Amy Lennes
By Amy Lennes
So thankful she only has to be put down once! Tatum is a rockstar, and the way she handles this is so amazing! She is such a beautiful little lady - it will be so fun for her to see with both eyes- can't wait! Sorry for your families loss-
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Joyce Hegquist
By Joyce Hegquist
Thank you for the update! It just blesses my heart that your family is so close and I can see the love that comes through your messages! I'll continue to pray because God is so good and hears us. Hugs to all of you. 😍
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Donna Kaufman
By Donna Kaufman
I applaud you two for letting Tatum have a say in what happens, kids are not dumb and know what is going on. God bless you all and hope that all goes well for Tatum. Prayers for your uncle and your family!
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