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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Time Flies!

Well its been awhile but no news is good news right! Tatum had some test done trying to find the answer to why she keeps getting such terrible bladder infections and kidney infections. All of these test came back negative for any damage or blockage the Urologist thinks that Tatum has something called distention voiding I'm not sure I have that right but close enough what that means is Tatum is very irregular and has a of trouble with constipation and he is thinking that is putting pressure on her bladder and causing it to not completely empty out so he put her on a daily dose of murelax to help her stay regular. We are all hoping this works and are relived there is no surgery required! I will put a picture of Tatum and her cousin Anna in there costumes for halloween they both are so funny they are excited for Friday they are old granny's this year so cute. Tatum has been playing volleyball this fall and has her first tournament this weekend it is so hard to believe 2 years ago we were sitting in a waiting room seeing the pictures and hearing those words that no parent ever wants to hear! Next week marks the 2 year anniversary of her diagnosis and trust me tears are filling my eyes as I write this not of sadness but because I am so thankful of the care that we received to fix our little girl and tears of how PROUD I am of our little warrior Tatum has taught me sooooo much in the last 2 years she is my hero!! All in all everything looks good we are heading to the tumor doctor for a check up next week to make sure there are no surprises and then back to Philly in Feb for a week. these appointments and travel do weigh down on all of us but it is necessary to make sure that there is no regrowth or seeds starting. I do need some help from our prayer warriors I received a text from my Aunt last night informing me that a girl we went to school with needs some extra prayers they found a brain tumor on her one year old son so please keep baby Gabe in your prayers and the family for strength and comfort! Also need a few extra prayers for my cousins daughter who is having some troubles please pray for little Jade for strength and comfort! Thank You to all of our prayer warriors for your continued support!

God Bless
Scott Lisa Macee and Warrior Tatum 

Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go.”Josh 1:9: