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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Tough Times for Tate!

On Friday May 15th Tatum had her 3 month checkup at Children's in MN. The appointments usually take a hour so we knew after 4 hours there must be something going on, When Dr. Anderson came in and took a look she said she could not see Tatum's Retina. She told us this is a little scary when they can't see because the retina is where the cancer sneaks around however she did not see any sign of Tumor regrowth and the obstructed vision and difficulty seeing the retina was due to Tatum's cataracs developing more rapidly than they anticipated. Tatum's left eye (Cancer eye) is not really able to see anything but objects, as a parent watching her struggle to make out a one foot E on the wall brings tears to my eye's, the brain is starting to give up a bit on that eye and Tatum's eye is starting to drift a bit causing more concern, the good news is her right eye is perfect! So what do we do now well Dr. Anderson is sending the report to Philly for review we are scheduled to be there  the week of August 12th but with these latest developments we might be going sooner we hope to know by this weekend. Surgery is defiantly in Tatum's future now its just a matter of how soon to remove the cataracs and do some minor maintenance on her eye, they would really like to wait until she is 3 years cancer free before surgery but we might not be able to wait that long. Tatum is also fighting a skin condition called Muluscums, tiny little pimples all over her body we are trying to treat them with cream but have also been going to the dermatologist to freeze them off also the last time there were nearly 100 to freeze, but our bugs is a trooper fighting through every bit even after Fridays apt. she told me I'm nervous dad but not scared (insert tears) she's alot tougher than I am!!!! Two week's ago Tatum lost a classmate in a farm accident as a dad and first responder in a small farming community you pray that you never get a call or have to tell your kids that news. Both girls had lots of questions and Tatum still tells us stories, but the toughest was Tatum realizing how fragile life is and it truly scares her (and us) where we came from 2 years ago and now after Friday realizing we are not out of the woods yet. All in all we can fight these small things and glad we have each other to pull us through those tough day's and are glad we can say our little bugs is cancer free! Please join us in prying for the family of Tatum's classmate and also pray that Tatum's doctors so they can put a plan in place to fix the minor details left behind from the cancer and we also pray for our friend Jeff as he will finally be coming home from the hospital in a few weeks can't wait to have him home! Thanks to all our prayer warriors for your continued faith and prayer your text and phone calls mean the world to all of us!

"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go.”Josh 1:9:

God Bless until next time.....

Scott Lisa Macee and Warrior Tatum
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Comments

23 Comments

debra riley
By
Will say a prayer that you get back to philly soon and all will be well once the docs check out your little one! Deb and Marilyn riley
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tyler sutherland
By Tyler Sutherland
Stay strong Tatum you got this your an amazing little girl thoughts an prayers
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Robin Welcome
By Robin Welcome
Prayers are going your way for you and your family You have the best doctors and GOD on your side..
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Joyce Hegquist
By Joyce
Oh goodness!!! Thanks for the update so I can change my prayers for dear Fighting Tatum and her awesome family. Also praying for family of her classmate and of course Jeff.
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Dixie Schmidt
By Dixie Schmidt
What a strong little trooper she has to be. Now as parents you have to stay strong too. Prayers for all of you.
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Amy Tilleskjor
By Amy Tilleskjor
Stay strong Tatum you got this. We are all praying for you and your family!!
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dawn lembckke
By
Another curve ball......darnit! Hang in there Libby's!! Can't think of what else to say.....you're all in my thoughts!
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angela Anderson
By Angela & MacKenzie Anderson
Prayers for a good medical plan for Tatum! She is one very strong little girl! I just saw her at softball practice last Thursday and she ran over to me and gave me a big hug :) I commented on how much hair she has - holy smokes! Take care Tatum and we will be pulling for you!
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Tony Ray
By Tony Ray
Lots of us pulling for all of you. Hang tough Tatum !!
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