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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Ready for Philly!

Well it's been a little bit since the last update but that is a good thing! The girls have kept us busy with volleyball and running for every activity they can get there hands on. Macee had a really fun and successful season making C-Squad as a 8th grader she is so fun to watch and Tatum finished up her season with her big tournament in Alexandria its fun to watch her getting better every time she goes out. Yesterday we took Tatum to her quarterly appointment down in the cities to meet with Dr. Anderson the tumor doctor that found the monster to start all this. She is an amazing doctor always greeting with smiles and loves to see Tatum's progress. Tatum is basically blind in her left eye (Cancer eye) from the cataract becoming so thick. They took some really cool pictures of it to show us what they see when they look through there microscopes. the tougher news was that her right eye that has been 20/20 from the beginning has now started to slip its at 20/50 and is requiring glasses, a little disheartening but none the less if that's the worst news of the day we will take it. The other thing we addressed is the drift of Tate's Left eye, the brain has kind of given up on it because it can't see so when you look at her the left eye will drift out. Here is the amazing thing about Tatum's doctors God put these amazing people in the position to fix and heal after cataract surgery in February in Philly we will see Dr. Anderson in April and if the eye is still drifting she will do surgery to correct it amazing what they can do. So here is the plan We fly out to Philly the 2nd week of February Tatum will get the cataract surgery done and clean some of the leftover tumor debris along with all the normal test then back to MN and fix the eye drift! Dr. Anderson's goal is by May 1st 2016 Tate will see straight and clear with BOTH EYE'S!!!!!! Tatum is a smart tough kid, my grandma Fischer passed away last week, Tatum said on our way home yesterday "dad I know its going to be ok because our number one prayer warrior is now one of our number one angels her and Grandpa Libbesmeier know what to do." OK insert dad tears! We are asking for prayers for February and to all the family and friends struggling with things right now. Thanks to our prayer warriors for having our back we can truly feel it. Until next time happy Thanksgiving. BRING ON PHILLY!!!!!!!!!!!

"Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you." 2 Thessalonians 3:16

God Bless
Scott Lisa Macee and Warrior Tatum