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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Time flies oops!

Well it's been awhile since the last update time flies and we have been busy busy busy! Let's get right to it as of now we are moving along as planned keeping the same trip in August as planned and just pray that things don't get out of hand by then. We know we have the best doctors in the world but sometimes it hard to put our future and little warrior in someone else's hands! We will know more in August and try to keep our minds off everything until then,Tate's left eye (cancer eye) is drifting more and more and seems to be more light sensitive than ever but she doesn't complain a lot, Tatum's muluscom's seem to be under control a bit they are still hanging around but not in full force praying we can keep going down this path. On Saturday we got to go to Luke Bryan at TCF Bank stadium in the cities and he didn't disappoint! We all got to go down to meet up with him and get some pictures really awesome to watch him with Tate he never takes his eyes and hand off her always makes sure she feels like the only one in the room and always opens with a huge hug I'm not going to lie I think Lisa and Macee get a tad jealous but they to get there hugs to! It was a beautiful night for a outdoor stadium so cool, it was also special we got to share it with family and friends and a special guest our friend from Germany Michael Fabian. Michael came to MN on Wednesday and got the chance to experience MN summer at the lake and then the hustle and bustle of a Luke Bryan concert it was great to have him here. All in all we stay busy with the girls softball Tate is playing in 2 leagues. I will update with any changes hopefully we don't have to until August. Until next time.....












God Bless












Scott Lisa Macee and Warrior Tatum
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Comments

4 Comments

Jeanne Waln
By Jeanne Waln — last edited
Keeping all of you in my prayers and hope all goes well. I love the picture of Tatum and Luke Bryan.
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Tracy Hedstrom
By Tracy Hedstrom
Thank you for the update! She is always in our prayers!
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Deb Krusemark
By Deb Krusemark
Praying with you all goes wll and August brings you a good prognosis! I am so happy Luke continues such a good "friend". It truly makes him real doesn't it. Continue enjoying the summer and ball! You are a beautiful girl Tatum! Always keep that smile!!!!!!!!! Thanks for the update.
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Bobbi Wiener
By Bobbi Jo
:)
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1 person hearted this