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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

2 years

Tatum had her Tumor checkup on Friday at the u of m lions Childrens eye clinic with Dr Anderson. We reflected about how far we had come it was 2 years ago last week we sat in that same office and she told us something is wrong we need to get you guys out to Philly! Thinking of that man time flies it seems so long ago but yet like yesterday. The appt went good there is no sign of tumor regrowth. The pressure however is extremely elevated again we are hoping that it is just from the steroid shot in August and we are hoping that is why she has so much discomfort. Tatum will have to take a eye drop every day to try to get the that back down and we now have a recheck in December. Tatums vision in the cancer eye(left eye) has went down also the Dr said she thinks it's probably from the cataracts that has started developing. We knew this was a possibility and like Dr Anderson said this was to be expected after what we put that eye through. So the plan is not to change her glasses yet and see how she does and I a year or two we will have cataracts surgery and the hope is that that will clear up her vision. Thanks for all of the support and prayers they are not going unheard!


God Bless


The Libbesmeier's

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Comments

8 Comments

Faye Mrozek
By Faye
Tatum, so happy that your appointment went well.......we love to hear good news!!!
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Bobbi Wiener
By Bobbi Jo Wiener
Blessings to Tatum; prayers for good health!
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dawn lembckke
By Dawn Lembcke
Good news!! My nephew has had three eye surgeries which Dr. Anderson has done. She's such a good doctor and great person. My nephew loves her!! (And he's a teenager..ha). Enjoy the weekend and I hope Mac gets her deer!!
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Wendy Gwin
By Wendy(Fischer)Gwin from Oregon
Tatum, you are one strong little lady. With every thing you have been through in this long yet short 2 years, you have been quite the trooper. May God Bless you and keep you in his loving arms all the days ahead. Just remember he is there walking with you every step of the way and carrying you when it gets to be really hard. You are Loved , Tatum. Stay strong and keep up that loving disposition you have. In God's Love,
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Jeanne Waln
By Jeanne Waln
I am happy to hear that Tatum has no regrowth. She is a strong little warrior and will get thru all that she is dealing with now. God is watching over her . Praying for continued coverage!
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Joyce and David Hegquist
By Joyce
What a trooper Tatum is. I will continue to pray for her and for your family.
Love and Big Hugs to you all.
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jonathan schell
By jonathan schell
Great to hear no signs of regrowth! The other things can be dealt with and she is in great hands. Hang in there Tatum. Dr. Schell
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jonathan schell
By
Glad to hear she's doing well and no signs of regrowth. Hang in there Tatum! Dr. Schell
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