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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Philly

Today is a very fitting day for us, today is world cancer day and we spent today in a hospital with other cancer families. It was a great day we finally got the chance to meet face to face an amazing women Sabra and her warrior son Brayden these are true cancer hero's and have helped us through really tough times and helped us to understand this nasty disease! On to Tatum, she had a long day of waiting and then a really hard time coming out of anesthesia and her eyes are very sore. We got the chance to meet with the amazing Dr. Sheilds (tumor dr) for a bit and the news is remarkable. Start with the bad news Tatums vision went down in her left eye (cancer eye) from 20/50 to 20/70 since November meaning the cataracts in her eye is really starting to hurt her vision, we knew this was happening but not this rapidly. The second thing is her eye is a bit lazy and is developing a little droop this to she is linking to the cataracts. The good news is both of these are correctable we will be back out here in August and will meet with the cataract specialist and hoping we can wait until February appointment out here to have that surgery to fix it,that will be a long week for Tatum but they have a specialist here that fixes all of the retinoblastoma cataracts since it is a little different and why risk it when we are at the best place in the world. Now for the GREAT news Dr Sheilds can't believe where we are today from where we were 2 yrs ago!!!! Tatum is all clear no sign of a tumor or any re growth Tate didn't need to get a steroid shot this time because it was so clear that is great news that shot adds to her soreness. Dr Sheilds also added that Tatum is one of her most remarkable stories in the last 10 years, she told us she always presence Tatum at all the conferences they have to keep brining awareness to RB and to teach doctors all over the world how to catch it early and to save kids sight and lives. So the plan is to see Dr anderson back in MN in May then back out here in August hoping a year from now we can graduate to a once a year checkups. Tatum just got done eating her first meal of the day a cheese burger and ice cream lol. We are so thankful for all the text,calls, and messages we are so blessed to have such amazing family, friends and prayer warriors. We are praying that the weather holds out here in the morning so we can fly out on time. Oh I almost forgot our airline tickets round trip got upgraded to first class Tatum really thinks she is famous lol I guess CANCER has a couple perks.




Thanks and God Bless




Scott Lisa Macee and Warrior Tatum




Phil 4:19: And my God will meet all your needs according to his glorious riches in Christ Jesus
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Comments

18 Comments

Jeanne Waln
By Jeanne waln
Awesome news! Sorry I am a little late in responding but I do keep all of you in my prayers. I hope you arrive home safely and stay warm. God is good.
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1 person hearted this
Alicia Bertram
By Adam, Alicia, Jackson & Lucy
What awesome news!!! So glad you are in the best of the best hands. Must help take a little of the worry away. Hugs love and prayers to you all! Safe trip home!
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Faye Mrozek
By Faye Mrozek
Good news far outweighs the bad. I am happy for all of you but especially Tatum. She has endured a lot and deserves good news.

Love to all, Faye
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Lorrie Hervey
By Lorrie Hervey
Oh yah, Warm fuzzy hugs all around. Great Job with the good news. Your my inspiration Tatum!!!
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mark dilly
By
My thoughts and prayers are with Tatum and all the family.What a brave little girl she is !
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Rustie R Dodge
By Kim Schott
Praise the Lord for the Good News! Tatum you are such a beautiful girl and I pray for your continued good results. I will keep you in my prayers and many Blessings for you & your future.
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deb robertson
By
This is GREAT news! I will continue to pray for Tatum and your family! Love & hugs! 😍😘
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Susan Schneider
By Susan Schneider
Love the great news!!!
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julie nohre
By julie nohre
So Happy for you all from another cancer kid family, that is the most wonderful news!!!
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Amy Lennes
By Amy Lennes
Praise the lord! So happy for all of you - what great news to hear!!! Hugs to all of you!!
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