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Tatum’s Story

On Wednesday February 8 2012 Tatum woke up with a sore eye after treating her eye for for what we thoughtwas a eye infection for two days, the redness cleared Lisa(Tatum’s mom) noticedblood in the center of her eye. We brought her down to see the local eye doctorin Morris MN who sent us right to St. Cloud MN after 2 appt's we were sent tothe U of M Eye Specialist were she was seeing Dr Steven Kaufman. From February to October we would be seen here once sometimes twice a week to control pressure in her eye and to test to find answers. Over the 9 months we seen multiple specialists at the U of M and Mayo clinic we had 3 A/C Taps that take fluid out of her eye to test for many things including Cancer with no answers.Tatum was put on multiple drops and meds to try to fix her developing glaucoma which was making her pressure rise and there is a film developing on the insideof her cornea that is making it harder to see thru.

On October 23 Tatum's pressure was rising and her eye stopped responding to the meds so after a meeting withall her Dr's they sent us over to the MN Lions Children's Eye Clinic to see a tumor specialist. On Friday October 26 we had our Apt. with Dr Jill Anderson a pediatric eye and tumor specialist this will be a day we never forget the day that changed our lives! After a long day of MRI's CT scans and putting her under to get a better look and pics of her eye the look on her face when she came in the room told us everything! What she found and showed us was a large tumor on Tatum's Iris (the colored part of your eye) that she said we needed to go to one of 2 places Bascom Palmer in Miami or Wills Eye in Philadelphia. After a conference call on Saturday they decided to send us to Wills Eye in Philadelphia and wanted us there as soon as possible. We were delayed a week due to hurricane Sandy but made the trip the following week. For a week they did everytest they had and after a biopsy of the Tumor we were told the ugly truth RETINOBLASTOMA EYE CANCER!

 After many tears shed The AMAZING Dr's at Wills Eye Dr Carol Shields and her team and the AMAZING Dr Ann Leahey Children's Hospital of Philadelphia (CHOP) and her team gave us a plan that we would put in place to save her eye and her life!!!!

  We are currently done with Radiation and are going thru Chemo Tatum's last round is in May of 2013! Westill have a long road but with our Awesome Dr's we know we will beat this evil monster! We have to go back to Philly every three months for at least the next2 years to make sure the tumor don't come back! With the support of our familyand friends and the help of God we will be CANCER FREE!  

Latest Journal Update

Luke Bryan!!!

In case you guys didn't know Luke Bryan is amazing he treats our little warrior like a Queen!!! Our tickets were right on the field right next to the stage with the full meet and greet!!! Cole swindell grabbed the girls hands and sang to them even stoping during a song to pose behind them for a picture another awesome guy!!! A little Lee Bryce and then to hang out with Luke! As always he grabbed her and hugged her and always kept a hand on her the whole time simply loves her! He stopped to look at her eye that has blood in it from the steroid shot and looks horrible and immediately started asking " did they get it is it gone" so concerned and when we told him she was cancer free he grabbed her and hugged here while the rest of his team of mangers and body guards cheered and clapped!!! He also asked her if her boots were getting to tight yet and to let him know when they are so he can send her a new pair I think she found a friend for life!!!! We can't say enough about his manager Kerri and his other Manager Jacoby who in May had kidney transplant it was great to see them again they were so excited to see all of us and to see how long Tatum's hair has gotten. We got to go with our friend Jackie from Philly who has become a amazing friend! What a great end to a great week we couldn't have asked for better news!!! I will add some pics in photos to checkout. Thanks to everyone for your prayers and support we can't even thank you all enough!!!




Thanks and God Bless




Scott Lisa Macee and warrior Tatum



John 3:16: For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.
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Comments

5 Comments

Donna Kaufman
By
What an amazing little girl that Tatum is, she deserves to be treated like a queen, god bless you all!
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1 person hearted this
Joyce and David Hegquist
By Dave and Joyce
We are so glad Luke gives you special treatment, Tatum, because you are special. We love you and we thank the Lord for what He's doing for you. :)
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1 person hearted this
Heidi Schoenecker
By Heidi Schoenecker
Sounds like you had an amazing time! So happy for all of you! You guys deserve the special treatment!!
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1 person hearted this
Janelle Brunkow
By
Good to hear such great,uplifting news! Luke Bryan must be an awfully nice guy! glad he has been a part of your journey!
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1 person hearted this